Symptom Frequency in Children with Congenital Heart Disease and Parental Care Burden in Predicting the Quality of Life of Parents in Turkey

Bektaş, İlknur; Kır, Mustafa; Yıldız, Kaan; Genc, Zeynep; Bektaş, Murat; Ünal, Nurettin

doi:10.1016/j.pedn.2020.04.012

Cited by 17 publications

(11 citation statements)

References 28 publications

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“…However, their study assessed fatigue with a single question, not assessing the severity of fatigue. [19] Regarding the CHD subgroups, children with a single ventricle circulation generally reported more fatigue, as is in line with previous research in children and adults with CHD. [21,25,26] Unexpectedly, participants with a transposition of the great arteries (TGA) on average reported less fatigue in our study.…”

Section: Discussionsupporting

confidence: 88%

Prevalence of fatigue in children with congenital heart disease and correlations with disease-specific factors

Vos

Hoefnagels

Vlist

et al. 2022

Preprint

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BACKGROUND Improved survival of children with congenital heart disease (CHD) leads to long-term challenges, like fatigue. Fatigue is a common and disabling symptom in childhood chronic disease with a remarkably similar presentation across diverse disease groups. We hypothesize that fatigue impacts children with CHD similarly. Therefore, we investigated the prevalence of fatigue in children with CHD, its correlation with health-related quality of life (HRQoL) and several cardiologic factors. METHODS Prospective data were obtained from the PROactive cohort study. We examined the prevalence of fatigue in CHD and its correlation with HRQoL in 2- to 18-year-olds. Fatigue and HRQoL were assessed using the PedsQL Multidimensional Fatigue Scale and Generic Core Scales. Cut-off points for fatigue were based on a healthy control population (± 2SD). We assessed correlations between fatigue and disease-specific factors in 8- to 18-year-olds using linear regression analyses. RESULTS We included 259 patients (median age 8.9 (IQR 4.8–13.4), 56% boys). Of all participants, 34% reported fatigue and 16% reported severe fatigue. More fatigue was associated with lower HRQoL (β = 0.6, p < 0.01). Three disease-specific factors were significantly correlated with fatigue: number of cardiac procedures (β = 0.3, p = 0.01), exercise tolerance Watt/kg (β = 0.4, p < 0.01) and VO2/kg (β = 0.3, p = 0.02). These determinants explained 13% of the variance in fatigue. CONCLUSIONS Fatigue is common in children with CHD and its prevalence is comparable with other pediatric chronic diseases. Disease-specific factors explained a minor amount of the variance in fatigue. A biopsychosocial approach should be considered for the identification and management of fatigue in children with CHD.

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Section: Discussionsupporting

confidence: 88%

Prevalence of fatigue in children with congenital heart disease and correlations with disease-specific factors

Vos

Hoefnagels

Vlist

et al. 2022

Preprint

View full text Add to dashboard Cite

show abstract

“…Therefore, no change in patient outcome was included in this study. (2) This type of follow-up method appeals to specific geographic regions, and whether it can be popularized and applied deserves further study. (3) There was no standard to measure the effectiveness of follow-up.…”

Section: Limitationsmentioning

confidence: 99%

“…Congenital heart disease (CHD) is a severe congenital structural malformation, and the health condition of children with CHD is life-threatening and unpredictable [1,2]. Complications such as pulmonary infection, malnutrition, cardiac insufficiency, and arrhythmia are easy to occur after cardiac surgery [3].…”

Section: Introductionmentioning

confidence: 99%

Parents’ understanding and attitudes toward the use of the WeChat platform for postoperative follow-up management of children with congenital heart disease

Lin

Chen

Lin

et al. 2023

J Cardiothorac Surg

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Objective This study aimed to investigate parents’ understanding and attitudes toward using the WeChat platform for postoperative follow-up management of children with congenital heart disease (CHD). Methods A total of 196 children with CHD were followed up using the WeChat platform. A self-designed questionnaire was administered to their parents at discharge. Results Only 188 parents completed the questionnaire. One hundred nineteen parents (63.3%) confirmed that they heard about using the WeChat platform for postoperative follow-up, and 104 (87.4%) of them expressed that they were willing to accept the WeChat platform for their follow-up. A total of 42 parents (35.3%) were willing to undergo a follow-up of 1 to 3 months, and 32 (26.8%) were willing to undergo a long-term follow-up. Eighty parents (67.2%) had a positive attitude toward the effect of the WeChat platform on follow-up. Parents in rural areas and those educated at the middle school level or below were more willing to engage with the WeChat platform for postoperative follow-up management (P < 0.05). Conclusions Although the WeChat platform is an essential tool for daily communication, its application in postoperative follow-up management is still under study. Most parents who participated in the follow-up study had a positive attitude toward the WeChat platform, especially those in rural areas and with lower education levels.

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“…Prevalence of hypertension continues to increase from 972 million people with hypertension, 333 million are in developed countries, and the remaining 639 are in developing countries, incorporating Indonesia (Bektas et al, 2020). In Indonesia, hypertension during pregnancy is the second leading cause of maternal death after miscarriage.…”

Section: Introductionmentioning

confidence: 99%

Utilizing Go-Yoga Smartphone Application to Prevent Preeclampsia in Pregnant Women

Zakaria

Astuti

2022

j. info kesehat.

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After bleeding, hypertension is the second leading cause of maternal death. Hypertension is caused by a combination of factors, including increased stress and a low level of albumin. All of these changes will cause complications and necessitate long-term medication therapy. As a result, complementary therapies such as family roles and yoga are required. Many people are unfamiliar with yoga movements, so this study provides innovation by incorporating yoga into a smartphone application. The objective of the study is to determine the differences in the implementation of the Go-Yoga smartphone application and the role of the family in pregnant women in the III trimester on blood pressure and albumin levels. This type of research is quasi-experimental involving 60 pregnant women in the third trimester. In Group I, 20 pregnant women practiced yoga with books; in Group II, 20 pregnant women exercised yoga with the Go-Yoga app without their families; and in Group III, 20 pregnant women practiced yoga with their families. The study's results revealed significant blood pressure, with the third group having the highest average (p = 0.000 1). Pregnant women who utilize the Go-Yoga app with their families have lower blood pressure than other groups. Furthermore, pregnant women who employ the Go-Yoga app with their families have higher albumin levels than other groups. Therefore, this study suggests employing the Go-Yoga application with the family prevents hypertension in pregnancy.

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Symptom Frequency in Children with Congenital Heart Disease and Parental Care Burden in Predicting the Quality of Life of Parents in Turkey

Cited by 17 publications

References 28 publications

Prevalence of fatigue in children with congenital heart disease and correlations with disease-specific factors

Prevalence of fatigue in children with congenital heart disease and correlations with disease-specific factors

Parents’ understanding and attitudes toward the use of the WeChat platform for postoperative follow-up management of children with congenital heart disease

Utilizing Go-Yoga Smartphone Application to Prevent Preeclampsia in Pregnant Women

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