Talking via the Child

Abstract

This is an accepted version of a paper published in Journal of Family Nursing. This paper has been peer-reviewed but does not include the final publisher proof-corrections or journal pagination.Citation for the published paper: Ringnér, A., Öster, I., Björk, M., Graneheim, U. (2013 AbstractThe aim of this study was to describe discursively constructed interactions between parents and health care professionals (HCPs) at a pediatric oncology ward. Field notes from 70 focused participant observations and 16 informal interviews with 25 HCPs interacting with 25 parents of children with cancer were analyzed using discursive psychology. Six dominant interpretative repertoires (flexible parts of discourses used in everyday interaction.) were found. Repertoires used by the HCPs were child-, parent-, or family-oriented, mirroring the primary focus of the interaction. Parents used a spokesperson repertoire to use their own expertise to talk on behalf of the child; an observer repertoire, in which they kept in the background and interfered only when needed; or a family member repertoire to position

Concept Analysis of Family-Centered Care in Childhood Cancer: An Evolutionary Approach

“…Upon full-text reading of the remaining articles, three additional articles were discarded as FCC in childhood cancer was not central to the article. A total of 27 articles were included in the final sample, 10 of which were specific to the field of nursing (Branowicki et al, 2016;Davis et al, 2017;Gil et al, 2016;Jestico & Finlay, 2017;Long et al, 2015;Lyu et al, 2019;Popp et al, 2015;Pyke-Grimm et al, 2019;Ringnér et al, 2013;Toruner & Altay, 2018).…”

“…During the initial stages of data collection several surrogate terms, defined by Rodgers (2000) as other words or phrases that are often used to describe the concept, were identified. The phrases family-based care (Toruner & Altay, 2018) and family-oriented care (Ringnér et al, 2013) were used interchangeably with the term family-centered care. Additionally, the phrases pediatric oncology (Davis et al, 2017;Garcia et al, 2017;Gerhardt et al, 2015;Gil et al, 2016;Pyke-Grimm et al, 2019;Ringnér et al, 2013;Salvador et al, 2020;Sisk et al, 2021) and pediatric cancer (Barrera et al, 2016;Branowicki et al, 2016;Crespo et al, 2016;Salvador et al, 2019Salvador et al, , 2020 were used frequently as substitute terms for childhood cancer.…”

“…Ripple Effect. Healthcare providers' recognition of the ripple effect a diagnosis of childhood cancer has on the family was distinct in most of the articles reviewed in the current concept analysis (Barrera et al, 2016;Crespo et al, 2016;Garcia et al, 2017;Gerhardt et al, 2015;Jestico & Finlay, 2017;Livingston et al, 2020;Long et al, 2015;Popp et al, 2015;Ringnér et al, 2013;Salvador et al, 2019Salvador et al, , 2020Toruner & Altay, 2018;van Bindsbergen et al, 2021;Wakefield et al, 2012;White et al, 2017). The ripple effect was garnered by families' experiences of uncertainty (Branowicki et al, 2016;Crespo et al, 2016;Salvador et al, 2020;Wakefield et al, 2012) related to their child receiving a life-threatening medical diagnosis, patient outcomes, and impact on family functioning.…”

“…For example, Salvador et al (2020) describe emotional reactions and confusing medical information compounded with uncertainty about the child's future as part of the complexity of pediatric cancer. Crespo et al (2016), Salvador et al (2019), Popp et al (2015), Salvador et al (2020), andRingnér et al (2013) spoke to the immense challenges parents specifically face when their child receives a cancer diagnosis. Specifically, parents question their self-efficacy (Salvador et al, 2019), experience caregiver burden (Crespo et al, 2016), and struggle with decision-making regarding their child's care (Salvador et al, 2020).…”

“…Many authors integrated health care providers' knowledge and understanding of families' psychosocial and emotional needs as integral to helping families maintain functioning (Barrera et al, 2016;Long et al, 2015;Lyu et al, 2019;McCarthy et al, 2018;Ringnér et al, 2013;White et al, 2017;Yu et al, 2014). Yu and colleagues reported that a family-centered nursing care model that included psychological and social interventions to have improved the quality of life of children with brain tumors (2014).…”