Systematic Review of Family Functioning in Families of Children and Adolescents With Chronic Pain

Lewandowski, Amy S.; Palermo, Tonya M.; Stinson, Jennifer; Handley, Susannah; Chambers, Christine T.

doi:10.1016/j.jpain.2010.04.005

Cited by 276 publications

(258 citation statements)

References 36 publications

(91 reference statements)

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“…Although the moderating effect of family functioning on the link between headache intensity and distress has not been explored previously, a few studies in the context of chronic physical illness indicated that patients with more functional families showed lower levels of psychological problems compared to their counterparts with less functional families (Lewandowski, Palermo, Stinson, Handley, & Chambers, 2010;Logan & Scharff, 2005). These findings imply that functional families provide their members, specifically patients, with an opportunity to communicate their illness-related problems in a healthy, direct and clear way (Popp, Robinson, Britner, & Blank, 2014), and could therefore provide Table 1.…”

Section: Discussionmentioning

confidence: 99%

The buffering effect of family functioning on the psychological consequences of headache

Mohammadi

zandieh

Dehghani

et al. 2016

Psychology, Health & Medicine

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Section: Discussionmentioning

confidence: 99%

The buffering effect of family functioning on the psychological consequences of headache

Mohammadi

zandieh

Dehghani

et al. 2016

Psychology, Health & Medicine

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“…In particular, the use of coping strategies appears related to problem solving and communication skills, and to the general family functioning (Lewandowski et al, 2010); in contrast, low levels of negative thoughts seem to correlate with high scores on the communication domains, the emotional involvement, the definition of intra-family roles and the behavioral control (Pellerone, Craparo, & Tornabuoni, 2016).…”

Section: Problem Statementmentioning

confidence: 98%

Family functioning and disability: a study on Italian parents with disabled children

Iacolinoa¹,

Pellerone²,

Pacea³

et al. 2016

The European Proceedings of Social and Behavioural Sciences

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The family of disabled persons often goes through periods of instability and mismatch; the birth of disabled children may affect communication, problem solving, satisfaction and general family functioning. The present study aims to explore the perception that both parents of disabled children have of their family functioning, measuring: the dynamics of the familiar functioning; the perception that the parental couple has about parenting and family functioning; the similarities between fathers and mothers in the perception of these dimensions. The research involved 50 parent couples (age: M=50.84; S.D=7.23), who have 100 disabled children. They completed: Family Assessment Device (Epstein, Baldwin, & Bishop, 1983) to assess specific aspects of family functioning, such as problem solving, communication, roles, affective response and involvement, behavioral control and general functioning; Family Adaptability and Cohesion Evaluation Scales (Olson, 2011), to measure family adaptability and cohesion. The parents of disabled daughters showed significantly higher on following scales: cohesion, communication and satisfaction. In contrast, the parents who have male sons showed high scores in the scale of flexibility. Parents of children with autism reported higher scores than the parents of children with pervasive developmental disorders in the following scales: cohesion, communication and satisfaction. The results suggest that family functioning when there is a disabled child might be affected by child's gender and disability. Among the research limits there are the lack of a representative sample and the absence of a longitudinal study. In future studies, it is expected an evaluation of triadic family functioning to examine intergenerational differences in perception of family dynamics.

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“…For example, an early study in children with juvenile rheumatoid arthritis found that greater emotional distress of the mother was related to higher levels of child reported pain (Ross et al, 1993). Similarly, higher levels of parental psychological distress (Logan & Scharff, 2005) and less healthy family functioning (Lewandowski, Palermo, Stinson, Handley, & Chambers, 2010;Palermo, Putnam, Armstrong, & Daily, 2007) have been associated with greater pain-related disability in youth.In the most recent systematic review of the efficacy of psychological therapies for pediatric chronic pain (Fisher et al, in press), psychological treatment was found to be effective in reducing children's pain and disability; however, there was variability in the size of effects between pain conditions and positive benefits were not found for reduction in child depression or anxiety. These trials used a range of cognitive-behavioral intervention strategies (e.g., relaxation skills training, cognitive strategies, guided imagery, exposure and acceptance, and parent operant strategies).…”

mentioning

confidence: 99%

Adaptation of problem-solving skills training (PSST) for parent caregivers of youth with chronic pain.

Palermo

Law

Essner

et al. 2014

Clinical Practice in Pediatric Psychology

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Research on the experience of parents caring for a child with chronic pain indicates that high levels of parental role stress, feelings of frustration over an inability to help, and psychological distress are common. Moreover, parental distress adversely influences child adjustment to chronic pain. Therefore, intervening with parents of youth with chronic pain may, in turn, result in positive outcomes for children in their ability to engage in positive coping strategies, reduce their own distress, and to function competently in their normal daily lives. Our aim was to adapt an intervention, Problem-Solving Skills Training, previously proven effective in reducing parental distress in other pediatric illness conditions to the population of caregivers of youth with chronic pain. In the first phase, the intervention was adapted based on expert review of the literature and review of parent responses on a measure of pain-related family impact. In the second phase, the intervention was tested in a small group of parents to evaluate feasibility, determined by response to treatment content, ratings of acceptability, and ability to enroll and deliver the treatment visits. This phase included piloting the PSST intervention and all outcome measures at pre-treatment and immediately post-treatment. In an exploratory manner we examined change in parent distress and child physical function and depression from pre-to post-treatment. Findings from this feasibility study suggest that PSST can be implemented with parents of youth with chronic pain, and they find the treatment acceptable. Keywordspediatric chronic pain; parents; intervention; problem solving therapy; caregiver stress Conservative estimates suggest that at least 15% of children and adolescents report chronic pain during childhood, that is, pain lasting up to 3 months (Stanford, Chambers, Biesanz, & Chen, 2008). A subgroup (i.e., 5-10% of otherwise healthy youth) report severe pain associated with functional impairment (Huguet & Miro, 2008). The consequences of chronic pain extend beyond children themselves to potentially include widespread social, relational, Corresponding author: Tonya M. Palermo, Ph.D., Seattle Children's Research Institute, M/S CW8-6, PO Box 5371, Seattle, WA 98145, USA,, tonya.palermo@seattlechildrens.org. NIH Public Access Author ManuscriptClin Pract Pediatr Psychol. Author manuscript; available in PMC 2015 September 01. Published in final edited form as:Clin Pract Pediatr Psychol. 2014 September ; 2(3): 212-223. doi:10.1037/cpp0000067. NIH-PA Author ManuscriptNIH-PA Author Manuscript NIH-PA Author Manuscript emotional and financial impact on parents. In particular, parents report restrictions in their own lives, unwelcome dependency, marital and financial difficulties, and feelings of hopelessness (Hunfeld et al., 2002). In a clinical sample of youth with chronic pain, Eccleston, Crombez, Scotford, Clinch & Connell (2004) found that average levels of parental role stress were high, with 31% of parents reporting clinically significant di...

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Systematic Review of Family Functioning in Families of Children and Adolescents With Chronic Pain

Cited by 276 publications

References 36 publications

The buffering effect of family functioning on the psychological consequences of headache

The buffering effect of family functioning on the psychological consequences of headache

Family functioning and disability: a study on Italian parents with disabled children

Adaptation of problem-solving skills training (PSST) for parent caregivers of youth with chronic pain.

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