Team approach versus ad hoc health services for young people with physical disabilities: a retrospective cohort study

Bent, Nuala; Tennant, Alan; Swift, Teresa; Posnett, John; Scuffham, Paul Anthony; Chamberlain, M A

doi:10.1016/s0140-6736(02)11316-x

Cited by 109 publications

(66 citation statements)

References 17 publications

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“…The potential availability of such a team will vary according to country and facilities resourced. Option 2 Adult renal centres could establish youngadult clinics that would incorporate both patients transferred from paediatric care and adolescents and young adults (aged <24) who may have presented with CKD 4-5 directly to the adult renal unit (D) [22]. A recent survey of US internists found that many felt the need for better training in congenital and childhood-onset conditions, and expressed concerns about psychosocial and financial issues [23].…”

Section: Continuity Of Carementioning

confidence: 99%

Transition from pediatric to adult renal services: a consensus statement by the International Society of Nephrology (ISN) and the International Pediatric Nephrology Association (IPNA)

et al. 2011

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Section: Continuity Of Carementioning

confidence: 99%

Transition from pediatric to adult renal services: a consensus statement by the International Society of Nephrology (ISN) and the International Pediatric Nephrology Association (IPNA)

et al. 2011

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“…34,35,58,63 However, rigorous evaluation of multidisciplinary transition programs is needed. Ideal designs would evaluate participants before, during, and after the transition period.…”

Section: Discussionmentioning

confidence: 99%

“…The study identified increased costs associated with the transition period but did not find that an organized transition program was more resource-intensive than ad hoc services. 35 With future transition research, researchers should attempt to report the costs associated with transition implementation and service. This information can then be compared with the costs of unsuccessful transition in this patient population.…”

Section: Discussionmentioning

confidence: 99%

“…36,41 The remainder studied a variety of conditions including congenital adrenal hyperplasia, 21 HIV, 24 epilepsy, 25 juvenile idiopathic arthritis, 38 spina bifida, 42 cystic fibrosis, 37 or inflammatory bowel disease 43 or included a patient population comprising .1 chronic disease. 20,35,44 Twelve studies were conducted in Europe: 8 in the United Kingdom, 21,22,29,32,35,36,39,50 1 in Germany, 33 1 in Spain, 40 and 2 in 26 One study included data from the United Kingdom and Australia. 24 Few studies used a concurrent comparison group.…”

Section: Patients and Conditions Represented In Evaluation Studiesmentioning

confidence: 99%

“…Three studies included patients with a variety of conditions, 20,35,44 and 2 studies focused on sickle cell disease 36,41 ; the remainder of the studies had 1 clinical focus. 21,24,25,37,38,42,43 The transition care programs evaluated in these studies included use of a transition coordinator, 37,38 multidisciplinary teams to provide care jointly, 24,35,37,41,43 and a separate young adult clinic. 21 One transition intervention provided direct scheduling of visits, 36 one was a mentoring group that met over 10 months, 20 and the other used a generic 2-month intensive Internet-and text-messagebased intervention followed by a 6-month review period.…”

Section: Solid Organ Transplantmentioning

confidence: 99%

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Transition Care for Children With Special Health Care Needs

et al. 2014

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WHAT'S KNOWN ON THIS SUBJECT: More children with special health care needs are surviving to adulthood and entering the adult health care system. Effective transition of care can promote continuity of developmental and age-appropriate care for these individuals. WHAT THIS STUDY ADDS:Existing studies provide modest transition care support. Methods for providing transition care warrant attention, and future research needs are wide ranging. Consistent and accepted measures of transition success are critical to establishing an adequate body of literature to affect practice. abstractBACKGROUND: Approximately 750 000 children in the United States with special health care needs will transition from pediatric to adult care annually. Fewer than half receive adequate transition care. METHODS:We had conversations with key informants representing clinicians who provide transition care, pediatric and adult providers of services for individuals with special health care needs, policy experts, and researchers; searched online sources for information about currently available programs and resources; and conducted a literature search to identify research on the effectiveness of transition programs. RESULTS:We identified 25 studies evaluating transition care programs. Most (n = 8) were conducted in populations with diabetes, with a smaller literature (n = 5) on transplant patients. We identified an additional 12 studies on a range of conditions, with no more than 2 studies on the same condition. Common components of care included use of a transition coordinator, a special clinic for young adults in transition, and provision of educational materials. CONCLUSIONS:The issue of how to provide transition care for children with special health care needs warrants further attention. Research needs are wide ranging, including both substantive and methodologic concerns. Although there is widespread agreement on the need for adequate transition programs, there is no accepted way to measure transition success. It will be essential to establish consistent goals to build an adequate body of literature to affect practice.

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