Telemedicine: a Valuable Tool in Neurodegenerative Diseases

Adams, Jamie L.; Myers, Taylor; Waddell, Emma; Spear, Kelsey L.; Schneider, Ruth B.

doi:10.1007/s13670-020-00311-z

Cited by 40 publications

(38 citation statements)

References 69 publications

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“…Remote healthcare encounters in primary care focus on sharing biomedical information (9), are shorter than face-to-face consultations, but satisfactory for both patient and practitioner (10), and patients without cognitive impairment have been found to accurately recall the content of such consultations (11). For people living with dementia, trials of remote consultations using video technology showed this was a feasible approach to providing ongoing clinical care (12), however this was either precipitated by an in-person visit explaining the remote consultation or conducting other testing, or the provision of additional technology as well as coaching (13,14). However, digital exclusion among older populations is high compared to other age groups (15), especially those with a lower income and lower (eHealth) literacy levels (16,17).…”

Section: Introductionmentioning

confidence: 99%

Remote primary care consultations for people living with dementia during the COVID-19 pandemic: experiences of people living with dementia and their carers

et al. 2021

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Background: COVID-19 has accelerated remote healthcare provision in primary care, with changes potentially permanent. The implementation of remote provision of healthcare needs to hear from vulnerable populations, such as people living with dementia. Aim: To understand the remote healthcare experiences of patients living with dementia and their family carers during the COVID-19 pandemic. Design and setting: Qualitative interviews with community-based patients living with dementia and their carers during early months (May-August 2020) of the COVID-19 pandemic in England. Methods: Semi-structured interviews were conducted remotely by telephone or video call with 30 patients living with dementia and 31 carers. Data were analysed using thematic analysis. Results: Three main themes were derived relating to: 1) proactive care at the onset of COVID-19 restrictions, 2) avoidance of healthcare settings and services, and 3) difficulties with remote healthcare encounters. People living with dementia and their carers felt check-up calls were reassuring but limited in scope and content. Some avoided healthcare services, wishing to minimise COVID-19 risk, reduce NHS burden, or encountering technological barriers. Difficulties in remote consultations included lack of prompts to remember problems, dealing with new emerging problems, rescheduling/missed calls, and inclusion of the person with dementia’s voice. Conclusion: While remote consultations could be effective, pro-active calls could be more structured around needs, and consideration should be given to replace non-verbal prompts to describe problems, particularly for new health concerns. In continuing remote consultations, it is important to facilitate engagement with patients living with dementia and their carers to ensure best practice.

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Section: Introductionmentioning

confidence: 99%

Remote primary care consultations for people living with dementia during the COVID-19 pandemic: experiences of people living with dementia and their carers

et al. 2021

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“…Instead, a modified version of the MDS-UPDRS without rigidity and retropulsion pull testing is reliable and valid to use [ 23 ]. Advantages of telemedicine include access to specialists, convenience, time savings and cost reductions [ 24 ]. Nevertheless, there are still limitations to telemedicine.…”

Section: Discussionmentioning

confidence: 99%

“…Nevertheless, there are still limitations to telemedicine. In a recent online survey with 781 PD patients who participated in telemedicine, the main concerns were lack of hands-on care, lack of intimacy and technical difficulties [ 25 ] A consistent barrier in providing virtual care is poor internet connectivity and video quality issues, which is especially limiting in less developed countries [ 24 , 26 ]. To bypass this problem, asynchronous videos can be used to capture PD symptoms and sent to neurologists via email, which is more widely accessible [ 26 ].…”

Section: Discussionmentioning

confidence: 99%

“…In a review by Adams et al, several studies demonstrated that remote care of PD patients is feasible, effective, and valuable [24]. However, it is important to note the major limitations to these studies.…”

Section: The Transition To Virtual Pd Patient Carementioning

confidence: 99%

“…However, it is important to note the major limitations to these studies. The PD population may be underrepresented since participants had generally mild disease severity with UPDRS part III scores ranging from 24.2-44.1 (max score 128) and live in more developed countries like USA, Canada, Italy and Japan [24]. More severe patients with persistent tremor, rigidity and speech impairments may have a range of difficulties navigating telemedicine who were not represented in the studies.…”

Section: The Transition To Virtual Pd Patient Carementioning

confidence: 99%

See 2 more Smart Citations

Potential impact and challenges associated with Parkinson’s disease patient care amidst the COVID-19 global pandemic

Elbeddini

Tayefehchamani

et al. 2020

J Clin Mov Disord

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Background: COVID-19 has made itself known to health care providers and families across the world in a matter of months. While primarily a respiratory disorder, it has also been shown to cause neurological symptoms, which can be a concern for Parkinson's disease (PD) patients. Although PD is not as common as other conditions such as cardiovascular diseases, it affects millions of patients around the world whose care has been affected by the global pandemic. Objectives: The aim of this review is to provide insight into the direct and indirect associations between COVID-19 and PD patient care. Results: Potential direct effects of COVID-19 include possible neurodegeneration, concerns of symptom selfmanagement with over-the-counter (OTC) products and ICU challenges that can arise in PD patients. In addition, a subset of PD patients may be at higher risk of severe COVID-19 infection. The indirect effects of the pandemic are associated with the social distancing measures and disruptions in health care systems and PD clinical trials, which may negatively affect PD patients' mental wellbeing and create barriers in controlling their PD symptoms. On a more positive note, telemedical care is quickly emerging as a primary communication tool for virtual patient care. However, further research should be conducted to examine the applicability of telemedicine across the entire PD population, such as those with more severe symptoms living in less developed areas. With all the uncertainty during this time, it is hopeful to hear many promising COVID-19 treatments being researched, one of them being a PD drug therapy, amantadine. Conclusion: Hopefully, we can consider this pandemic an opportunity to strengthen the PD community and learn more about the impact of the SARS-COV-2 virus. This review provides an overview of the interaction between COVID-19 and PD patients and future investigational retrospective studies are suggested to validate the observations.

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Feasibility and Safety of Telerehabilitation for Physiotherapy Interventions in Movement Disorders Patients

Caniça¹,

Bouça‐Machado²,

Ferreira³

2021

Movement Disord Clin Pract

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Telemedicine: a Valuable Tool in Neurodegenerative Diseases

Cited by 40 publications

References 69 publications

Remote primary care consultations for people living with dementia during the COVID-19 pandemic: experiences of people living with dementia and their carers

Remote primary care consultations for people living with dementia during the COVID-19 pandemic: experiences of people living with dementia and their carers

Potential impact and challenges associated with Parkinson’s disease patient care amidst the COVID-19 global pandemic

Feasibility and Safety of Telerehabilitation for Physiotherapy Interventions in Movement Disorders Patients

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