Systematic review of rheumatoid arthritis patient education

Riemsma, R.P.; Taal, Erik; Kirwan, John R.; Rasker, Johannes J.

doi:10.1002/art.20823

Cited by 128 publications

(96 citation statements)

References 83 publications

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“…Three types of patient education may be considered: information only, counselling and behavioural treatment [24,25]. In daily practice, patient education will often be part of a treatment programme and seldom be used as single intervention [8].…”

Section: Patient Education: Definition Educational Interventions Andmentioning

confidence: 99%

“…It is necessary to educate patients on the nature of the outcomes and the benefits and risks of the procedures to involve them in the decision-making process and enable them to achieve fully informed consent [10]. Educational programmes should give people the strategies and tools necessary to make daily decisions to cope with the disease [24,25]. Due to poor or outdated information available, patients and the general public hold many misconceptions [10].…”

Section: Patient Education: Definition Educational Interventions Andmentioning

confidence: 99%

“…From the available literature, the effectiveness of educational interventions and the clinical relevance of the benefits are still unclear [20,24,25]. Patient education has two major drawbacks: Firstly, its statistically significant benefits are modest.…”

Section: Patient Education: Effectiveness and Clinical Relevancementioning

confidence: 99%

“…However, more recent studies raise doubts on the achievement of meaningful benefits in certain areas of medicine and suggest that future research should be disease specific [25]. The effectiveness of the interventions depends upon the context in which treatment decisions are made and the nature of available options.…”

Section: Patient Education: Effectiveness and Clinical Relevancementioning

confidence: 99%

“…A recent meta-analysis shows that good-quality information has a positive effect in cancer patients [11]. A systematic review of rheumatoid arthritis patient education found a small beneficial effect of patient education at the first follow-up, but failed to show long-term benefit from patient education interventions [25]. In cardiovascular disease, participation in education programmes has been shown to result in improved clinical outcomes, including statistically significant reduction in the 10-year cardiovascular disease risk as well as actual cardiovascular disease events in the long term [17].…”

Section: Patient Education: Effectiveness and Clinical Relevancementioning

confidence: 99%

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Patient information and education with modern media: the Spine Society of Europe Patient Line

Pellisé¹,

Sell

2009

Eur Spine J

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The role of the patient as an active partner in health care, and not just a passive object of diagnostic testing and medical treatment, is widely accepted. Providing information to patients is considered a crucial issue and the central focus in patient educational activities. It is necessary to educate patients on the nature of the outcomes and the benefits and risks of the procedures to involve them in the decision-making process and enable them to achieve fully informed consent. Information materials must contain scientifically reliable information and be presented in a form that is acceptable and useful to patients. Given the mismatch between public beliefs and current evidence, strategies for changing the public perceptions are required. Traditional patient education programmes have to face the potential barriers of storage, access problems and the need to keep content materials up to date. A computer-based resource provides many advantages, including ''just-intime'' availability and a private learning environment. The use of the Internet for patient information needs will continue to expand as Internet access becomes readily available. However, the problem is no longer in finding information, but in assessing the credibility and validity of it. Health Web sites should provide health information that is secure and trustworthy. The large majority of the Web sites providing information related to spinal disorders are of limited and poor quality. Patient Line (PL), a patient information section in the Web site of Eurospine, was born in 2005 to offer patients and the general population the accumulated expertise represented by the members of the society and provide up-to-date information related to spinal disorders. In areas where evidence is scarce, Patient Line provides a real-time opinion of the EuroSpine membership. The published data reflect the pragmatic and the common sense range of treatments offered by the Eurospine membership. The first chapters have been dedicated to sciatica, scoliosis, cervical pain syndromes, low back pain and motion preservation surgery. Since 2008, the information has been available in English, German, French and Spanish. The goal is for Patient Line to become THE European patient information Web site on spinal disorders, providing reliable and updated best practice and evidence-based information where the evidence exists.

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Section: Patient Education: Definition Educational Interventions Andmentioning

confidence: 99%

Section: Patient Education: Definition Educational Interventions Andmentioning

confidence: 99%

Section: Patient Education: Effectiveness and Clinical Relevancementioning

confidence: 99%

Section: Patient Education: Effectiveness and Clinical Relevancementioning

confidence: 99%

Section: Patient Education: Effectiveness and Clinical Relevancementioning

confidence: 99%

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Patient information and education with modern media: the Spine Society of Europe Patient Line

Pellisé¹,

Sell

2009

Eur Spine J

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Stress and Resilience in Women With Rheumatic Disease

Danoff‐Burg

2013

Women's Health Psychology

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Health care provision for osteoarthritis: Concordance between what patients would like and what health professionals think they should have

Mann¹,

Gooberman-Hill²

2011

Arthritis Care Res

124

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Objective. To explore the opinions of patients and health professionals about the provision of health care for people with osteoarthritis (OA) and possible service improvements. Methods. Qualitative methods were used to explore the opinions of patients and health professionals about existing OA care and possible changes in service provision. Sixteen patients with hip or knee OA took part in focus groups, and 12 health professionals from primary and secondary care were interviewed. Focus groups and interviews were audiorecorded, transcribed, and anonymized. Transcripts were analyzed using the Framework method. Results. The views of the patients and health professionals generally concurred. They felt that OA should receive more attention and better consistency of care. More information and education about the condition, diet, exercise, aids, and resources was needed at the time of diagnosis. Patients wanted more time, better continuity, and proactive followup from general practitioners, with less variation in accessing joint replacement. Participants suggested access on demand to an "OA specialist" in primary care and the use of a management model comparable to other long-term conditions. Both patients and health professionals wanted better support for self-management to help patients manage their condition more effectively and appropriately. Conclusion. Patients and health professionals perceived similar problems with OA care. More proactive care and improved information, especially for those with early OA, might achieve better outcomes. Access to a primary care OA specialist might provide better continuity of care, enable patients to meet their needs for information, support, and self-management, as well as improve appropriate referral to other resources.

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Systematic review of rheumatoid arthritis patient education

Cited by 128 publications

References 83 publications

Patient information and education with modern media: the Spine Society of Europe Patient Line

Patient information and education with modern media: the Spine Society of Europe Patient Line

Stress and Resilience in Women With Rheumatic Disease

Health care provision for osteoarthritis: Concordance between what patients would like and what health professionals think they should have

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