Survivorship Care Plans: Rural, Low-Income Breast Cancer Survivor Perspectives

DeGuzman, Pamela B.; Colliton, Kaitlyn; Nail, Carmel J.; Keim‐Malpass, Jessica

doi:10.1188/17.cjon.692-698

Cited by 25 publications

(28 citation statements)

References 28 publications

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“…23,24 Rural survivors reportedly have worse outcomes relative to urban cancer survivors. 28,29 Psychosocial and mental health services The 2 studies relevant to mental health or psychosocial health provide a limited amount of data on how current distress can affect acute care needs (ER and hospitalization) and the stated needs and subsequent use of psychosocial services among breast cancer survivors. Few studies have examined health care use in rural populations to inform survivorship care strategies and/or future intervention.…”

Section: Rural Populationsmentioning

confidence: 99%

“…Few studies have examined health care use in rural populations to inform survivorship care strategies and/or future intervention. 28,29 Psychosocial and mental health services The 2 studies relevant to mental health or psychosocial health provide a limited amount of data on how current distress can affect acute care needs (ER and hospitalization) and the stated needs and subsequent use of psychosocial services among breast cancer survivors. Although the need for care among survivors has been established, 30 there is a need to further understand how mental health affects overall use and which positive utilization trends could prevent acute or unanticipated health care use (eg, hospitalization).…”

Section: Rural Populationsmentioning

confidence: 99%

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Health care use during cancer survivorship: Review of 5 years of evidence

Kenzik

2018

Cancer

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Improvements in treatment strategies have resulted in increasing survival rates among patients diagnosed with cancer but also result in a growing population of individuals who have greater health care needs. These needs will persist from diagnosis throughout the continuing phase of care, or the survivorship phase. To better define models of survivorship care, there must be a strong evidence base in survivor health care use patterns. The objective of this review, which covers studies from 2012 to January 2018, was to evaluate the available evidence on patterns of health care visits among survivors of adult cancers and to understand what is known about the rate of health care visits, the physician specialties associated with these visits, and/or the types health care settings (eg, outpatient, emergency room). The findings underscore the importance of primary care, with the majority of studies reporting that >90% of survivors visited a primary care provider in the prior year. Visits to oncologists and/or other physician specialties were positively associated with receiving cancer screenings and obtaining quality care for noncancer-related conditions. High care density/low care fragmentation between physician specialties had lower costs and a lower likelihood of redundant health care utilization. The followup in almost all studies was 3 years, providing short-term evidence; however, as the survivorship period lengthens with improved treatments, longer follow-up will be required. The long-term patterns with which survivors of cancer engage the health care system are critical to designing long-term follow-up care plans that are effective in addressing the complex morbidity that survivors experience. Cancer 2019;125:673-680.

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Section: Rural Populationsmentioning

confidence: 99%

Section: Rural Populationsmentioning

confidence: 99%

Health care use during cancer survivorship: Review of 5 years of evidence

Kenzik

2018

Cancer

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“…4,5 Consequentially, a poor understanding of the utility of posttreatment survivorship care can be a barrier to adequate survivorship care, as patients may delay the initiation of or reduce adherence to follow-up care screening for recurrent cancers, lack knowledge of the long-term effects of treatment, and have unaddressed psychosocial (ie, emotional and social) supportive care needs. [6][7][8][9] Across health care systems and cancer types, posttreatment patient-provider communication is not standardized, and such heterogeneity in communication can increase survivorship risks associated with poor management of posttreatment care. [8][9][10][11][12] Cancer survivors who receive their care at settings that adhere to the Commission on Cancer (CoC) guidelines are required to receive a survivorship care plan.…”

mentioning

confidence: 99%

“…[6][7][8][9] Across health care systems and cancer types, posttreatment patient-provider communication is not standardized, and such heterogeneity in communication can increase survivorship risks associated with poor management of posttreatment care. [8][9][10][11][12] Cancer survivors who receive their care at settings that adhere to the Commission on Cancer (CoC) guidelines are required to receive a survivorship care plan. 13 Yet, many cancer survivors, such as those treated in non-CoC centers, face inequities in communication of survivorship care plans.…”

mentioning

confidence: 99%

“…Cancer survivors and caregivers of cancer patients report a moderate to low understanding of the posttreatment survivorship care recommendations from their health care providers. 9,19 However, patient-provider communication about the survivor's posttreatment care needs can improve the quality of the posttreatment patient-provider communication and survivorship outcomes, such as timely follow-up care. 7,20 As it relates to optimizing posttreatment survivorship communication and the subsequent timely follow-up care for rural cancer patients, preliminary research is necessary to identify the quality and content of posttreatment survivorship communication between rural survivors and their providers.…”

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confidence: 99%

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Understanding Posttreatment Patient‐Provider Communication and Follow‐Up Care Among Self‐Identified Rural Cancer Survivors in Illinois

Lewis‐Thames

Carnahan

James

et al. 2020

The Journal of Rural Health

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Purpose As disparities in rural‐urban cancer survivorship rates continue to widen, optimizing patient‐provider communication regarding timely follow‐up care is a potential mechanism to improving survivorship‐related outcomes. The current study examines sociodemographic and health predictors of posttreatment patient‐provider communication and follow‐up care and associations between written communication and timely follow‐up care for cancer survivors who identify as rural. Methods Data were analyzed from posttreatment cancer survivor respondents of the Illinois Rural Cancer Assessment Study. The current study tested associations between sociodemographic variables and health factors on the quality of patient‐provider communication and timely posttreatment follow‐up care, defined as visits ≤ 3 months posttreatment, and associations between the receipt of written patient‐provider communication on timely posttreatment follow‐up care. Results Among 90 self‐identified rural cancer survivors, respondents with annual incomes < $50,000 and ≤ High School diploma were more likely to report a high quality of posttreatment patient‐provider communication. Posttreatment written communication was reported by 62% of the respondents and 52% reported timely follow‐up visits during the first 3 years of posttreatment care. Patients who reported receiving written patient‐provider communication were more likely to have timely posttreatment follow‐up care after completing active treatment than patients who had not received written patient‐provider communication. Conclusions Our findings suggest that written patient‐provider communication improved timely follow‐up care for self‐identified rural cancer survivors. This research supports policy and practice that recommend the receipt of written survivorship care plans. Implementation of written survivorship care recommendations has the potential to improve survivorship care for rural cancer survivors.

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What are the post‐treatment information needs of rural cancer survivors in Australia? A systematic literature review

et al. 2023

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Objective: To conduct a systematic literature review to critically assess the met and unmet post-treatment information needs of cancer survivors living in rural communities in Australia, to inform the improvement of survivors' transition from treatment in major cities to community care.Methods: Cumulative index of nursing and allied health literature, PubMed, Web of Science, Scopus, Cochrane CENTRAL and Academic Search Ultimate databases and websites of 118 cancer organisations were searched for relevant Australian studies published since 2006. Key search terms included 'rural', 'remote', 'regional', 'cancer', 'survivor*', 'living with', and 'post-treatment'. Data reflecting study source, aims, methodology, and reported information needs were extracted and summarised.Study quality was assessed using Joanna Briggs Institute tools.Results: Fifty-two articles met eligibility criteria. Only six of these specified a primary aim of understanding information needs for rural cancer survivors. Information on prognosis and recovery; managing treatment side effects; healthy lifestyle choices; referrals to support services, and face-to-face and written delivery of information at multiple time points were reported as needed and often lacking for rural cancer survivors.

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Survivorship Care Plans: Rural, Low-Income Breast Cancer Survivor Perspectives

Cited by 25 publications

References 28 publications

Health care use during cancer survivorship: Review of 5 years of evidence

Health care use during cancer survivorship: Review of 5 years of evidence

Understanding Posttreatment Patient‐Provider Communication and Follow‐Up Care Among Self‐Identified Rural Cancer Survivors in Illinois

What are the post‐treatment information needs of rural cancer survivors in Australia? A systematic literature review

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