Suspended Sorrow: The Crisis in Understanding the Diagnosis for the Mothers of Children with A Disorder of Sex Development

Freda, Maria Francesca; Dicé, Francesca; Auricchio, Maria; Salerno, Mariacarolina; Valerio, Paolo

doi:10.1080/19317611.2014.957793

Cited by 14 publications

(9 citation statements)

References 32 publications

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“…According to this counseling narrative model, narratives play a key role in developing reflexive processes by allowing individuals to construct meaning to their experience and reinterpret it from a different, more coherent perspective (Freda, Dicé, Auricchio, Salerno, & Valerio, 2014). Specifically, reflexive processes draw on narrative structures to facilitate a representation of the events in one's own life (Lieblich, 2012).…”

mentioning

confidence: 99%

Meaning Coconstruction in Group Counseling: The Development of Innovative Moments

Esposito

Ribeiro

Alves

et al. 2016

Journal of Constructivist Psychology

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This study discusses a model of group counseling, the narrative mediation path (NMP), which is a unique narrative, multimodal approach that combines four narrative modes (metaphoric, iconographic, writing, and bodily) and the narrative group. The purpose of the NMP is to foster reflexive processes with underachieving university students and to improve their academic performance. The study analyzes a single case of group counseling for seven underachieving economics students at an Italian university and the process of meaning construction among NMP narrative modes and the follow-up session. It applies the innovative moments coding system, a reliable method for studying change by tracking narrative innovations in sessions. More specifically, we focus on how innovative moments (IMs: action, reflection, protest, and reconceptualization) evolve during the four different narrative modes and the follow-up session. The findings suggest that the NMP fosters narrative innovations, mainly of a reflexive nature (reflection and reconceptualization). Moreover, during counseling and the follow-up session, the pattern of change is primarily characterized by reconceptualization IMs, the most complex form of narrative innovation

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mentioning

confidence: 99%

Meaning Coconstruction in Group Counseling: The Development of Innovative Moments

Esposito

Ribeiro

Alves

et al. 2016

Journal of Constructivist Psychology

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“…Studies on how decision-making, particularly in relation to early surgery and gender assignment, has been experienced by affected parents have shown that decision-making is less straightforward than medical guidelines suggest (Karkazis, 2008), but also that many parents trust health professionals' recommendations (Sanders, Carter, & Goodacre, 2008;Zeiler & Wickstrom, 2009). Parental coping is also affected by how information is presented to parents (Duguid et al, 2007;Freda, Dicé, Auricchio, Salerno, & Valerio, 2015;Pasterski et al, 2014;Zeiler & Wickstrom, 2009). The manner in which information is communicated has implications for how parents understand sex and gender and how they make sense of their child's body, the potential delay in gender assignment and the perceived need for medical interventions (Crissman et al, 2011;Freda et al, 2015;Gough et al, 2008;Sanders et al, 2008;Zeiler & Wickstrom, 2009).…”

Section: Empirical Findings: Moving From Principles To Practicesmentioning

confidence: 99%

“…Parental coping is also affected by how information is presented to parents (Duguid et al, 2007;Freda, Dicé, Auricchio, Salerno, & Valerio, 2015;Pasterski et al, 2014;Zeiler & Wickstrom, 2009). The manner in which information is communicated has implications for how parents understand sex and gender and how they make sense of their child's body, the potential delay in gender assignment and the perceived need for medical interventions (Crissman et al, 2011;Freda et al, 2015;Gough et al, 2008;Sanders et al, 2008;Zeiler & Wickstrom, 2009). As gender assignment seems to imply early genital surgery from the point of view of many people, parents might need support and additional time to disentangle these two unexpected dilemmas (Roen, 2019;Sanders et al, 2008;Zeiler & Wickstrom, 2009).…”

Section: Empirical Findings: Moving From Principles To Practicesmentioning

confidence: 99%

“…Experiences of disclosure of medical information have not been studied to the same extent. Studies have shown, however, that many parents consider it crucial to share information with their children (Dayner, Lee, & Houk, 2004), but challenging to do so (Freda et al, 2015;Lundberg et al, 2017). One study reported that young people with intersex/DSD had concerns about the process of receiving information .…”

Section: Empirical Findings: Moving From Principles To Practicesmentioning

confidence: 99%

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Moving intersex/DSD rights and care forward: Lay understandings of common dilemmas

Lundberg

Dønåsen

Hegarty

et al. 2019

J. Soc. Polit. Psych.

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When sex characteristics develop in ways that do not conform to binary models, dilemmas arise regarding how to understand the situation and what terminology to use to describe it. While current medical nomenclature suggests that it should be understood as a disorder of sex development (DSD) prompting medical responses, many describe intersex as a human variation in sexed embodiment that should be protected under discrimination laws. These opposing perspectives suggest different principles to employ in responding to dilemmas about gender assignment, early genital surgery and full disclosure of medical information. In this discursive psychological study, we explore how lay people, without prior knowledge or experience of intersex/DSD, make sense of these dilemmas and the underpinning discourses giving rise to how they talk about these situations. By using the discursive framework of ideological dilemmas, we analyse how people make sense of sex and gender (as binary or non-binary), how they deal with difference (as problematic or not), and how they understand who is in a position to make decisions in such situations. We conclude that engaging with dilemmas in-depth is more constructive than favouring one principle over others in moving social science research, reflexive clinical practice, and wider political debates on intersex/DSD forward.

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“…Studies focused on the illness narratives of women with breast cancer highlighted how the onset of cancer is narrated as a biographical disruption, temporal fracture, and discontinuity affecting temporal frameworks (Bülow & Hydén, 2003; Freda, Dicé, Auricchio, Salerno, & Valerio, 2015; Hillmann, 1984; Kleinman, 1988). Temporality is a basic and constituent dimension of human existence; everything is developed and signified in a time frame (Barak & Leichtentritt, 2014; Brockmeier, 2000; Broom & Tovey, 2008; Carr, Teucher, & Casson, 2014).…”

Section: Breast Cancer Narrative and Temporalitymentioning

confidence: 99%

Meaning-making process related to temporality during breast cancer traumatic experience: The clinical use of narrative to promote a new continuity of life

Martino

Freda

2016

Eur. J. Psychol.

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Previous research has agreed that meaning-making is a key element in the promotion of patients’ well-being during and after a traumatic event such as cancer. In this paper, we focus on an underestimated key element related to the crisis/rupture of this meaning-making process with respect to the time perspective. We consider 40 narratives of breast cancer patients at different times of treatment, undergoing chemotherapy and biological therapy. We collected data through writing technique. We performed an interpretative thematic analysis of the data and highlighted specific ways to signify time during the different treatment phases. Our central aspect “the time of illness, the illness of time” demonstrates that the time consumed by illness has the risk of becoming an illness of time, which transcends the end of the illness and absorbs a patient’s past, present, and future, thus saturating all space for thought and meaning. The study suggests that narrative can become a therapeutic and preventive tool for women with breast cancer in a crisis of temporality, and enable the promotion of new semiotic connections and a specific functional resynchronization with the continuity/discontinuity of life. This is useful during the illness and medical treatment and also after the treatment.

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Suspended Sorrow: The Crisis in Understanding the Diagnosis for the Mothers of Children with A Disorder of Sex Development

Cited by 14 publications

References 32 publications

Meaning Coconstruction in Group Counseling: The Development of Innovative Moments

Meaning Coconstruction in Group Counseling: The Development of Innovative Moments

Moving intersex/DSD rights and care forward: Lay understandings of common dilemmas

Meaning-making process related to temporality during breast cancer traumatic experience: The clinical use of narrative to promote a new continuity of life

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