Survey in people with dementia and their care partners on post‐diagnostic care in memory clinics: Data from the COGNISANCE study

Abstract

Background: Recent literature calls for a focus on providing quality post diagnostic dementia care (Wong & Knapp, 2020). There is dissatisfaction among people with dementia (PwD) and care partners (CP) with post diagnostic dementia support (Hagan, 2020). To improve experiences of post diagnostic support for PwD and CP, it is vital to understand what factors influence their experience of post diagnostic support. Differences between PwD and CP could be used to tailor support to their respective needs and wishes. The aim of the present study is twofold. First, to determine which factors predict the satisfaction with post-diagnostic support for PwD and CP. Second, to compare factors of PwD and CP that shape experiences of post diagnostic support.

Usability and Acceptability of Social Robot Pets Among Community-Dwelling Veterans Living With Dementia and Their Caregivers

“…Satisfaction and benefit scores may have been lower in this evaluation due to not including the patient perspective, as persons living with dementia often report more positive experiences and perceptions compared to caregiver proxy respondents. 29,30 Finally, given that this project was done within the context of a programmatic evaluation, results are not generalizable to other non-Veteran, community-based populations.…”