Surviving meningococcal septic shock: Health consequences and quality of life in children and their parents up to 2 years after pediatric intensive care unit discharge

Abstract

Up to 2 yrs after discharge from the pediatric intensive care unit, there is still a considerable effect on health and HR-QoL in children, especially on the physical scales. Severity of illness and chronic complaints negatively affected HR-QoL scales in children. Quite a few mothers suffered from emotional problems.

Functional Outcomes and Physical Impairments in Pediatric Critical Care Survivors: A Scoping Review*

“…HRQOL. HRQOL tools were used to measure various aspects of physical and psychosocial functional outcomes and behavior in pediatric critical care survivors (38,(51)(52)(53)(54)(55)(56)(57). Although HRQOL and functional ability are not identical, they have overlapping constructs and are thus often used interchangeably (61).…”

Meningococcemia in Adults: A Review of the Literature

“…It also causes epidemics in developed and developing countries, with incidence rates varying from 1-1,000 cases per 100,000 population (1,2). N. meningitidis infection was first reported by Vieusseux in 1805, who described the quintessential clinical picture of meningococcemia as 'fièvre cérébrale maligne non contagieuse' (noncontagious malignant cerebral fever) (3).…”

The Generation R study: a candidate gene study and genome-wide association study (GWAS) on health-related quality of life (HRQOL) of mothers and young children

“…With regard to patients with a certain medical condition, clinicians assess the impact of the condition on HRQOL and the factors that determine quality of life in order to find ways for improving the patients' well-being [7][8][9][10]. In the case of intensive or new therapies, clinicians monitor the impact of therapy on HRQOL [11][12][13]. In clinical trials, HRQOL is an outcome measure, complementary to clinical measures and mortality [3].…”