Survivorship care plans in research and practice

Salz, Talya; Oeffinger, Kevin C.; McCabe, Mary S.; Layne, Tracy M.

doi:10.3322/caac.20142

Cited by 213 publications

(216 citation statements)

References 49 publications

(185 reference statements)

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“…Notably, although some of those impacts might seem universal, their meaning for sa patients is in fact quite different. Contextual factors such as migration and acculturation, socioeconomic status, and gender in the various ethnic populations residing in Western society today create a cultural lens that influences how, compared with a mainstream population, members of those ethnic populations journey through the cancer trajectory 13,[24][25][26] .…”

Section: Discussionmentioning

confidence: 99%

Breast Cancer Survivorship and South Asian Women: Understanding about the Follow-Up Care Plan and Perspectives and Preferences for Information Post Treatment

et al. 2013

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be experienced in common with bcss of other ethnic backgrounds, but the present study also suggests the presence of unique cultural nuances such as spiritual and language-specific support resource needs. The results provide direction for designing key content and format of scps, and information about elements of care that can be customized to individual patient needs. KEY WORDSSouth Asian women, breast cancer survivors, survivorship care, social and cultural aspects of cancer, psychosocial and physical functioning, life stage

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Section: Discussionmentioning

confidence: 99%

Breast Cancer Survivorship and South Asian Women: Understanding about the Follow-Up Care Plan and Perspectives and Preferences for Information Post Treatment

et al. 2013

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“…Although the Commission on Cancer (2012) added the provision of a survivorship care plan to its cancer program standards, sparse evidence exists regarding the effectiveness and optimal content of care plans (Salz, Oeffinger, McCabe, Layne, & Bach, 2012). Two small studies of personalized survivorship care plans suggested reductions in unmet needs among cancer survivors and increased adherence with medical surveillance recommendations (Jefford et al, 2011;Oeffinger et al, 2011).…”

Section: Hhs Public Accessmentioning

confidence: 99%

“…The majority of previous studies regarding patient perspectives on survivorship care plans have used qualitative methods to assess patient preferences for survivorship care plans, most often by soliciting responses to a sample care plan (Salz et al, 2012). The studies provided evidence that survivors prefer the inclusion of information such as diagnosis and treatment, expected side effects (physical and psychological), signs and symptoms of recurrence, a recommended follow-up schedule, and resources for health promotion, further information, and support (Baravelli et al, 2009;Brennan, Butow, Marven, Spillane, & Boyle, 2011;Burg, Lopez, Dailey, Keller, & Prendergast, 2009;Hewitt, Bamundo, Day, & Harvey, 2007;Marbach & Griffie, 2011;Smith, Singh-Carlson, Downie, Payeur, & Wai, 2011).…”

Section: Relationship To Previous Studiesmentioning

confidence: 99%

Patient Satisfaction With Breast and Colorectal Cancer Survivorship Care Plans

Sprague

Dittus²,

Pace³

et al. 2013

Clinical Journal of Oncology Nursing

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Cancer survivors face several challenges following the completion of active treatment, including uncertainty about late effects of treatment and confusion about coordination of follow-up care. The authors evaluated patient satisfaction with personalized survivorship care plans designed to clarify those issues. The authors enrolled 48 patients with breast cancer and 10 patients with colorectal cancer who had completed treatment in the previous two months from an urban academic medical center and a rural community hospital. Patient satisfaction with the care plan was assessed by telephone interview. Overall, about 80% of patients were very or completely satisfied with the care plan, and 90% or more agreed that it was useful, it was easy to understand, and the length was appropriate. Most patients reported that the care plan was very or critically important to understanding an array of survivorship issues. However, only about half felt that it helped them better understand the roles of primary care providers and oncologists in survivorship care. The results provide evidence that patients with cancer find high value in personalized survivorship care plans, but the plans do not eliminate confusion regarding the coordination of follow-up care. Future efforts to improve care plans should focus on better descriptions of how survivorship care will be coordinated.About 12.5 million people in the United States were living with a personal history of cancer in 2009, including more than 2.5 million women with breast cancer and more than 1 million men and women with colorectal cancer (Howlader et al., 2012). An extensive body of research provides evidence that cancer survivors frequently experience late effects fromNo financial relationships relevant to the content of this article have been disclosed by the independent peer reviewers or editorial staff.Sprague can be reached at brian.sprague@uvm.edu, with copy to editor at CJONEditor@ons.org. (Ganz, 2000;Harrington, Hansen, Moskowitz, Todd, & Feuerstein, 2010;Hewitt, Greenfield, & Stovall, 2005;Stein, Syrjala, & Andrykowski, 2008;Strieker & Jacobs, 2008). A landmark report by the Institute of Medicine (Hewitt et al., 2005) recognized that the system of delivering care to the growing number of cancer survivors was inadequate. Specifically, it suggested that the transition of medical care following cancer treatment often is not well coordinated, and many cancer survivors and providers are unaware of late effects and heightened health risks related to the cancer and its treatment. A key recommendation of the report was that patients with cancer completing primary treatment should be provided with a survivorship care plan that includes a comprehensive treatment and care summary and follow-up plan. HHS Public AccessAlthough the Commission on Cancer (2012) added the provision of a survivorship care plan to its cancer program standards, sparse evidence exists regarding the effectiveness and optimal content of care plans (Salz, Oeffinger, McCabe, Layne, & Bach, 2012). Two sma...

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“…As the push to provide cancer survivors with SCPs increases, SCP template developers are likely to encounter increased challenges in their decisionmaking processes around what SCP components to prioritize. Challenges may also arise in developers' attempts to modify these templates in a way so as to increase the applicability and acceptability among the diverse ethnic minority, cancer survivor population [18]. SCP templates for AfricanAmerican cancer survivors and other minority survivors will need to document race-specific treatment-related side effects as well [8].…”

mentioning

confidence: 99%

“…There are few, if any, studies that have investigated the knowledge and awareness and the applicability and acceptability of the available SCP templates among ethnic minority cancer survivors including African-American breast cancer survivors (AABCS) [8,18,23].…”

mentioning

confidence: 99%