Survey on the Care Burden and Quality of Life in Family Caregivers of Patients Using Home Mechanical Ventilator in Yeongnam Region, Korea

Son, Jung–Woo; Moon, Myung-Hoon; Cho, Mi-Kyung; Yun, Ra-Yu; Huh, Sungchul; Min, June Kee; Moon, Jung-In; Kim, Soo-Yeon

doi:10.18598/kcbot.2020.10.1.04

Cited by 1 publication

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“…Calderón et al (2011) found a significant positive relationship between psychological distress and anxiety due to uncertainties about care, and the psychological burden of care for families caring for patients on mechanical ventilation at home. This finding is in line with the findings of Son et al (2020), Benko et al (2021), and Tsara et al (2006), indicating the importance of training to increase the knowledge and skills of home caregivers, reduce their stress and anxiety, help them play the role of caregiver and better manage the care process, and prepare them to control and cope with the psychological pressures of care. Liu et al (2017) confirmed that considering the educational needs of home caregivers and their ability to adapt to conditions is necessary for reducing the burden of care.…”

Section: Discussionsupporting

confidence: 91%

Effectiveness of a Supportive Program on Caregiver Burden of Families Caring for Patients on Invasive Mechanical Ventilation at Home: An Experimental Study

Esmaeili,

Dehghan Nayeri,

Bahramnezhad

et al. 2023

Creative Nursing

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The prevalence of patients on mechanical ventilation who are being supported at home is increasing. Due to these patients’ complex and chronic conditions, the subjective burden on their family caregivers increases after discharge. The aim of this study was to evaluate the effectiveness of a supportive home care program on the caregiver burden of families caring for patients on invasive mechanical ventilation at home. Sixty patients hospitalized in three university-affiliated hospitals in Tehran, Iran between 7/2020 and 8/2021 were randomly assigned to one of two groups: A supportive home care program, and routine hospital education. The supportive home care program included six educational sessions delivered in the hospital before discharge, and home visits and continued education after discharge. Caregiver burden was measured using the Zarit Burden Interview. Results showed that caregiver burden increased significantly ( p ≥ .001) after discharge without the supportive home care program intervention. Follow-up by nurses after discharge is essential to reduce the psychological burden of caring for patients on invasive mechanical ventilation at home.

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