The Assessment of Quality of Life in Dementia

Weyerer, Siegfried; Schäufele, Martina

doi:10.1017/s1041610203009475

Cited by 19 publications

(12 citation statements)

References 6 publications

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“…The patients' primary nurses have learned to know their patients' preferences and idiosyncrasies. Thusly, one may avoid the limitations caused by the person`s dementia (Weyerer & Schäufele ). However, one needs to be aware of possible discrepancies between views and preferences of the person with dementia and the perception thereof by the interview proxy (Trigg et al .…”

Section: Methodsmentioning

confidence: 99%

Moments of joy and delight: the meaning of traditional food in dementia care

Hanssen

Kuven

2016

Journal of Clinical Nursing

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Section: Methodsmentioning

confidence: 99%

Moments of joy and delight: the meaning of traditional food in dementia care

Hanssen

Kuven

2016

Journal of Clinical Nursing

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“…Allereerst is er het verschil tussen de objectieve en de subjectieve benadering: bij de eerste staan objectieve aspecten van kwaliteit van leven centraal, zoals ADLafhankelijkheid, voeding en veiligheid, bij de tweede het subjectieve welbevinden, zoals ervaren gezondheid, tevredenheid over sociale contacten en plezier beleven/gelukkig zijn (zie bijv. 34,35). Voorts bleken er verschillen te bestaan in de domeinen die voor kwaliteit van leven van belang worden geacht, en in de argumentatie voor de keuze van bepaalde domeinen.…”

Section: Inleidingunclassified

Kwaliteit van leven bij dementie

Gerritsen¹,

Dröes²,

Ettema³

et al. 2010

TIJDSCHR. GERONTOLOGIE GER.

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Different definitions of quality of life (QOL) are found in the literature. This raised the question which domains are viewed as really important by persons with dementia. In an explorative study the opinions of persons with dementia (community-dwelling and living in nursing homes), were compared to those of professional carers and instruments for QOL in dementia. Data were gathered through interviews, focus groups and literature study. Most QOL-domains mentioned as important by persons with dementia were also acknowledged by carers and in measurement instruments. Some domains, however, were not mentioned by the carers ('sense of aesthetics', 'financial situation', 'being useful' and 'spirituality'), or not selected in the measuring instruments ('security and privacy', 'self-determination and freedom', 'being useful' and 'spirituality'). This indicates differences in perspectives on quality of life between persons with dementia, professional caregivers and researchers. Subsequently it was studied to what degree professionals focus on the QoL-domains that persons with dementia consider essential. Caregivers working on 29 units and 3 day care facilities of 13 nursing homes and in 12 meeting centers filled out a questionnaire (N = 374). They reported to focus at least to some degree on most domains considered important by persons with dementia. However, little attention was paid to the domains 'financial situation' and 'being useful'. Professionals offering daytime activities focused more than 24-hour care staff on 'attachment', 'enjoyment of activities', 'sense of aesthetics', and 'being useful'. This article is a translation and merging of 1) Dröes et al. Quality of life in dementia in perspective; an explorative study of variations in opinions among people with dementia and their professional caregivers, and in literature. Dementia: The International Journal 2006; 5 (4): 533-558, and 2) Gerritsen et al. Differences in perspective: do professional caregivers focus on the Quality of life domains that are important for people with dementia? American Journal of Alzheimer's Disease and Other Dementias 2007; 22:176-183.

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“…Three approaches have been used for assessing QOL in dementia patients: 1) direct observation of behaviours and activities assumed to be related to QOL; 2) proxy reports by a family member or caregiver; and 3) self-reports by the individual with dementia. 9,10 Until quite recently dementia patients were assumed not to be able to provide meaningful information about their QOL because of their cognitive impairments, leading to the proliferation of observational and proxy QOL measures. 1,11 However, both these approaches exclude consideration of the patient's subjectively appraised experiences, which many believe to be an inherent feature of QOL.…”

Section: Approaches To Qol Assessment In Dementia Patientsmentioning

confidence: 99%

Quality of Life in Dementia

Naglie

2007

Can. J. Neurol. Sci.

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There is a growing consensus that quality of life (QOL) is an important outcome for assessing the effectiveness of interventions for dementia, but there is no agreement about how to best measure it. Various approaches to QOL assessment have been employed to measure the QOL of persons with dementia, including patient self-report, caregiver proxy report and observational assessment by trained observers. Furthermore, several dementia-specific measures of QOL have been developed, and several generic measures of QOL have been used to assess QOL in dementia. However, to date, QOL has rarely been included as an outcome measure in clinical trials of pharmacotherapy for dementia. This manuscript reviews the current state of knowledge about QOL assessment in dementia.

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The Assessment of Quality of Life in Dementia

Cited by 19 publications

References 6 publications

Moments of joy and delight: the meaning of traditional food in dementia care

Moments of joy and delight: the meaning of traditional food in dementia care

Kwaliteit van leven bij dementie

Quality of Life in Dementia

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