The ACE approach: promoting well‐being and peer support for younger people with dementia

Davies-Quarrell, Vivienne; Higgins, Alan; Higgins, Joan; Quinn, Pat; Quinn, Mo; Jones, Gary Clayton; Jones, Linda; Foy, Anthony S.; Foy, Vilma; Marland, Robert; Marland, Pat; Powell, A. W. B.; Keady, John

doi:10.5042/jmhtep.2010.0503

Cited by 14 publications

(38 citation statements)

References 11 publications

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“…Twenty articles were included, 10 of which were primary studies (Beattie, DakerWhite, Gilliard, & Means, 2004;Carone, Tischler, & Dening, 2016;Hewitt, Watts, Hussey, Power, & Williams, 2013;Kelly & Innes, 2016;Kinney, Kart, & Reddecliff, 2011;O'Connell et al, 2014;Parahoo, Campbell, & Scoltock, 2002;Perkins & Poynton, 1990;Reed, Cantley, Clarke, & Stanley, 2002;Robertson & Evans, 2015). Ten were descriptive accounts of interventions (Barker & Johnson, 2008;Chaston, Pollard, & Jubb, 2004;Craig & Strivens, 2016;Davies-Quarrell et al, 2010;LaFontaine, 2004;Parkes & Ward, 2015;Ramluggun & Ogo, 2016;J. Robertson, Evans, & Horsnell, 2013;Tonga, Arnevik, Werheid, & Ulstein, 2016;Wheeler et al, 2015).…”

Section: Resultsmentioning

confidence: 99%

“…This included having a named person to contact and learning how to go about organising 'self-directed support' (Kelly & Innes, 2016). Support that targeted people with YOD had the additional benefit of providing respite for family carers as they were not expected to attend gardening programmes (Hewitt et al, 2013) or work-based programmes (Robertson & Evans, 2015;Robertson et al, 2013), but could join programmes such as social clubs (Davies-Quarrell et al, 2010) or the football club and meet other family carers looking after a person with YOD (Carone et al, 2016).…”

Section: Support For Family Caregiversmentioning

confidence: 99%

“…Community-based services included day centres for people with YOD (Beattie et al, 2004), respite services offering YOD-specific support (Parahoo et al, 2002), community-based support groups (Carone et al, 2016;Chaston et al, 2004;Davies-Quarrell et al, 2010), volunteer-led activities (Kinney et al, 2011), work-based programmes (Robertson & Evans, 2015;J. Robertson et al, 2013) and on-line support groups (Craig & Strivens, 2016;O'Connell et al, 2014).…”

Section: Types Of Services/interventionsmentioning

confidence: 99%

“…Day centres provided activities facilitated by trained staff for a number of hours per week (Beattie et al, 2004), whilst domiciliary respite services were designed to support caregivers, enabling families to keep people living with YOD in their own homes for longer (Parahoo et al, 2002). Community-based and volunteer-led support groups networked with local NHS Trusts (Chaston et al, 2004), local Alzheimer's Society services (Carone et al, 2016;Davies-Quarrell et al, 2010;Kinney et al, 2011) and organisations such as a local zoo (Kinney et al, 2011), a football club (Carone et al, 2016) and organisations hosting structured gardening programmes (Hewitt et al, 2013). Work-based programmes were organised between a respite service, a local hardware store and volunteers (Robertson & Evans, 2015; J.…”

Section: Types Of Services/interventionsmentioning

confidence: 99%

“…Partnerships between Local Councils, community-based organisations and agencies such as the Alzheimer's Society required referrals from health and social care professionals (Kelly & Innes, 2016), local clinics (O'Connell et al, 2014) or local dementia services (Hewitt et al, 2013). Referrals to community-based services were made primarily via non-statutory, third-sector agencies such as the Alzheimer's Society (Carone et al, 2016;Davies-Quarrell et al, 2010;Kelly & Innes, 2016;Kinney et al, 2011;LaFontaine, 2004;Parahoo et al, 2002;Parkes & Ward, 2015) and local dementia services (Hewitt et al, 2013). On-line support groups (Craig & Strivens, 2016) and local projects run by volunteers (Chaston et al, 2004;Jacinta Robertson & Evans, 2015) were publicised via leaflets and word of mouth.…”

Section: Referral Mechanismsmentioning

confidence: 99%

See 4 more Smart Citations

Age-appropriate services for people diagnosed with young onset dementia (YOD): a systematic review

Mayrhofer

Mathie

McKeown

et al. 2017

Aging & Mental Health

100

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Background: Literature agrees that post-diagnostic services for people living with young onset dementia (YOD) need to be age-appropriate, but there is insufficient evidence of 'what works' to inform service design and delivery. Objective: To provide an evidence base of age-appropriate services and to review the perceived effectiveness of current interventions. Methods: We undertook a systematic review including all types of research relating to interventions for YOD. We searched PubMed, CINHAL Plus, SCOPUS, EBSCO Host EJS, Social Care Online and Google Scholar, hand-searched journals and carried out lateral searches (July-October 2016). Included papers were synthesised qualitatively. Primary studies were critically appraised.

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Section: Resultsmentioning

confidence: 99%

Section: Support For Family Caregiversmentioning

confidence: 99%

Section: Types Of Services/interventionsmentioning

confidence: 99%

Section: Types Of Services/interventionsmentioning

confidence: 99%

Section: Referral Mechanismsmentioning

confidence: 99%

See 3 more Smart Citations

Age-appropriate services for people diagnosed with young onset dementia (YOD): a systematic review

Mayrhofer

Mathie

McKeown

et al. 2017

Aging & Mental Health

100

View full text Add to dashboard Cite

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‘We can't keep going on like this’: identifying family storylines in young onset dementia

et al. 2013

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Link to this article: http://journals.cambridge.org/abstract_S0144686X13000202How to cite this article: PAMELA ROACH, JOHN KEADY, PENNY BEE and SION WILLIAMS (2014). 'We can't keep going on like this': identifying family storylines in young onset dementia. ABSTRACTIn this study, we identify the dominant storylines that were embedded in the narratives of younger people with dementia and their nominated family members. By implementing a longitudinal, narrative design underpinned by biographical methods we generated detailed family biographies with five families during repeated and planned research contacts (N = ) over a --month period between  and . The application of narrative analysis within and between each family biography resulted in the emergence of five family storyline types that were identified as: agreeing; colluding; conflicting; fabricating; and protecting. Whilst families were likely to use each of these storylines at different points and at different times in their exposure to young onset dementia, it was found that families that adopted a predominantly 'agreeing' storyline were more likely to find ways of positively overcoming challenges in their everyday lives. In contrast, families who adopted predominantly 'conflicting' and 'colluding' storylines were more likely to require help to understand family positions and promote change. The findings suggest that the identification of the most dominant and frequently occurring storylines used by families may help to further understand family experience in young onset dementia and assist in planning supportive services.

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‘Rekindling couplehood’ using a multisensory suitcase of memories: a pilot study of people living with moderate dementia and their partners

et al. 2022

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Creating individualised activities in partnership with people who have moderate dementia and their partners at home has rarely been achieved, as such interventions are usually pre-planned by researchers or professionals. The academic gap is in the activity design being led by the person who has dementia and their partner and how to engage them in a meaningful manner which rekindles positive joint memories and improves the quality of their current relationship. This article explores the meaning and significance of recalling shared holiday memories for people living with moderate dementia and their partners, using multisensory reminiscence. A sensory ethnography research methodology was employed which enhanced co-design of the activity over five home visits. The research culminated in the creation of a digital story, sharing of food and drink, and re-enactment through exploration of their holiday memorabilia: forming their suitcase of memories (SOM). The study extends the current academic debate of co-produced interventions and identifies the critical themes of ‘holidays as life’, ‘freedom’, ‘view seen, viewpoint heard’ and ‘strengthened self-identity with younger self’ which emerged from the research. Such areas of sensory reminiscence have supported positive recollections, discourse and, when combined, resulted in a beneficial impact on the partner's shared relationship. A significant research outcome was the transition from a negative life view dominated by dementia to rekindling their relationship positively as a result of the SOM intervention and sensory methodology. Future research to continue the work with new couples to see if similar results are achieved with more case studies is needed.

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The ACE approach: promoting well‐being and peer support for younger people with dementia

Cited by 14 publications

References 11 publications

Age-appropriate services for people diagnosed with young onset dementia (YOD): a systematic review

Age-appropriate services for people diagnosed with young onset dementia (YOD): a systematic review

‘We can't keep going on like this’: identifying family storylines in young onset dementia

‘Rekindling couplehood’ using a multisensory suitcase of memories: a pilot study of people living with moderate dementia and their partners

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