“That same stigma...that same hatred and negativity:” a qualitative study to understand stigma and medical mistrust experienced by people living with HIV diagnosed with COVID-19

Hall, André; Joseph, Olivier L.; Devlin, Samantha; Kerman, Jared; Schmitt, Jessica; Ridgway, Jessica P; McNulty, Moira

doi:10.1186/s12879-021-06693-5

Cited by 25 publications

(26 citation statements)

References 30 publications

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“…Participants discussed how the COVID-19 pandemic influenced their ability and willingness to receive HIV care. Consistent with previous work [ 18 , 21 , 22 , 23 , 43 ], participants discussed how fears of infection and social distancing guidelines necessitated missed appointments and hindered medication adherence. In an effort to adhere to public health social distancing guidelines during the pandemic, Ryan White Programs encouraged the use of telehealth to allow PLH to receive their medical care without having to travel to clinics [ 44 ].…”

Section: Discussionmentioning

confidence: 60%

Socio-Structural Factors and HIV Care Engagement among People Living with HIV during the COVID-19 Pandemic: A Qualitative Study in the United States

et al. 2022

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Achieving HIV prevention goals will require successful engagement in each stage of the HIV continuum. The present study sought to understand the ways in which socio-structural factors influence HIV care engagement among people living with HIV (PLH) within the context of the ongoing COVID-19 pandemic. Twenty-five PLH were recruited from January to October 2021. Semi-structured interviews discussed various socio-contextual factors that influenced engagement in HIV-related care as a result of the pandemic. A thematic content analysis reported semantic level themes describing factors influencing HIV care following an integrated inductive–deductive approach. Qualitative analysis revealed three themes that either supported or hindered engagement in care within the context of the COVID-19 pandemic: (1) social determinants of health, (2) social support, and (3) modes of healthcare delivery. The results underscore the need to assess socio-structural factors of health as means to promote successful engagement in the HIV care continuum and shed new insights to guide future practice in the era of COVID-19.

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Section: Discussionmentioning

confidence: 60%

Socio-Structural Factors and HIV Care Engagement among People Living with HIV during the COVID-19 Pandemic: A Qualitative Study in the United States

et al. 2022

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“…If public authorities are the primary source of information about COVID-19, then trust in the authorities is critical to increase the willingness to obtain the vaccine. Populations that have a historical distrust in medical institutions due to previous medical abuse continue to report a lack of trust in vaccines (Budhwani et al 2021;Hall et al 2021;Jamison et al 2019). Bennett and colleagues highlight that receiving information from private medical professionals increases comfort to be vaccinated, however, all health care professionals do not feel competent in communicating with patients who are hesitant to be vaccinated which leaves public authorities to be the primary source of information that is viewed as credible (Paterson et al 2016;Shen and Dubey 2019).…”

Section: Willingness To Take the Covid-19 Vaccinementioning

confidence: 99%

Willingness to Take the COVID-19 Vaccine as Reported Nine Months after the Pandemic Outbreak: A Cross-National Study

et al. 2021

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Although vaccination has been identified as an effective measure of reducing the spread of COVID-19, hesitancy to obtain a vaccine for COVID-19 has been shared. The aim of this cross-national study was to examine (i) the willingness in the general population to take the COVID-19 vaccine nine months after the pandemic outbreak and (ii) the willingness to take the vaccine in relation to sociodemographic variables, whether one has experienced COVID-19 infection, concerns about health and family, and trust in the authorities’ information about the pandemic. A cross-sectional survey design was used to collect data online in Norway, the UK, the USA, and Australia. Chi-Square tests or Fisher’s Exact test were used to analyze the data. Logistic regression analysis was used to assess direct associations between the independent variables and the outcome. Within the total sample (n = 3474), living in a city, having a college education, being concerned about your own health and the health of next of kin, and trusting information provided by authorities increased the likelihood of reporting willingness to take the COVID-19 vaccine. Across all countries, participants who reported trust in the authorities’ information about COVID-19 demonstrated a significantly higher plausibility of taking the COVID-19 vaccine.

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“…The stigma associated with HIV is one reason why many people feel so fearful once they get a diagnosis (21). HIV infection has so many implications concerned with the people s' attitudes towards people living with the condition (22).…”

Section: Mastery Of Care and Hope Thementioning

confidence: 99%

Ageing with HIV: Challenges and coping mechanisms of older adults 50 years and above living with HIV in a less developed Country

Mbalinda

Lusota

Muddu

et al. 2022

Preprint

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Introduction: Globally, adults 50 years and older are an increasing proportion of persons living with HIV (PLHIV), accounting for 16% of the patient group globally. The long-term effects of antiretroviral use are still being discovered and have been associated with several comorbidities; Stigma presents challenges for those in need of services and health care and can significantly affect mental health and treatment adherence. Understanding the experiences and challenges of older PLHIV will inform the development of interventions to improve their care, health, and quality of life, which may help prevent the further spread of HIV. We explored the experiences and challenges of older PLHIV ages 50 years and above.Methods: We conducted 40 in-depth interviews with elderly PLHIV aged 50 years and above who had lived with HIV for more than ten years. We also explored experiences and challenges of ageing with HIV in two hospitals. We analysed the data thematically. Results: The key themes that emerged included; late diagnosis of HIV, depression and fear at the time of diagnosis, acceptance of close family, stigma from community, polypharmacy, development of comorbidities, financial burden, resilience, and mastery of own care. Conclusion: Older adults experience several challenges, and there is a need to develop special clinics providing appropriate care for the ageing and their social life. Prevention, Early diagnosis and appropriate treatment of HIV, and appropriate geriatric care are essential for the well-being of elderly PLHIV.

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“That same stigma...that same hatred and negativity:” a qualitative study to understand stigma and medical mistrust experienced by people living with HIV diagnosed with COVID-19

Cited by 25 publications

References 30 publications

Socio-Structural Factors and HIV Care Engagement among People Living with HIV during the COVID-19 Pandemic: A Qualitative Study in the United States

Socio-Structural Factors and HIV Care Engagement among People Living with HIV during the COVID-19 Pandemic: A Qualitative Study in the United States

Willingness to Take the COVID-19 Vaccine as Reported Nine Months after the Pandemic Outbreak: A Cross-National Study

Ageing with HIV: Challenges and coping mechanisms of older adults 50 years and above living with HIV in a less developed Country

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