The Adolescent Child Health and Illness Profile

Starfield, Bárbara; Riley, Anne W.; Green, Bert F.; Ensminger, Margaret E.; Ryan, Sheryl; Kelleher, Kelly J.; Kim-Harris, Sion; Johnston, Dennis; Vogel, Kelly

doi:10.1097/00005650-199505000-00008

Cited by 254 publications

(155 citation statements)

References 13 publications

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“…Domain Cronbach's as range from 0.53 to 0.93. 36 Symptom Checklist-90 (Revised)-SCL-90R. The SCL-90R is a 90-item self-report inventory that measures a broad range of psychologic problems and symptoms of 214 SIBINGA ET AL.…”

Section: Methodsmentioning

confidence: 99%

Mindfulness-Based Stress Reduction for Urban Youth

Sibinga¹,

Kerrigan

Stewart

et al. 2011

The Journal of Alternative and Complementary Medicine

160

124

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Objectives: The objectives of this study were to assess the general acceptability and to assess domains of potential effect of a mindfulness-based stress reduction (MBSR) program for human immunodeficiency virus (HIV)-infected and at-risk urban youth. Methods: Thirteen-to twenty-one-year-old youth were recruited from the pediatric primary care clinic of an urban tertiary care hospital to participate in 4 MBSR groups. Each MBSR group consisted of nine weekly sessions of MBSR instruction. This mixed-methods evaluation consisted of quantitative data-attendance, psychologic symptoms (Symptom Checklist 90-Revised), and quality of life (Child Health and Illness Profile-Adolescent Edition)-and qualitative data-in-depth individual interviews conducted in a convenience sample of participants until interview themes were saturated. Analysis involved comparison of pre-and postintervention surveys and content analysis of interviews. Results: Thirty-three (33) youth attended at least one MBSR session. Of the 33 who attended any sessions, 26 youth (79%) attended the majority of the MBSR sessions and were considered ''program completers.'' Among program completers, 11 were HIV-infected, 77% were female, all were African American, and the average age was 16.8 years. Quantitative data show that following the MBSR program, participants had a significant reduction in hostility ( p ¼ 0.02), general discomfort ( p ¼ 0.01), and emotional discomfort ( p ¼ 0.02). Qualitative data (n ¼ 10) show perceived improvements in interpersonal relationships (including less conflict), school achievement, physical health, and reduced stress. Conclusions: The data suggest that MBSR instruction for urban youth may have a positive effect in domains related to hostility, interpersonal relationships, school achievement, and physical health. However, because of the small sample size and lack of control group, it cannot be distinguished whether the changes observed are due to MBSR or to nonspecific group effects. Further controlled trials should include assessment of the MBSR program's efficacy in these domains.

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Section: Methodsmentioning

confidence: 99%

Mindfulness-Based Stress Reduction for Urban Youth

Sibinga¹,

Kerrigan

Stewart

et al. 2011

The Journal of Alternative and Complementary Medicine

160

124

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show abstract

“…The CHIP-AE also includes biological markers of medical health and psychosocial disorders. 10,11 We hypothesized that the self-perceived health-related quality of life of our population would be determined both by biological risk, as evidenced by birth weight status (VLBW vs NBW) and by sociodemographic factors.…”

mentioning

confidence: 99%

Self-Perceived Health, Functioning and Well-Being of Very Low Birth Weight Infants at Age 20 Years

Hack

Cartar

Schluchter

et al. 2007

The Journal of Pediatrics

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Objective-To examine the self-perceived health of very low birth weight (VLBW; <1.5 kg) infants during young adulthood.Study design-The population included 241 VLBW and 232 normal birth weight (NBW) controls who completed the Child Health and Illness Profile: Adolescent Edition (CHIP-AE) at 20 years of age. The CHIP-AE includes six domains: Satisfaction, Comfort, Resilience, Achievement, Risk Avoidance, and Disorders, and 13 profiles that characterize patterns of health. Results were compared between VLBW and NBW subjects adjusting for sex and sociodemographic status.Results-VLBW subjects did not differ from NBW controls in the domains of Satisfaction or Comfort but reported less Resilience (effect size [ES] −0.19, P < .05), specifically in physical activity and family involvement. They reported better Achievement, specifically in work performance (ES 0.28, P < .05), more Risk Avoidance (ES 0.43, P < .001), and significantly more long-term medical, surgical, and psychosocial disorders. Similar proportions of VLBW and NBW subjects reported Excellent (15% vs 11%), Average (27% vs 34%), and Poor (12% vs 13%) profiles of health.Conclusions-VLBW subjects report similar health, well-being, and functioning compared with NBW controls and greater risk avoidance. However, we are concerned that their lesser resilience may prove detrimental to their future adult health.Reports of the young adult outcomes of very low birth weight children (VLBW; <1.5 kg) who were the initial survivors of neonatal intensive care have included educational achievement and various aspects of health and behavior. 1-4 The reports of health outcomes have, with few exceptions, 2,3 pertained to specific biological markers of health such as neurosensory impairments and other chronic conditions. 1,3,5-7 There has been very little prior research on the overall impact of VLBW on young adults' self-perceived health, functioning, and wellbeing. 2,3 This broader concept of self-assessed health has been termed "health-related quality of life," which is widely considered to be an important outcome of medical interventions, because it constitutes the individual's own experiences and evaluations of health.As part of a longitudinal study of the outcomes of a cohort of VLBW young adults born during the years 1977 through 1979, we previously reported on outcomes at 20 years of age, including To more fully describe the health experiences of VLBW children as compared with normal birth weight (NBW) controls at 20 years of age, we used the Child Health and Illness Profile: Adolescent Edition (CHIP-AE) a multidimensional self-report instrument that is based on a framework of health-related quality of life that includes satisfaction with health and self, comfort feelings, psychosocial resiliencies, risk behaviors, and achievement in academic and work settings. The CHIP-AE also includes biological markers of medical health and psychosocial disorders. 10,11 We hypothesized that the self-perceived health-related quality of life of our population would be determined...

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“…It has been advocated for perinatal outcomes research but has rarely been used. [122][123][124] The 2 health instruments based on the generic or noncategorical approach for late childhood and young-adult studies [124][125][126] are the Child Health Illness Profile (CHIP-CE) 127 and the Questionnaire for Identifying Children With Chronic Conditions (QuICC). 128 The 2 questionnaires complement each other in that the CHIP-CE examines the profile of the child's general health and developmental status, whereas the QuICC examines functioning and special health care and educational needs attributed to chronic illness.…”

Section: School-age Outcomesmentioning

confidence: 99%

Follow-up Care of High-Risk Infants

2004

Pediatrics

112

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There are currently no standardized guidelines for provision of follow-up services for high-risk infants in tertiary care centers despite the requirement for follow-up clinic experience in the 97 approved neonatal fellowship training programs in the United States and the increasing number of centers participating in multicenter networks. As the total number of survivors at risk for neurodevelopmental morbidities increases, many clinical research questions have surfaced that can only be answered by long-term follow-up studies. There is increasing awareness of the importance of long-term outcome in randomized, controlled trials, because perinatal interventions may dramatically alter later growth and development. There is also an increased recognition of the potential disconnect between perinatal outcomes and long-term outcomes. The administration of oxygen and postnatal steroids are prime examples of interventions that may have immediate positive effects but negative long-term effects. In addition, multicenter studies have identified significant center differences in the management and developmental outcome of high-risk infants. These findings led to the recognition of the need to improve standardization and comparability of methodology and data collection within and among centers and networks as a first step toward research to improve the long-term neurodevelopmental outcome of high-risk infants. The workshop participants met to define optimal methods to assess the outcome of high-risk infants, identify gaps in knowledge about the neurodevelopmental outcome of high-risk infants, and prioritize research efforts in response to these gaps.

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The Adolescent Child Health and Illness Profile

Cited by 254 publications

References 13 publications

Mindfulness-Based Stress Reduction for Urban Youth

Mindfulness-Based Stress Reduction for Urban Youth

Self-Perceived Health, Functioning and Well-Being of Very Low Birth Weight Infants at Age 20 Years

Follow-up Care of High-Risk Infants

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