Symptom Science in Pediatric Oncology

Ameringer, Suzanne; Macpherson, Catherine Fiona; Jibb, Lindsay

doi:10.1007/978-3-030-25804-7_5

Cited by 6 publications

(4 citation statements)

References 100 publications

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“…3 Department of Psychology, UQÀM, Montréal, QC, Canada. 4 Department of Pediatrics, Université de Montreal, Montreal, QC, Canada. 5 Department of Psychology, Université de Montreal, Montreal, QC, Canada.…”

Section: Supplementary Informationmentioning

confidence: 99%

“…For some children, existing cancer-focused treatments may reveal ineffective, and the illness becomes an "advanced cancer", a critical state experienced by tens of thousand of young people in North America [2]. In such context of uncertainty, children and their family see their daily lives disrupted and their overall quality of life (QoL) widely affected [2][3][4][5].…”

Section: Introductionmentioning

confidence: 99%

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Quality of life in childhood advanced cancer: from conceptualization to assessment with the Advance QoL tool

et al. 2022

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Background Advanced childhood cancer, a condition with no available cancer-focused treatment options, greatly impacts Quality of Life (QoL). We need appropriate assessment strategies to select adapted treatment targets, improve care and optimize communication. Our first goal was to identify the domains of patients’ QoL by combining for the first time the perspectives of patients and parents with previously collected reports in professionals. Our second goal was to develop a simple QoL assessment tool and optimize its format and content for use in the childhood advanced cancer population. Methods To identify QoL domains, we conducted qualitative interviews with 7 young patients (4 girls, 3 boys, aged 13 ± 4 yrs) and 9 parents (7 mothers, 2 fathers) from our treatment centre. We used inductive thematic content analysis to code and categorize respondents’ viewpoints. The first version of the tool (Advance QoL) was then drafted, and structured feedback was collected through interviews and a survey with 15 experts. We computed content validity indices. Results Apart from the physical, psychological, and social domains, participants insisted on four original themes: autonomy, pleasure, the pursuit of achievement, and the sense of feeling heard. This was in line with the categories found in a preliminary study involving professionals (PMID: 28137343). Experts evaluated the tool as clear, relevant, acceptable, and usable. They formulated recommendations on instructions, timeframe, and item formulations, which we implemented in the refined version. Conclusions Advance QoL is an innovative tool targeting key life domains in childhood advanced cancer. It is focused on preserved abilities and targets of care. The refined version is appropriate for adult respondents within families and professionals. Future studies will develop versions for young ages to collect the experience of patients themselves. This will open on future reliability, validity, sensitivity, and implementation studies.

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Section: Supplementary Informationmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Quality of life in childhood advanced cancer: from conceptualization to assessment with the Advance QoL tool

et al. 2022

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“…Experiencing frequent and severe symptoms is accompanied by a lower quality of life and may hinder multiple aspects of a child's development. As documented by Ameringer, Macpherson, and Jibb [10] , Valizadeh et al, [11] , chemotherapy's side effects might keep a child from partaking in social interactions, such as playing or being with peers, that are key to facilitating psychosocial development. Symptoms as loss of appetite, nausea, and vomiting lead to inadequate nutritional intake and negatively affecting physical development.…”

Section: Introductionmentioning

confidence: 99%

Knowledge and performance of caregivers having children with cancer undergoing chemotherapy

Hasan¹,

Mohamed²,

Ahmed³

et al. 2020

Int. J. Res. Paediatric Nurs.

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Background: Cancer is a leading cause of death for children worldwide. More than 80% of children with cancer are cured in high-income countries, but only 20% are cured in many low-income countries. Aim of the study was:To assess the knowledge and performance of caregivers having children with cancer undergoing chemotherapy. Research design: A descriptive research design was used in the current study. Sample: A purposive sample of 35 caregivers having children with cancer and undergoing chemotherapy was participated in the study. Setting: The current study was conducted in the pediatric unit at Minia Oncology Center. Three Tools were: Tool (I): Structured Interview Sheet: it covered the personal data of the caregivers and the characteristics of the child; Tool (II): Caregivers Knowledge Assessment Sheet and Tool (III): Caregivers Performance Assessment Sheet. Results: There was lacking in knowledge and performance of Caregivers having children with cancer undergoing chemotherapy. There were no statistically significant relationships between the total mean scores of caregivers' knowledge and total caregivers' practice regarding childhood cancer and chemotherapy as well as their personal data as age, level of education, their children's age, gender and the child's rank in the family (p=>0.05). Conclusion:The study concluded that the overall level of caregivers' knowledge and performance was unsatisfactory. Personal variables have no impact on the knowledge and performance of the caregivers. Recommendation: The study recommended that developing periodic educational programs and instructions to caregivers having children with cancer undergoing chemotherapy would improve their knowledge and performance regarding childhood cancer and chemotherapy.

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“…Nursing interventions can potentially help in the early detection of cancer through various procedures. [ 7 8 ] Primarily, nurses promote cancer awareness and understanding, its threat perceptions, and early diagnosis through counseling, educating, and providing information on cancer symptoms, risks, and screening methods. Second, nursing interventions can increase the opportunity for early detection of cancer through improving service accessibility.…”

Section: Introductionmentioning

confidence: 99%

An investigation of efficient nursing interventions in early diagnosis of cancer

Larimi

Belash

Abedi

et al. 2021

Journal of Family Medicine and Primary Care

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Background and Aims: Due to the contradictory results of previous research and the lack of a specific study to address the effective nursing interventions in the early diagnosis of cancer, the purpose of this study was to determine the effect of nursing interventions on early diagnosis of cancer. Methods: This systematic review and meta-analysis were conducted during the last 5 years from 2015 to September 30, 2020. The articles related to the nursing interventions to early diagnosis of cancer were achieved from PubMed, Cochrane Library, Embase, ISI, Scopus databases, and Google and Google Scholar search engines. Risk-ratio with a 95% confidence interval (CI) between the intervention and control groups was determined using the fixed-effect model, and the Mantel–Haenszel method and I2 showed the heterogeneity of studies. Stata V16 software was used for meta-analysis. Results: The effect of an intervention on early diagnosis of breast cancer was evaluated using mammography, clinical breast examination, and breast self-exam. A total of 300 individuals participated in the study. RR results in the intervention group showed the effectiveness of nursing interventions on breast cancer detected early in both the mammography and colonoscopy (RR, 1.18 95% CI 0.57, 1.79. P =0.00 and RR, 0.58, 95% CI 0.42, 0.75, P = 0.00, respectively). Conclusion: A variety of nursing interventions including education, consultation, patient guidance, and reminders can have a positive impact on the early detection of cancers.

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Symptom Science in Pediatric Oncology

Cited by 6 publications

References 100 publications

Quality of life in childhood advanced cancer: from conceptualization to assessment with the Advance QoL tool

Quality of life in childhood advanced cancer: from conceptualization to assessment with the Advance QoL tool

Knowledge and performance of caregivers having children with cancer undergoing chemotherapy

An investigation of efficient nursing interventions in early diagnosis of cancer

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