Symptoms and Quality of Life in Chronic Pancreatitis Assessed by Structured Interview and the EORTC QLQ-C30 and QLQ-PAN26

Fitzsimmons, Deborah; Kahl, Stefan; Butturini, Giovanni; Wyk, Marc van; Bornman, P. C.; Bassi, Claudio; Malfertheiner, P.; George, Steve; Johnson, C. D.

doi:10.1111/j.1572-0241.2005.40859.x

Cited by 166 publications

(157 citation statements)

References 30 publications

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“…Statement (EL 1b − RG B): Structured questionnaires are useful to evaluate the well-being of patients with chronic pancreatitis. Consensus Levels of Agreement: A+ 50%; A 31.3%; A− 12.5%; D− 6.3%; D 0%; D+ 0% Many structured questionnaires have been utilized to assess the well-being of patients with chronic pancreatitis [20,27,[61][62][63][64][65][66][67][68][69]. SF-12, SF-36, EORTC QLQ C-30, and GIQLI have all been proved useful.…”

Section: C7mentioning

confidence: 99%

Italian consensus guidelines for chronic pancreatitis

Frulloni

Falconi

Gabbrielli

et al. 2010

Digestive and Liver Disease

165

112

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This paper gives practical guidelines for diagnosis and treatment of chronic pancreatitis. Statements have been elaborated by working teams of experts, by searching for and analysing the literature, and submitted to a consensus process by using a Delphi modified procedure. The statements report recommendations on clinical and nutritional approach, assessment of pancreatic function, treatment of exocrine pancreatic failure and of secondary diabetes, treatment of pain and prevention of painful relapses. Moreover, the role of endoscopy in approaching pancreatic pain, pancreatic stones, duct narrowing and dilation, and complications was considered. Recommendations for most appropriate use of various imaging techniques and of ultrasound endoscopy are reported. Finally, a group of recommendations are addressed to the surgical treatment, with definition of right indications, timing, most appropriate procedures and techniques in different clinical conditions and targets, and clinical and functional outcomes following surgery. © 2010 Editrice Gastroenterologica Italiana S.r.l

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Section: C7mentioning

confidence: 99%

Italian consensus guidelines for chronic pancreatitis

Frulloni

Falconi

Gabbrielli

et al. 2010

Digestive and Liver Disease

165

112

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“…1,2,3 It is a progressive and debilitating disease with a long-term prognosis that has been described as dismal. 4 Throughout the illness trajectory there are significant challenges in relation to progression, treatment options and outcomes as well as debilitating intractable pain, steatorrhoea, malabsorption, malnutrition, diabetes mellitus, an increased risk of developing pancreatic cancer and a range of other complications. 3,5 About 50% of patients with CP will undergo surgery to manage their pain or complications; for many, however, despite apparent technical success no measurable improvement is seen in quality of life.…”

Section: Introductionmentioning

confidence: 99%

“…Although there has been recent recognition of the wider impact of CP on patients' psychological and social well-being, and the burden of living with the condition has been recognised, it is not well documented. 4,6,7 In the majority of QoL studies, the focus was on measuring QoL before and after an intervention and not on comparing QoL in those with chronic pancreatitis and a healthy control group. This suggests that the primary goals for patients with CP are intervention-based, thus perpetuating the notion that interventions are a panacea for QoL issues.…”

Section: Introductionmentioning

confidence: 99%

Living with chronic pancreatitis: a qualitative study

Cronin

Begley

2012

Chronic Illness

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Setting: Tertiary clinic in IrelandResults: The meaning of living with chronic pancreatitis for participants in this study is 'enduring disruption'. Enduring has a two-fold meaning; it symbolises the perpetual or permanent nature of disruption that occurs at physiological, social and psychological levels (i.e., 'suffering').Enduring also means 'to tolerate' and encompasses how the participants and their families cope and manage the overall transition from well person to a person with chronic pancreatitis.Discussion: This study offers an alternative perspective to previous quality of life research and presents a challenge to the emphasis on management of the pathophysiological processes and treatment of chronic pancreatitis that is decontextualised from the person's everyday living.Healthcare professionals need to understand and support people with chronic pancreatitis.

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“…However, a study on patients with pancreatic cancer after evaluation with the eortc QlQ-30 and QlQ-Pan26 revealed that fatigue, loss of appetite and an impaired sense of well-being were troubling them most [32], while questionnaires for patients suffering from chronic pancreatitis revealed a fear of future health problems, sleeping difficulties and fatigue [33] -these symptoms were also present in the patients with pancreatic adenoma participating in the authors' study.…”

Section: Resultsmentioning

confidence: 99%

Comparison of the practical usefulness of the EORTC QLQ-C15 PAL and QLQ-C30 questionnaires on the quality of life of patients with pancreatic adenocarcinoma: estimation – preliminary study report

Drobnik¹,

Feliks²,

Nowak³

et al. 2017

fmpcr

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A -study Design, B -Data collection, C -statistical analysis, D -Data interpretation, E -Manuscript Preparation, F -literature search, G -Funds collection Background. there are several quality of life measuring questionnaires designed for patients with cancer and who are subjected to palliative therapy. the QlQ-c30 questionnaire consists of 30 questions referring to different aspects of the patient's life; the abridged QlQ-c15 Pal questionnaire consists of half of them. Objectives. the aim of the study was to find out whether or not the information acquired from 15 questions subtracted from the questionnaire QlQ-c30 in the process of designing its shortened version, the QlQ-c15 Pal, delivers additional practical useful information about the quality of life of patients with pancreas cancers for the purpose of palliative care. Material and methods. a group of 38 patients with advanced stage pancreas adenocarcinoma subjected to palliative care outside hospitals in the lower silesia region of Poland in the years 2010-2011 was surveyed using the Polish translation of the QlQ-c30 questionnaire. the answers to 15 questions absent from the QlQ-c15 Pal questionnaire were analyzed separately. Results. the questions removed from QlQ-c30 questionnaire in order to build up the QlQ-c15 Pal questionnaire are those which further increased the knowledge about a patient's signs and symptoms or indicate a graver status of the patient. the QlQ-c15 Pal questionnaire lacks the block of questions that the QlQ-c30 questionnaire asks about the interference of the patient's physical condition or medical treatment with family life, social activities and financial status. Conclusions. the questions present in QlQ-c15 Pal questionnaire provide crude but complete information about the basic factors influencing a patient's quality of life that are enough for a palliative care physician to begin with when collecting or recollecting a medical history and determining or reviewing the physical status of the patient in order to adjust palliative treatment. Key words: quality of life, palliative care, questionnaire study, pancreatic adenocarcinoma. Summary

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Symptoms and Quality of Life in Chronic Pancreatitis Assessed by Structured Interview and the EORTC QLQ-C30 and QLQ-PAN26

Cited by 166 publications

References 30 publications

Italian consensus guidelines for chronic pancreatitis

Italian consensus guidelines for chronic pancreatitis

Living with chronic pancreatitis: a qualitative study

Comparison of the practical usefulness of the EORTC QLQ-C15 PAL and QLQ-C30 questionnaires on the quality of life of patients with pancreatic adenocarcinoma: estimation – preliminary study report

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