Systematic Review of Interventions Aiming to Improve Involvement in Physical Activity Among Adults With Intellectual Disability

Brooker, Katie; Dooren, Kate van; McPherson, Lyn; Lennox, Nick; Ware, Robert S.

doi:10.1123/jpah.2013-0014

Cited by 41 publications

(34 citation statements)

References 24 publications

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“…In line with previous systematic reviews in this area, [153][154][155] findings from this systematic review demonstrate a lack of quality evidence on the effectiveness of multicomponent behaviour change interventions in people with ID. In 2010, Jinks et al 153 focused a systematic review on qualitative studies of behavioural change approaches in people with ID to aid weight loss and health.…”

Section: Findings In Relation To Other Studiesmentioning

confidence: 63%

“…They noted that many of the interventions did not meet the recommended duration in clinical guidelines and were too specific. Brooker et al 155 also reviewed interventions with a primary focus on physical activity in people with ID. Again, the review noted small sample sizes and invalid measurement tools, and recommended further longer-term intervention studies.…”

Section: Findings In Relation To Other Studiesmentioning

confidence: 99%

“…However, there is a lack of quality evidence on the health and health care of people with ID, including the effectiveness of health interventions. 152 Previous systematic reviews of lifestyle behaviour change interventions in ID [153][154][155] have generally been unable to make specific recommendations because of inadequacies in study design and conduct, a lack of theory basis for intervention and/or unclear reporting.…”

Section: Rationalementioning

confidence: 99%

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Screening for glucose intolerance and development of a lifestyle education programme for prevention of type 2 diabetes in a population with intellectual disabilities: the STOP Diabetes research project

Dunkley

Tyrer

Spong

et al. 2017

Programme Grants Appl Res

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BackgroundThe prevalence of type 2 diabetes mellitus (T2DM) and of cardiovascular disease (CVD) is believed to be higher among people with intellectual disability (ID) than in the general population. However, research on prevalence and prevention in this population is limited.ObjectivesThe objectives of this programme of work were to establish a programme of research that would significantly enhance the knowledge and understanding of impaired glucose regulation (IGR) and T2DM in people with ID; to test strategies for the early identification of IGR and T2DM in people with ID; and to develop a lifestyle education programme and educator training protocol to promote behaviour change in a population with ID and IGR (or at a high risk of T2DM/CVD).SettingLeicestershire, UK.ParticipantsAdults with ID were recruited from community settings, including residential homes and family homes. Adults with mild to moderate ID who had an elevated body mass index (BMI) of ≥ 25 kg/m2and/or IGR were invited to take part in the education programme.Main outcome measuresThe primary outcome of the screening programme was the prevalence of screen-detected T2DM and IGR. The uptake, feasibility and acceptability of the intervention were assessed.Data sourcesParticipants were recruited from general practices, specialist ID services and clinics, and through direct contact.ResultsA total of 930 people with ID were recruited to the screening programme: 58% were male, 80% were white and 68% were overweight or obese. The mean age of participants was 43.3 years (standard deviation 14.2 years). Bloods were obtained for 675 participants (73%). The prevalence of previously undiagnosed T2DM was 1.3% [95% confidence interval (CI) 0.5% to 2%] and of IGR was 5% (95% CI 4% to 7%). Abnormal IGR was more common in those of non-white ethnicity; those with a first-degree family history of diabetes; those with increasing weight, waist circumference, BMI, diastolic blood pressure or triglycerides; and those with lower high-density lipoprotein cholesterol. We developed a lifestyle educational programme for people with ID, informed by findings from qualitative stakeholder interviews (health-care professionals,n = 14; people with ID,n = 7) and evidence reviews. Subsequently, 11 people with ID (and carers) participated in pilot education sessions (two groups) and five people attended education for the feasibility stage (one group). We found that it was feasible to collect primary outcome measures on physical activity and sedentary behaviour using wrist-worn accelerometers. We found that the programme was relatively costly, meaning that large changes in activity or diet (or a reduction in programme costs) would be necessary for the programme to be cost-effective. We also developed a quality development process for assessing intervention fidelity.LimitationsWe were able to screen only around 30% of the population and involved only a small number in the piloting and feasibility work.ConclusionsThe results from this programme of work have significantly enhanced the existing knowledge and understanding of T2DM and IGR in people with ID. We have developed a lifestyle education programme and educator training protocol to promote behaviour change in this population.Future workFurther work is needed to evaluate the STOP Diabetes intervention to identify cost-effective strategies for its implementation.Trial registrationClinicalTrials.gov NCT02513277.FundingThe National Institute for Health Research Programme Grants for Applied Research programme and will be published in full inHealth Research Programme Grants for Applied Research; Vol. 5, No. 11. See the NIHR Journals Library website for further project information.

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Section: Findings In Relation To Other Studiesmentioning

confidence: 63%

Section: Findings In Relation To Other Studiesmentioning

confidence: 99%

Section: Rationalementioning

confidence: 99%

See 1 more Smart Citation

Screening for glucose intolerance and development of a lifestyle education programme for prevention of type 2 diabetes in a population with intellectual disabilities: the STOP Diabetes research project

Dunkley

Tyrer

Spong

et al. 2017

Programme Grants Appl Res

View full text Add to dashboard Cite

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“…This risk is often increased by reduced physical activity during the person's lifetime and engaging in less activity compared with members of the general population. Although data gives only good hints to support that statement [5], there is evidence that most people with ID are not performing sufficient physical activity in everyday life according to the recommendation of the World Health Organisation [6]. A positive effect of physical activity on prevention and health preservation has been proven mainly in the diseases mentioned above [6].…”

Section: Introductionmentioning

confidence: 99%

Health literacy in people with intellectual disabilities: A mixed-method literature review

Geukes

Bruland

Latteck

2018

Kontakt

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People with intellectual disabilities are exposed to particular challenges within the healthcare system. In particular, elderly people with intellectual disabilities have special needs and require physical activity to prevent age-related diseases. Health Literacy could help people with intellectual disabilities to take participative healthrelated decisions. To be able to generate knowledge in this area, a literature search was carried out. For this the databases PubMed, Scopus, ERIC, CINAHL, PsycINFO, and Web of Science were searched. The research shows a research gap in the field of health literacy among people with intellectual disabilities. Nevertheless, three categories have been systematized: Barriers for people with intellectual disabilities, health literacy promotion for people with intellectual disabilities, and studies concerning the concept of health literacy for people with intellectual disabilities. The studies found emphasize the importance of a target group specific health literacy concept for people with intellectual disabilities and a need to involve health professionals and adequate communication. In addition, conceptualisation considerations should take into account the specific skills and social context factors of people with intellectual disabilities. Furthermore, the results show that there is an urgent need for a target group-specific definition and measuring instruments.

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“…This project focuses on users' perspectives and how people with IDs understand, appraise, and apply health information relating to physical activity in order to develop and implement strategies in daily life to promote physical activity (PA). While systematic reviews indicate that people with IDs show significantly lower levels of physical activity than the general population and often lead sedentary lifestyles [27,28], they are mostly unconsidered in concepts in relation to the promotion of PA [29]. By promoting PA, the risk of disease can be minimized, existing diseases can be managed better, and the course of a disease can be positively influenced [30,31].…”

Section: Introductionmentioning

confidence: 99%

Inclusion of People with Intellectual Disabilities in Health Literacy: Lessons Learned from Three Participative Projects for Future Initiatives

Latteck

Bruland

2020

IJERPH

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Background: People with intellectual disabilities (IDs) constitute a high-risk group in relation to several diseases. Promoting their health literacy (HL) could be highly beneficial in the management of health information and making informed decisions. However, there are varying ranges of cognitive, communication and literacy levels in people with IDs. According to our literature review, a HL concept for this target group has not been adequately conceptualized. Methods: To increase knowledge about the target group, adapted HL results from three innovative (research) projects are presented. Results: The key factors are: a) target group orientation; b) social context and everyday life; c) individual resources, like communication and literacy levels; d) a multi-modal strategy to strengthen HL; and e) the self-determination and participation of people with IDs. Conclusions: The projects illustrate that the HL of people with IDs has been successfully addressed by taking these key factors into account. A target-group-orientated HL concept could affect more than positive health outcomes; it could also empower a high-risk group in relation to health problems. However, to develop successful action concepts and strategies, valid data are crucial. The heterogeneity of people with IDs is one of the biggest challenges in obtaining such data. Future studies will need to face these challenges.

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Systematic Review of Interventions Aiming to Improve Involvement in Physical Activity Among Adults With Intellectual Disability

Cited by 41 publications

References 24 publications

Screening for glucose intolerance and development of a lifestyle education programme for prevention of type 2 diabetes in a population with intellectual disabilities: the STOP Diabetes research project

Screening for glucose intolerance and development of a lifestyle education programme for prevention of type 2 diabetes in a population with intellectual disabilities: the STOP Diabetes research project

Health literacy in people with intellectual disabilities: A mixed-method literature review

Inclusion of People with Intellectual Disabilities in Health Literacy: Lessons Learned from Three Participative Projects for Future Initiatives

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