System Performance Indicators for Adolescent and Young Adult Cancer Care and Control: A Scoping Review

Rae, Charlene; Shah, Nishwa; Pauw, Sonja De; Costa, Andrew P.; Barr, Ronald D.

doi:10.1089/jayao.2019.0069

Cited by 6 publications

(3 citation statements)

References 44 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In order to extract an inventory of efficiency indicators, scoping review was firstly conducted, as it has been used in several studies to identify indicators in health system ( 28 , 29 ). The main keywords including “efficiency”, “performance”, “productivity” plus “Health system” and the various relevant sub-systems; Primary Health Care(PHC), medical & paramedical services such as hospital and etc., education and research) were searched in the databases of “Pub-Med”, “Scopus”, “Science direct” and “Web of Science” google scholar search engine, internal databases as “Magiran”, “Medlib”, “Irandoc”, “Iranmedex”, “ Scientific Information Database (SID)”, and World Health Organization website between 2000 and 2020.…”

Section: Methodsmentioning

confidence: 99%

Key Indicators for Monitoring the Efficiency of Iranian Health System: A Synthesized Design Study

Jaafaripooyan,

Daroudi,

Damiri

et al. 2024

ijph

View full text Add to dashboard Cite

Background: A significant share of medical care, primary health care, and health-related education and research in Iran is provided by the Ministry of Health and its affiliated universities of medical sciences. We aimed to identify a set of key metrics for monitoring their efficiency in the four areas of medical care, primary health care, education and research. Methods: A combination of scoping review, expert panel and Delphi method was used. First, the relevant keywords were searched in the appropriate databases between 2000 and 2020. The final extracted indicators then reviewed, reduced and refined through the expert panel meetings. The last metrics were established following a three-stage Delphi study. Results: Out of 2327 studies, 155 were selected following the different screening stages of scoping review. After summarizing and refining the indicators via several expert panel meetings and the Delphi method, a total of 36 key indicators were considered appropriate for measuring efficiency of the health system, 23 of which were for the sub-systems of public health (4 indicators), medical services (10 indicators), education (4 indicators) and research (5 indicators) and 13 indicators for the whole system efficiency. Conclusion: The set of indicators presented representing both the technical and allocative efficiency, might be a reliable basis for designing information systems and management dashboards for periodic monitoring of health system efficiency at national, regional and local levels.

show abstract

Section: Methodsmentioning

confidence: 99%

Key Indicators for Monitoring the Efficiency of Iranian Health System: A Synthesized Design Study

Jaafaripooyan,

Daroudi,

Damiri

et al. 2024

ijph

View full text Add to dashboard Cite

show abstract

“…Few studies in psychosocial oncology capture the unique ways cancer treatment interacts with, disrupts and promotes these developmental processes during and after treatment [1,7,8]. This is due in large part to several factors, including: differences in the nature and behavior of AYA cancers; lower participation in clinical trials; varying treatment plans; and inconsistent use of supportive services, such as social work, fertility services, sexual health, physical and occupational therapy, pain and palliative care and rehabilitation medicine [9,10]. Systemically, non-uniform treatment paradigms in conjunction with differences in tumor biology and lower accrual to clinical trials in the AYA population have led to marginal improvements in overall survival over the last three decades compared to therapeutic improvements seen in younger and older patients [3,[11][12][13][14][15].…”

Section: Introductionmentioning

confidence: 99%

Psychosocial Needs and Preferences for Care among Adolescent and Young Adult Cancer Patients (Ages 15–39): A Qualitative Study

Avutu

Lynch

Barnett

et al. 2022

Cancers

View full text Add to dashboard Cite

Adolescents and young adults (AYAs) require a multidisciplinary approach to cancer care due to their complex biopsychosocial situations and varied developmental maturity. Currently, age and diagnosis determine referral to pediatric or adult oncology, with differing treatment paradigms and service utilization patterns, contributing to suboptimal improvements in outcomes. Understanding the unique perspectives of AYAs is essential to designing patient-centered AYA services. Thus, we conducted six focus groups with AYAs (n = 25) treated by medical or pediatric oncologists to evaluate: (1) the unique experiences of cancer care as an AYA; (2) AYA-specific information needs and communication preferences; and (3) recommendations for service provision, delivery and accommodations for AYAs. Transcripts were analyzed using inductive thematic content analysis and identified six major themes to inform clinically-actionable recommendations and the development of a patient-reported outcome measure: (1) AYAs experience social isolation and loss of independence; (2) AYAs have an uncertain sense of the future and need conversations around survivorship and long-term and late effects; (3) AYAs desire greater control over discussions with their care team; (4) AYAs need additional navigational and social/caregiver supports; (5) AYAs prefer an inclusive AYA space in the hospital; and (6) LGBTQ+ patients experience distinct concerns as AYA cancer patients. These will form the basis for specific and tailored clinical recommendations to improve AYA cancer care delivery.

show abstract

“…However, there is still room for improvement in AYA care with many unmet needs during treatment, into adulthood, and beyond. [1][2][3][4][5] The AYA Care Network has always set out to harness collaboration between health care professionals, AYAs, and their relatives. 1,6 The AYA Care Network focuses strongly on AYA engagement with the vision ''Nothing about AYAs without AYAs.''…”

Section: Introductionmentioning

confidence: 99%

Lessons for Employing Participatory Design When Developing Care for Young People with Cancer: A Qualitative Multiple-Case Study

Vandekerckhove

Mul

Groot³

et al. 2021

Journal of Adolescent and Young Adult Oncology

View full text Add to dashboard Cite

Purpose: Participatory design (PD) is a collective creative design process involving designers and nondesigners. There is limited reporting on the experience of using PD for adolescent and young adult (AYA) care. This study summarizes lessons from employing PD to develop care for AYAs with cancer. Methods: A qualitative multiple-case study method was conducted of three PD processes addressing food (FfC), intimacy and sexuality (I&S), and integrative medicine (IM) in caring for AYAs with cancer. Results: Local key stakeholders, who were exposed to a problem and had not been successful at solving it individually, were recruited to “dream” together. Through this synergy, a shared understanding of the problem and a joint mission emerged to find a solution. PD tools were used to develop a problem definition. An open mind and explorative research helped to understand the problems, and stakeholders were managed such that idea-sharing and learning were enabled. Designers translated ideas into prototypes. The PD process was prolonged due to the hierarchical hospital environment, business considerations, and additionally required evidence. The FfC program produced an effective new food service for the whole hospital. The I&S initiative developed a podcast, two articles, and a prototype website. The IM project developed a pilot study. Conclusions: For a PD process to successfully develop care for AYAs, one needs to use designers and skilled people, PD tools, and an open-ended approach to visualize and materialize new forms of care. Furthermore, recruitment and facilitation techniques help leverage knowledge and create a synergy in a democratic environment between stakeholders.

show abstract

System Performance Indicators for Adolescent and Young Adult Cancer Care and Control: A Scoping Review

Cited by 6 publications

References 44 publications

Key Indicators for Monitoring the Efficiency of Iranian Health System: A Synthesized Design Study

Key Indicators for Monitoring the Efficiency of Iranian Health System: A Synthesized Design Study

Psychosocial Needs and Preferences for Care among Adolescent and Young Adult Cancer Patients (Ages 15–39): A Qualitative Study

Lessons for Employing Participatory Design When Developing Care for Young People with Cancer: A Qualitative Multiple-Case Study

Contact Info

Product

Resources

About