Survivorship after Treatment of Pancreatic Cancer: Insights Via an Internet-Based Survivorship Care Plan Tool

Frick, Melissa A.; Vachani, Carolyn; Hampshire, Margaret K.; Bach, Christina; Arnold‐Korzeniowski, Karen; Metz, James M.; Hill‐Kayser, Christine

doi:10.1016/j.ijrobp.2017.06.1884

Cited by 3 publications

(8 citation statements)

References 16 publications

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“…Survivorship care plans aim to improve communication between healthcare professionals and patients. Frick et al (2017) conducted a quantitative study to explore treatment patterns, side effects, surveillance care plans and perceptions of a survivorship care plan tool. Only 5% of people with pancreatic cancer who were surveyed received survivorship information following treatment.…”

Section: Early Referral To Palliative Care and Integration Within Oncmentioning

confidence: 99%

“…Of the people who responded to a brief survey at the time they received their care plan, 83% said they would share it with their healthcare team, although 50% wanted more information than the plan provided (Frick et al 2017). In terms of the information patients may want to see in a survivorship care plan, Polakowski et al (2015) argued there is a significant need for information that supports people to detect side effects/ complications of treatment and assess signs and symptoms to manage the effects of pancreatic cancer.…”

Section: Early Referral To Palliative Care and Integration Within Oncmentioning

confidence: 99%

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Supportive care needs of people with pancreatic cancer: a literature review

Scott¹,

Jewell²

2019

Cancer Nursing Practice

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Section: Early Referral To Palliative Care and Integration Within Oncmentioning

confidence: 99%

Section: Early Referral To Palliative Care and Integration Within Oncmentioning

confidence: 99%

Supportive care needs of people with pancreatic cancer: a literature review

Scott¹,

Jewell²

2019

Cancer Nursing Practice

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“…The papers included feasibility and evaluation studies of the SCP technology (16)(17)(18), descriptive studies using SCP data and/or surveys/questionnaires on user satisfaction and participation (19)(20)(21)(22)(23)(24)(25)(26), predictive modelling as to who receives a SCP (27), a review on the adherence, advantages and limitations of cancer SCP (28), a review with a focus on nursing practice(29) and a description of SCP systems that were under development at the time (30,31).…”

Section: Insert Figure 1: Prisma Search Flowchart About Herementioning

confidence: 99%

“…Most survivors using one model planned to share it with their PCPs (17,19,(22)(23)(24)(25). Reasons for not sharing the care plan were that their provider would not care about the plan, they did not feel the plan was relevant to the provider or that the SCP was too long or it would upset the provider (23,25).…”

Section: Insert Figure 1: Prisma Search Flowchart About Herementioning

confidence: 99%

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Development of an interactive, web-based shared care plan to facilitate the follow-up care of colorectal cancer patients

Taggart

Chin

Lewis³

et al. 2019

Preprint

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Introduction A shared model of care between cancer services and primary health care is safe and acceptable and can address the increasing demands on cancer services for long term follow-up. This paper describes the challenges developing an interactive shared care plan for colorectal cancer follow-up care. Methods A systematic literature review identified the use, functionality, and impact of web-based shared care plans to support cancer follow-up. Workshops with key stakeholders and consultations with clinicians, consumers and information service providers were conducted to agree on a model of care and technology options to interactively share a care plan. Results Seventeen papers reported five web-based shared care plan systems for cancer follow-up. These systems supported the creation and/or access to view or share the care plans using email or by downloading and printing a copy. The challenges we found included issues with the security, privacy and sharing of patient information between public health services and primary health care and poor integration of clinical information systems. We selected a primary care practitioners’ care planning system as it was interactive, integrated with primary care practitioner’ clinical information systems, was relatively inexpensive and addressed the sharing of clinical information with external clinicians to the public health system. Conclusion Primary care shared care planning systems seem a suitable option for sharing clinical information between a cancer service and primary care practitioners. We plan to evaluate the feasibility and acceptability of this interactive shared care plan to support shared cancer follow-up care.

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Gastrointestinal Disease–Specific Survivorship Care: A New Personalized Model Integrating Onco-Wellness

et al. 2021

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Although the number of gastrointestinal (GI) cancer survivors is projected to increase in the coming years, there are currently no survivorship care models that address the specific and growing needs of this population. Current survivorship care models were evaluated to assess their suitability for GI cancer survivors. A survivorship care model based on foundational wellness principles is under development to address the specific needs of GI cancer survivors. This model delivers a cohesive and collaborative care continuum for survivors of different GI malignancies. Oncology providers in GI departments and internal medicine providers in survivorship programs are positioned to provide a comprehensive approach for the care of patients treated with curative intent. Survivorship care is introduced at the conclusion of active treatment in the form of an Onco-wellness consultation, an in-person or telemedicine comprehensive care plan creation and review by our Survivorship Program. Personalized care plan including long term and late effects of treatment, nutrition, physical activity and rehabilitation recommendations, prevention of secondary malignancies and psychosocial needs are reviewed. As patients transition from active treatment to survivorship within the GI Program, the GI Advance Practice Professionals (APPs) are well-positioned to deliver comprehensive survivorship care specific to the GI patient’s needs while integrating recommendations and principles from the Onco-wellness consultation. With projected shortages of both oncology and primary care physicians, such an APP-based model has the potential to bridge gaps in the survivorship care continuum and mutually benefit patients and physicians.

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Survivorship after Treatment of Pancreatic Cancer: Insights Via an Internet-Based Survivorship Care Plan Tool

Cited by 3 publications

References 16 publications

Supportive care needs of people with pancreatic cancer: a literature review

Supportive care needs of people with pancreatic cancer: a literature review

Development of an interactive, web-based shared care plan to facilitate the follow-up care of colorectal cancer patients

Gastrointestinal Disease–Specific Survivorship Care: A New Personalized Model Integrating Onco-Wellness

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