System‐Wide Information About Family Carers of Adults With Intellectual/Developmental Disabilities—A Scoping Review of the Literature

Lunsky, Yona; Tint, Ami; Robinson, Suzanne; Gordeyko, Marcia; Ouellette‐Kuntz, Hélène

doi:10.1111/jppi.12068

Cited by 41 publications

(39 citation statements)

References 82 publications

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“…Compared to children who only had ID, children with co-morbid ID and mental health problems accessed all types of services more frequently, potentially suggesting that complications arising from comorbid conditions are being addressed by increased service access in a UK context. This finding reinforces data from Canada showing that children with ID and challenging behaviour access the highest number of services (Lunsky et al, 2014). The higher frequency of specialist mental health service access in comorbid conditions compared to ID only groups suggests that contrary to a diagnostic overshadowing hypothesis, in practice clinicians are able to recognise psychological problems in children with ID.…”

Section: Discussionsupporting

confidence: 73%

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Access to services by children with intellectual disability and mental health problems: Population-based evidence from the UK

Toms

Totsika

Hastings

et al. 2015

Journal of Intellectual and Developmental Disability

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Section: Discussionsupporting

confidence: 73%

“…However, it is noteworthy that disability severity is not consistently associated with increased service use (Lunsky et al, 2014).…”

Section: Discussionmentioning

confidence: 93%

Access to services by children with intellectual disability and mental health problems: Population-based evidence from the UK

Toms

Totsika

Hastings

et al. 2015

Journal of Intellectual and Developmental Disability

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“…While the age of eligibility for benefits in Ontario is 18, not every eligible individual with IDD applies immediately after turning 18, and not every applicant with IDD meets the eligibility criteria. Others, as has been reported for other jurisdictions, may elect not to apply at all for a variety of personal, family, and other reasons (Lunsky, Tint, Robinson, Gordeyko, & Ouellette‐Kuntz, ). Another explanation is related to limitations in how the information was recorded.…”

Section: Discussionmentioning

confidence: 99%

Strengths and Limitations of Health and Disability Support Administrative Databases for Population‐Based Health Research in Intellectual and Developmental Disabilities

Lin

Balogh

Isaacs

et al. 2014

Policy Practice Intel Disabi

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Individuals with intellectual and developmental disabilities (IDD) experience high rates of social and health disadvantage. Planning effective services that meet the needs of this vulnerable population requires good population-based data that are collected on a routine, ongoing basis. However, in most jurisdictions, none of the commonly available data (e.g., health or disability benefits administrative data) completely captures the IDD population. To more accurately identify persons with IDD in a population, one solution is to link data across multiple sources. To do this, the authors report on an effort to create a linked database to identify a cohort of adults, aged 18-64, with IDD in Ontario and use these data to examine how the linkage can help study health and healthcare access. The linked dataset was created using four health and one disability income support databases. Standardized differences were used to compare sociodemographic and clinical characteristics of the IDD cohorts identified through the health, disability income support, and linked datasets. Indirect estimation was used to evaluate which IDD subgroups might be over-or underestimated if only a single source of data was available. The linked database identified a cohort of 66,484 adults with IDD (0.78% prevalence). The health and disability income support data each uniquely identified approximately a third of the cohort. Health data were more likely to identify younger adults (18-24 years), those with psychiatric illnesses, and hospitalized individuals. The disability income support data were more likely to identify adults aged 35-54 and those living in lower income neighborhoods. By linking multiple databases, the authors were able to identify a much larger cohort of individuals with IDD than if they had used a single data source. It also enabled the creation of a more accurate sociodemographic and clinical profile of this population as each source captured different segments of it.

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“…Educational and social welfare support for individuals varies considerably across the globe, but overall they tend to receive poorer support and suffer more challenging circumstances than many minority groups within society (World Health Organization, 2011). The recognition and impact on the family unit of a member having ID can be both positive and negative, but in circumstances where the family are already struggling this impact tends to be more negative (Lunsky, Tint, Robinson, Gordeyko, & Ouellette-Kuntz, 2014).Hence, the circumstances under which an individual is supported and given the opportunity within their family to participate in sport may not be the same as for others. It is clear that the trajectory for those with ID is likely to be more challenging and impoverished from those without and lack of exposure to positive learning experiences, especially during critical developmental periods will impact on later learning.…”

mentioning

confidence: 91%

Section: Sociologicalmentioning

confidence: 99%

The impact of intellectual disabilities on elite sports performance

Burns

2015

International Review of Sport and Exercise Psychology

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Athletes with intellectual disabilities (ID) were re-introduced into the Paralympics in London 2012. As part of this development a classification system had to be established evidencing the impact this impairment has on elite sports performance. This review examines the research behind this issue.Firstly it examines the limited literature comparing the standards reached by top-level athletes with ID with those without disabilities, and then moves on to look at the research demonstrating differences in both the cognitive and physical skills needed for elite performance. The paper then reviews the factors which may be implicated to account for this disparity, from a range of perspectives. A case is made for the importance of looking at this area in terms of the potential for the transferability of research findings from this group to talent identification in mainstream athletes and the benefits of integrating neuropsychological concepts and approaches to understanding the cognitive components behind the development of particular skills associated with high level performance in specific sports. Keywords: Intellectual disabilities, Paralympics, elite performance, cognitive functioning ContextThe place of sport and exercise in the lives of people with intellectual disabilities (ID) has attracted much research in recent years. Much of this has focused on sport and exercise as remedial or preventative activity to combat specific health issues such as obesity and poor physical health. Other research has looked more at the psychosocial impact of improving social networks (Hutzler & Korsensky, 2010) or psychological factors such as increasing self-esteem (Weiss, Diamond, Demark, & Lovald, 2003). However, leading up to and beyond the re-introduction of athletes with ID into the London Paralympics in 2012 there has been an increasing interest in the participation of these athletes in elite competition, and it is this work which will form the focus of this review. The ord Ol pi s a d people ith ID have a long association through the SpecialOlympics. The Special Olympics was originally set up in the US in the late 6 s with the aim to provide training and competition for children and adults with intellectual disabilities. These days it caters to 4.2 million people across the world and includes a programme of unified (disabled and nondisabled) sport. However, within the Special Olympics, although highly successful and bringing benefit to millions of people with ID and their families across the globe, the emphasis is more on participation, empowerment and opportunity than achieving elite performance (Specialolympics.org, 2015). This domain is the remit of another organisation, the International Federation for Para-athletes with Intellectual Disability (INAS). The vision of INAS is ….inspired y a elief that an intelle tual disa ility should not e a barrier to enjoying and being the best in sport. INAS ision is that athletes ith an intelle tualdisability across the World have the opportunity to achieve excellence in sport ...

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System‐Wide Information About Family Carers of Adults With Intellectual/Developmental Disabilities—A Scoping Review of the Literature

Cited by 41 publications

References 82 publications

Access to services by children with intellectual disability and mental health problems: Population-based evidence from the UK

Access to services by children with intellectual disability and mental health problems: Population-based evidence from the UK

Strengths and Limitations of Health and Disability Support Administrative Databases for Population‐Based Health Research in Intellectual and Developmental Disabilities

The impact of intellectual disabilities on elite sports performance

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