The Affective Creativity of a Couple in Dementia Care

Jeong, Jong-min

doi:10.1007/s11013-019-09662-5

Cited by 7 publications

(4 citation statements)

References 56 publications

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“…As soon as mum starts to get anxious or angry I hum or sing and soon she starts to join in and forgets feeling bad. Now unable to maintain a conversation or discussion as we used to we can punctuate quiet times with singing together those songs which we like or evoke happy memories for us, we always end up laughing and hugging This extract illustrates how the arts can be more than a way to manage care, but rather, as noted by Jeong (2019), can also enhance remaining artistic capacity in people living with dementia, and so enhance the affective experience of both carer and cared-for.…”

Section: Resultsmentioning

confidence: 96%

Carers Create: Carer perspectives of a creative programme for people with dementia and their carers on the relationship within the (carer and cared-for) dyad

et al. 2020

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Introduction Relationships between people with dementia and their carers can prove challenging over the trajectory of the disease. Interventions with a potential to address this include arts and music-based activities. This research project aimed to evaluate a community engagement programme (Carers Create) where both people with dementia and their carers participate together in singing and other activities. A specific focus was on the impact of the sessions on the dyadic relationship. Methods A grounded theory approach involved conducting three focus group interviews with carers of people with dementia ( n = 16) facilitated by members of a local U3A (University of the Third Age) who were trained and supported by university researchers. Recorded conversations were transcribed and analysed using a three-stage coding and thematic development technique. Results Four overarching themes were identified from the discourse: remembering the positive qualities of the cared-for, the physical and emotional demands of caring, Carers Create as a shared, beneficial activity and the enduring value of Carers Create. Conclusion Carers found the sessions to positively influence the relationship with the person they cared for through offering some relief from the day-to-day pressures of caring and, in some cases, restoring elements of a previously strong relationship. Crucial to the experience was the fact that the sessions included both carer and cared-for, offering activities to do together, and that they took place within a group, thereby offering a degree of mutual support. In addition, some carers were able to build on learning which had taken place and use certain techniques, such as singing, to help manage care, thus extending the improved relationship.

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Section: Resultsmentioning

confidence: 96%

Carers Create: Carer perspectives of a creative programme for people with dementia and their carers on the relationship within the (carer and cared-for) dyad

et al. 2020

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“…In this article, I explore this co-existence of efforts to maintain meaningful relations and experiences of what has been referred to in the literature as pre-death, or anticipatory grief in dementia (Blandin and Pepin 2015 ; Large and Slinger 2015 ; Lindauer and Harvath 2014 ; Moore, et al, 2020 ; Peacock, et al, 2018 ). While public discourses tend to address dementia in terms of loss, using metaphors of absence and disappearance, there is also an increasing number of studies that address the possibilities of a good life with dementia (Driessen 2018 ; Grøn and Mattingly 2018 ), the relational, as opposed to biomedical, practices through which the person with dementia is held in relations (Moser 2011 ), and arts-focused moral experiments to engage the person with dementia (Jeong 2020 ; Taylor 2017 ). My contribution to this growing body of literature is to demonstrate the ways in which loss and connection interweave and sometimes come apart.…”

Section: Introductionmentioning

confidence: 99%

Anticipatory Grief in Dementia: An Ethnographic Study of Loss and Connection

Dekker

2022

Cult Med Psychiatry

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In this article, I address the experiences of family members of people with dementia, as they expressed the sensation of gradually losing the person with dementia. Based on ethnographic fieldwork in nursing homes in the Netherlands, and contributing to the anthropology of grief, I explore the co-existence of experiences of anticipatory grief and manifestations of care to maintain meaningful relations. I show how my interlocutors adapted to changing circumstances as the disease progressed, and in so doing found new ways to relate, as well as prepared for future losses and the expected end of life. I argue that anticipatory grief is temporal and relational, encompassing both present and future losses, and involving a continuous negotiation between the loss and the continuing relationship. I underscore the entanglement of loss and connection, showing how both exist parallel to, and may emerge from one another, and demonstrating how an anthropological approach to anticipatory grief can reveal the nuanced and equivocal character of experiences of illness and at the end of life.

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“…Although there is increasing evidence of the beneficial health effects of various art forms, some previous studies have been conducted in hospitals or dementia care settings, where arts were introduced to manage pain, anxiety and stress symptoms. (Boyce et al, 2018;Golden et al, 2020;Jeon, 2020). Few studies have investigated the perspectives or experiences of family caregivers.…”

mentioning

confidence: 99%

A participatory arts programme – Shared experience for family caregivers and care recipients

et al. 2022

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Aim This study aimed to describe family caregivers of older people's experiences of participatory art interventions, including music, dance and visual arts. Design A descriptive qualitative study. Methods Thematic interviews were conducted with 12 family caregivers. Qualitative data were analysed with thematic analysis. Results The results illustrated the meaning of art groups, which included a shared feeling of togetherness, empowering and activating peer support and a sense of communality. Art groups also represented a hobby, enhancing caregivers' social and mental well‐being. The art groups could be described as an art‐driven, participatory shared experience. Participatory arts are noteworthy contributors to the well‐being of family caregivers and care recipients, especially from peer support and communality. Further research is needed to find out about participants' preferred art‐based activities and their impact on their well‐being. No patient or public contribution because of inflexibility in the timing of engagement.

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The Affective Creativity of a Couple in Dementia Care

Cited by 7 publications

References 56 publications

Carers Create: Carer perspectives of a creative programme for people with dementia and their carers on the relationship within the (carer and cared-for) dyad

Carers Create: Carer perspectives of a creative programme for people with dementia and their carers on the relationship within the (carer and cared-for) dyad

Anticipatory Grief in Dementia: An Ethnographic Study of Loss and Connection

A participatory arts programme – Shared experience for family caregivers and care recipients

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