Taiwanese Fathers’ Experiences of Having Their Child Diagnosed With a Developmental Disability

Huang, Ying-Wen; John, Winsome St; Tsai, Sen-Wei; Chen, Hsiu-Jung

doi:10.1097/jnr.0b013e3182389e34

Cited by 5 publications

(19 citation statements)

References 32 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The emotional downturn of loss, grief and shock is a finding congruent with other studies of fathers who had also been preparing for the birth of a typically developing child which did not come to fruition (Boström & Broberg, ; Fernandez‐Alcántara et al., ; Goff et al., ; Huang, St John, Tsai, & Chen, ; Takataya et al., ; Torquato et al., ).…”

Section: Discussionsupporting

confidence: 80%

“…This Irish study extends the knowledge of fathers’ experiences within the context of leading up to the diagnosis and the actual diagnosis of a child’s intellectual disability. Regardless of the timing of the diagnosis, all fathers experienced an emotional downturn, a view supported throughout the literature (Bourke et al., ; Davys et al., ; Huang et al., ; Takataya et al., ; Waite‐Jones & Madill, ). While fathers are affected by the diagnosis of a child’s intellectual disability, healthcare professionals must recognise and respond to their distinct and individual needs at this critical diagnostic period.…”

Section: Discussionmentioning

confidence: 68%

See 1 more Smart Citation

“Something was wrong”: A narrative inquiry of becoming a father of a child with an intellectual disability in Ireland

Marsh

Warren

Savage

2018

Brit J Learn Disabil

View full text Add to dashboard Cite

Accessible summary Ten fathers were asked to tell their story of being told that their child was diagnosed with an intellectual disability. They said that initially they were shocked, disappointed, in denial and blamed themselves when the diagnosis was certain. All fathers remembered when they were told and by whom they were told about their child’s diagnosis. Becoming a father was a reason to be happy. Abstract BackgroundIn recent years, there has been a growth of research on men’s experiences of becoming fathers, most of which relates to a typically developing child without intellectual disabilities. While some studies have specifically explored the experiences of becoming a father of a child with an intellectual disability, there are few studies from an Irish context. AimThe aim of this study was to present Irish fathers’ narratives within the context of leading up to the diagnosis and the actual diagnosis of a child’s intellectual disability. MethodA qualitative narrative inquiry design was used with ten fathers aged 31–48 years through semi‐structured interviews. ResultsThis study is part of a larger study focusing on becoming a father of a child with an intellectual disability in Ireland. The findings related to finding out “something was wrong” with the child are presented. ConclusionFathers are emotionally affected by the diagnosis of a child’s intellectual disability. Therefore, healthcare professionals need to be cognisant of the emotional upheaval that such a diagnosis can have on fathers and be sensitive to their needs in supporting them through this process.

show abstract

Section: Discussionsupporting

confidence: 80%

Section: Discussionmentioning

confidence: 68%

“Something was wrong”: A narrative inquiry of becoming a father of a child with an intellectual disability in Ireland

Marsh

Warren

Savage

2018

Brit J Learn Disabil

View full text Add to dashboard Cite

show abstract

“…This directness was also favoured by many Japanese fathers who received the diagnosis of Down syndrome following their child's birth (Takataya et al, 2016). For others, the provision of a diagnosis in later months or years by healthcare professionals was found to be at times, almost insensitive and blunt (Huang et al, 2011), a finding resonating across this and other studies in which parents were dissatisfied with healthcare professionals' disclosure of a child's disability (Close, Sadler, & Grey, 2016;Coons, Watson, Schinke, & Yantzi, 2016;Crane, Chester, Goddard, Henry, & Hill, 2016;Nelson Goff et al, 2013).…”

Section: Discussionmentioning

confidence: 59%

“…Becoming a father is often life changing and a significant personal milestone (Gage & Kirk, 2016;Yarwood, 2011) in which a man's status changes from that of son, brother, uncle, partner or husband to that of father (Chin, Hall, & Daiches, 2011). The transition to fatherhood brings a mix of excitement and apprehension and for many is rewarding (Huang, St, Tsai, & Chen, 2011). Despite policy developments over the past 50 years, a meta-ethnographic analysis of 62 research studies found that fathers are not yet fully accepted and supported to fulfil parental roles (Wells, 2016).…”

Section: Introductionmentioning

confidence: 99%

The views and experiences of fathers regarding their young child’s intellectual and developmental disability diagnosis: Findings from a qualitative study

Marsh¹,

Brown²,

McCann

2020

Journal of Clinical Nursing

View full text Add to dashboard Cite

Aims and objectives To report the views and experiences of fathers following their child's diagnosis of an intellectual and developmental disability (IDD). Background There is a growing interest in understanding the experiences of fathers of children with IDD given the transformation of the structural change of fathers’ roles within the family and wider society. Design A qualitative design was used to elicit the view and experiences of fathers. Methods A total of ten Irish fathers participated in face‐to‐face interviews. The data were thematically analysed. The COREQ guidelines for reporting qualitative studies were used in the development of this paper. Results The key themes that emerged were (a) the confirmation of the child's diagnosis (b) the impact of the diagnosis and (c) father's motivation to participate in disability research. Conclusions This study informs and develops a further understanding of the international evidence base of fathers receiving a confirmation of a child's diagnosis of an intellectual and developmental disability, the impact of the diagnosis on fathers and their motivation to share their stories to add to the disability research. Health and social care practitioners have important contributions to make in meeting the needs of fathers. There are specific areas to consider in terms of practice, education and research that require further attention and development to ensure fathers’ distinct needs regarding their child's diagnosis of IDD are known and responded to effectively. Relevance to clinical practice This study highlights that when the child's disability is confirmed, fathers experience a diverse range of mixed emotions. Health and social care practitioners including nurses need to be aware of the impact of the diagnosis upon fathers. There is scope to develop the knowledge, skills and confidence of health and social care practitioners regarding the experiences of fathers and how they can further support fathers and their families during the critical time of a disability disclosure.

show abstract

“…Relevant resources could also be useful for promoting the mental well-being of the caregivers. The critical period just before and after confirmation of the child's condition is when the parents often experience a high level of insecurity and anxiety due to the lack of relevant information and medical knowledge [14,15]. Parents given access to the relevant information would become less despondent as they would have a better understanding of this medical condition and could learn about strategies to overcome the types of obstacles that are likely to occur [16].…”

Section: Introductionmentioning

confidence: 99%

The Importance of Online Resources for Parents of Children with Special Needs in Hong Kong: South China?s Experience

Wong¹,

Li²,

Fu³

et al. 2015

J Health Med Informat

View full text Add to dashboard Cite

Background: Caring for children with special needs can be challenging and stressful for parents. Access to information and support is critical for parents to overcome these challenges. This study aims to study parental experiences and needs of searching and utilizing online information to support the care of their children with special needs. Methods: Forty-nine participants were interviewed. All discussions were transcribed and examined using a thematic analysis method. Results: Three main themes were identified, including information needs, experiences of obtaining and using information, and the advantages and challenges of searching and utilizing Internet information. Conclusions: Availability of up-to-date information and emotional support is beneficial to Chinese parents of children with special needs. Although plenty of information can be accessed through the Internet, parents require eHealth literacy to use and interpret this online material. Conventional sources of information such as community groups remain important for those with low eHealth literacy.

show abstract

Taiwanese Fathers’ Experiences of Having Their Child Diagnosed With a Developmental Disability

Cited by 5 publications

References 32 publications

“Something was wrong”: A narrative inquiry of becoming a father of a child with an intellectual disability in Ireland

“Something was wrong”: A narrative inquiry of becoming a father of a child with an intellectual disability in Ireland

The views and experiences of fathers regarding their young child’s intellectual and developmental disability diagnosis: Findings from a qualitative study

The Importance of Online Resources for Parents of Children with Special Needs in Hong Kong: South China?s Experience

Contact Info

Product

Resources

About