Sustaining Informal Caregivers for Persons with AIDS

Wardlaw, Linda

doi:10.1177/104438949407500606

Cited by 45 publications

(36 citation statements)

References 17 publications

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“…Informal caregivers, often defined as individuals voluntarily providing assistance during illness, play a critical role in the social support and physical and emotional well-being of persons with HIV/AIDS [5,6]. Indeed, assistance obtaining or taking medications may be forms of instrumental support provided by informal caregivers.…”

Section: Introductionmentioning

confidence: 99%

Informal Care and Reciprocity of Support are Associated with HAART Adherence Among Men in Baltimore, MD, USA

Knowlton

Yang

Bohnert³

et al. 2010

AIDS Behav

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Research suggests gender differences in interpersonal relationship factors important to health. This study examined relationship factors associated with HAART adherence among men. The sample (n=154) comprised 95% African Americans and 48% current illicit drug users; 83% reported HAART adherence. Results revealed adherence was associated with comfort level taking HAART in the presence of close friends, and the interaction between informal care (having someone to care for oneself when sick in bed) and reciprocity of support. Among those with informal care, higher reciprocity of support to caregivers was associated with greater adherence. Promoting men's reciprocity of support to their caregivers and enhancing peer norms of medication taking are important strategies for improving men's adherence. The findings complement previous findings on relationship factors adversely associated with women's adherence. Results suggest the merit of interventions targeting men and their informal caregivers, particularly main partners, and genderspecific, contextually tailored strategies to promote HAART adherence.

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Section: Introductionmentioning

confidence: 99%

Informal Care and Reciprocity of Support are Associated with HAART Adherence Among Men in Baltimore, MD, USA

Knowlton

Yang

Bohnert³

et al. 2010

AIDS Behav

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“…Their unpredictability, similar to the episodic nature of AIDS itself, lends a sense of uncertainty to AIDS caregiving, as many caregivers have expressed (Wardlaw, 1994). Moreover, the preceding analyses suggest they are salient to caregiver Health 3 (4) worry (Tables 2 and 3).…”

Section: Leblanc and Wardlaw: Worry Among Informal Aids Caregiversmentioning

confidence: 86%

Health-Related Worry among Informal Aids Caregivers

LeBlanc

Wardlaw

1999

Health (London)

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We examine health-related worries among a sample of informal AIDS caregivers (N = 640), people caring for a friend, loved one or kin outside the formal health care system. Two dimensions of worry are assessed: (1) a generalized sense of vulnerability to sickness; and (2) perceptions of care provision as risky in itself. Many informal AIDS caregivers, whether they are HIV seronegative or seropositive, harbor considerable worry about their own vulnerability to sickness, yet relatively few appear to worry about caregiving as a risky activity per se. We document important variation in the levels and correlates of worry across caregivers as they differ by serostatus and health. We also uncover variation in worry rooted in sociodemographic background and the differential experience of care-related stress. Prevailing theories of risk perception help to illustrate why informal caregivers might differ from other populations in their view of AIDS. Vignettes and quotes culled from marginal comments, which were systematically recorded by trained interviewers during implementation of the survey, supplement the quantitative data.

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“…This contrasts with the literature Downloaded by [The University of Manchester Library] at 08:52 03 November 2014 on HIV I AIDS that is primarily comprised of nonempirical articles in which some aspect of treatment for or therapy with PWAs, their families, partners , an d caregivers was described. For example, in Families in Society, only 3 of the 23 articles on HIV I AIDS that were published during the decade of this study were b ased on an empirical study (Gillman, 1991 ;McGinn, 1996;Wardlaw, 1994).…”

Section: Publication Data By Research Approachmentioning

confidence: 99%