Telephone monitoring and home visits significantly improved the quality of life, treatment adherence and lung function in children with cystic fibrosis

Chrysochoou, Elisavet‐Anna; Hatziagorou, Elpis; Kirvassilis, Fotios; Tsanakas, John

doi:10.1111/apa.13996

Cited by 10 publications

(32 citation statements)

References 3 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Although individuals with CF may still benefit from engaging in amounts of exercise less than recommended, the effects of intervention could be too small to be clinically relevant. A recent systematic review 28 indicated that technology could facilitate health care with simple messages and alerts that aid people with chronic diseases in adherence to treatment, which has also been demonstrated by experimental studies in individuals with CF 29,30 . Strategies associated with telerehabilitation, such as phone calls, text messaging and video communications, are low‐cost reasonable strategies that could help improve rates of adherence to exercises 31,32 …”

Section: Discussionmentioning

confidence: 98%

“…31,32 In addition, the results demonstrated that most demographic and clinical factors were not associated with adherence, which is in accordance with Dalcin et al 20 promote changes in self-awareness related to exercise practice, which could minimize the lack of interest, motivation, time, and tiredness. 29,30 Health education, provided by video animations and infographics, may inform about disease prognosis and benefits of exercises, which could minimize noncommitment and doubts regarding short-and long-term effects of exercises. 33 Health education, for instance, has proved to be effective for improving pain, disability, mental and physical health-related quality-of-life in individuals with chronic low back pain.…”

Section: Discussionmentioning

confidence: 99%

“…A recent systematic review 28 indicated that technology could facilitate health care with simple messages and alerts that aid people with chronic diseases in adherence to treatment, which has also been demonstrated by experimental studies in individuals with CF. 29,30 Strategies associated with telerehabilitation, such as phone calls, text messaging and video communications, are low-cost reasonable strategies that could help improve rates of adherence to exercises. 31,32 In addition, the results demonstrated that most demographic and clinical factors were not associated with adherence, which is in accordance with Dalcin et al 20 The main self-reported barriers for non-adherence to exercises were lack of interest, motivation and time, tiredness, noncommitment, and do not recognize the benefits of exercises.…”

Section: Discussionmentioning

confidence: 99%

“…On the other hand, many strategies could be implemented to encourage and motivate patients to overlap the cited barriers. Telerehabilitation may strengthen patients' motivation and promote changes in self‐awareness related to exercise practice, which could minimize the lack of interest, motivation, time, and tiredness 29,30 . Health education, provided by video animations and infographics, may inform about disease prognosis and benefits of exercises, which could minimize noncommitment and doubts regarding short‐ and long‐term effects of exercises 33 .…”

Section: Discussionmentioning

confidence: 99%

See 3 more Smart Citations

Adherence and barriers to general and respiratory exercises in cystic fibrosis

Santuzzi

Liberato

Morau

et al. 2020

Pediatric Pulmonology

View full text Add to dashboard Cite

Objectives To investigate the adherence and the self‐reported barriers to general and respiratory exercises reported by individuals with cystic fibrosis (CF). Study Design An exploratory, experimental study. Methods Community‐dwelling individuals aged 16 years and over, diagnosed with CF, who were accompanied in referral centers were included. Information regarding adherence to exercises was obtained by a questionnaire and reported as a ratio between prescribed exercises and self‐reported adherence. The weekly frequency was used to verify adherence to exercise initiation, and the amount of session duration concluded was used to verify adherence to exercise duration. Values above 0.70 were considered as high adherence. Eight demographic and clinical factors were examined to explore their relationships with adherence, and the barriers to exercises were also collected by questionnaire. Results Thirty‐four participants met the inclusion criteria. Overall, adherence to exercise initiation was 0.40 (standard deviation [SD] = 0.3) for general exercises and 0.63 (SD = 0.4) for respiratory exercises. Adherence to exercise duration was 0.76 (SD = 0.4) for general exercises and 0.73 (SD = 0.4) for respiratory exercises. Forced vital capacity (r = 0.39; P = .02) was associated with adherence to the duration of general exercises, and body mass index (r = −0.33; P = .05) was associated with adherence to the duration of respiratory exercises. The main reported barriers were lack of interest, motivation and time, tiredness, noncommitment, and do not recognize the benefits of exercises. Conclusions Individuals with CF minded completing the sessions of prescribed exercises once they have initiated it, but most of the days they did not practice general or respiratory exercises.

show abstract

Section: Discussionmentioning

confidence: 98%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

See 2 more Smart Citations

Adherence and barriers to general and respiratory exercises in cystic fibrosis

Santuzzi

Liberato

Morau

et al. 2020

Pediatric Pulmonology

View full text Add to dashboard Cite

show abstract

“…Where possible health care programs for CF should have appropriate facilities to deliver treatment in the person's home, particularly intravenous antibiotic therapy and additional treatments such as enteral feeding, oxygen therapy, and noninvasive ventilation. 42,43 A CF center should also maintain local and national registries recording key information about individual people's clinical condition and treatment, complications, and outcomes. This should also be used for patient care and quality improvement.…”

Section: Provision Of Care For Adults With Cystic Fibrosismentioning

confidence: 99%

Adult Care in Cystic Fibrosis

Elborn

2019

Semin Respir Crit Care Med

View full text Add to dashboard Cite

Cystic fibrosis (CF) is now more common in adults than children in countries with well-developed health care systems. The number of adults continues to increase and will further increase if the new cystic fibrosis transmembrane conductance regulator (CFTR) modulators are disease modifying. Most of the complex morbidity and almost all the mortality of CF occur in adults and will increasingly follow this pattern even with new effective modulator therapies. Maintaining good quality of life including social functioning and maximizing survival for adults are the key priorities. This requires a highly knowledgeable and adaptable multidisciplinary team, which, though focused on maintaining lung health, requires an increasing range of other disciplines and specialties to maximize well-being. Changes in health care systems will require current models of care to adapt to provide care for the large number of adult patients. With increasing survival and age, many are likely to have both CF morbidities and additional diseases of aging. New models are needed for health care delivery for this expanding population with complex medical conditions.

show abstract

Is mHealth a useful therapy for improving physical or emotional health in adolescents with cystic fibrosis? A systematic review

Valero‐Moreno

Lacomba‐Trejo²,

Montoya‐Castilla³

et al. 2021

Curr Psychol

View full text Add to dashboard Cite

Cystic fibrosis (CF) is a rare disease that severely compromises health and interferes with the lives of those who suffer from it and is especially challenging in adolescence. The use of tools such as MHealth may benefit the physical and psychological health of adolescents with CF. Therefore, this study aims to examine the benefits of MHealth in adolescents with CF through a systematic review. A search of the scientific literature following the PRISMA guidelines was conducted in the ProQuest Central, PubMed, Web Of Science, Embase and ínDICE databases, resulting in 186 studies, of which seven were selected (based on inclusion and exclusion criteria). Two blinded evaluators conducted the searches, the selection and data extraction process and the quality evaluation of the studies. The agreement between evaluators was excellent in all cases (Kappa ranged from .78 to .96). 214 pediatric CF patients (61.71% female) participated in the final analysis. The mean age was 12.76 years. The studies evaluated different types of mHealth tools, with greater homogeneity in the independent and dependent variables. The quality of the studies analyzed was poor, since these had small samples selected for convenience, conducted non-experimental and low-quality designs, recorded few variables, and their statistical analyses were not sufficiently robust. Further research is needed in this field, improving research designs and considering physical and psychological adjustment variables, as well as patients and family members in the process of health improvement.

show abstract

Telephone monitoring and home visits significantly improved the quality of life, treatment adherence and lung function in children with cystic fibrosis

Cited by 10 publications

References 3 publications

Adherence and barriers to general and respiratory exercises in cystic fibrosis

Adherence and barriers to general and respiratory exercises in cystic fibrosis

Adult Care in Cystic Fibrosis

Is mHealth a useful therapy for improving physical or emotional health in adolescents with cystic fibrosis? A systematic review

Contact Info

Product

Resources

About