The 21st Century Cures Act and electronic health records one year later: will patients see the benefits?

Lye, Carolyn T.; Forman, Howard P.; Daniel, Jodi G.; Krumholz, Harlan M.

doi:10.1093/jamia/ocy065

Cited by 42 publications

(25 citation statements)

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“…There are several organizations working to achieve interoperability through the creation of technical standards, principles on governance and use, and connecting health information exchanges; however, these disparate efforts have yet to realize their collective impact 28 . While the 21st Century Cures Act, MIPS, and the need for information to support value-based care create incentives for interoperability, strong disincentives such as cost and business interests continue to limit information exchange 30 . In addition, fearing penalties for HIPAA violations, some organizations have adopted conservative approaches to sharing information, which often hinders interoperability and can have a negative impact on both patients and physicians 31 , 32 .…”

Section: Us Healthcare System Influencesmentioning

confidence: 99%

The complex case of EHRs: examining the factors impacting the EHR user experience

Tutty

Carlasare

Lloyd

et al. 2019

Journal of the American Medical Informatics Association

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Physicians can spend more time completing administrative tasks in their electronic health record (EHR) than engaging in direct face time with patients. Increasing rates of burnout associated with EHR use necessitate improvements in how EHRs are developed and used. Although EHR design often bears the brunt of the blame for frustrations expressed by physicians, the EHR user experience is influenced by a variety of factors, including decisions made by entities other than the developers and end users, such as regulators, policymakers, and administrators. Identifying these key influences can help create a deeper understanding of the challenges in developing a better EHR user experience. There are multiple opportunities for regulators, policymakers, EHR developers, payers, health system leadership, and users each to make changes to collectively improve the use and efficacy of EHRs.

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Section: Us Healthcare System Influencesmentioning

confidence: 99%

The complex case of EHRs: examining the factors impacting the EHR user experience

Tutty

Carlasare

Lloyd

et al. 2019

Journal of the American Medical Informatics Association

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“…11,13 Most recently, the 21st Century Cures Act, passed in 2016, contains several provisions to enhance interoperability, and its impact on current health information exchange is still evolving. 14,15 True interoperability, even among medical EHRs, remains rare, and is often reliant upon unrelated hospital systems purchasing the same EHR package. 16 Additionally, within both medicine and dentistry, consensus is still being reached on key components of clinical care and health information that should be universally recorded within a patient's EHR.…”

Section: Background and Significancementioning

confidence: 99%

Improving Oral–Systemic Healthcare through the Interoperability of Electronic Medical and Dental Records: An Exploratory Study

Simon

Obadan‐Udoh

Yansane³

et al. 2019

Appl Clin Inform

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Objectives Electronic health records (EHRs) are rarely shared among medical and dental providers. The purpose of this study was to assess current information sharing and the value of improved electronic information sharing among physicians and dentists in Germany and the United States. Materials and Methods A survey was validated and distributed electronically to physicians and dentists at four academic medical centers. Respondents were asked anonymously about EHR use and the medical and dental information most valuable to their practice. Results There were 118 responses, a response rate of 23.2%. The majority (63.9%) of respondents were dentists and the remainder were physicians. Most respondents (66.3%) rated the importance of sharing information an 8 or above on a 1-to-10 Likert scale. Dentists rated the importance of sharing clinical information significantly higher than physicians (p = 0.0033). Most (68.5%) providers could recall an instance when access to medical or dental information would have improved patient care. Dentists were significantly more likely to report this than physicians (p = 0.008). Conclusion Physicians would value a standardized measure of “oral health” in their EHR. Dentists were less likely to find specific medical diagnostic test results of value. Both dentists and physicians agreed that oral–systemic health was important; interoperable EHRs could facilitate information transfer between providers and enhance research on oral–systemic health connections. Both dentists and physicians believed that an interoperable EHR would be useful to practice, but desired information was different between these groups. Refinement of the information needed for shared practice is required.

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“…Using EHR or IoT data sets, in contrast to clinical trials, allows interrogation of extremely large numbers of patients and generation of enormous volumes of RWD. Passing of the 21st Century Cures Act 21 and the Prescription Drug User Fee Act Reauthorization 22 has resulted in regulatory guidance on how to interrogate this information. Flatiron Health has created a clinicogenomic database containing real-world, longitudinal, patient-level clinical EHR data from cancer clinics.…”

Section: Research Applicationmentioning

confidence: 99%

Susan G. Komen Big Data for Breast Cancer Initiative: How Patient Advocacy Organizations Can Facilitate Using Big Data to Improve Patient Outcomes

Jourquin

Reffey

Jernigan

et al. 2019

JCO Precision Oncology

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Integrating different types of data, including electronic health records, imaging data, administrative and claims databases, large data repositories, the Internet of Things, genomics, and other omics data, is both a challenge and an opportunity that must be tackled head on. We explore some of the challenges and opportunities in optimizing data integration to accelerate breast cancer discovery and improve patient outcomes. Susan G. Komen convened three meetings (2015, 2017, and 2018) with various stakeholders to discuss challenges, opportunities, and next steps to enhance the use of big data in the field of breast cancer. Meeting participants agreed that big data approaches can enhance the identification of better therapies, improve outcomes, reduce disparities, and optimize precision medicine. One challenge is that databases must be shared, linked with each other, standardized, and interoperable. Patients want to be active participants in research and their own care, and to control how their data are used. Many patients have privacy concerns and do not understand how sharing their data can help to effectively drive discovery. Public education is essential, and breast cancer researchers who are skilled in using and analyzing big data are needed. Patient advocacy groups can play multiple roles to help maximize and leverage big data to better serve patients. Komen is committed to educating patients on big data issues, encouraging data sharing by all stakeholders, assisting in training the next generation of data science breast cancer researchers, and funding research projects that will use real-life data in real time to revolutionize the way breast cancer is understood and treated.

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The 21st Century Cures Act and electronic health records one year later: will patients see the benefits?

Cited by 42 publications

References 0 publications

The complex case of EHRs: examining the factors impacting the EHR user experience

The complex case of EHRs: examining the factors impacting the EHR user experience

Improving Oral–Systemic Healthcare through the Interoperability of Electronic Medical and Dental Records: An Exploratory Study

Susan G. Komen Big Data for Breast Cancer Initiative: How Patient Advocacy Organizations Can Facilitate Using Big Data to Improve Patient Outcomes

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