Surveillance of spinal cord injuries in Utah, USA

Thurman, David J.; Burnett, Cindy; Jeppson, L.; Beaudoin, Denise; Sniezek, Joseph E.

doi:10.1038/sc.1994.107

Cited by 76 publications

(76 citation statements)

References 4 publications

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“…1,[4][5][6]8,[10][11][12][13][14][15][16][17][18][19][20][21][22][23] These studies reveal a wide range of incidences, from 10.4 to 56, which can be explained partly by the different methodologies used (retrospective or prospective, mono-or multicentre surveys). The use of medical coding upon admission to register patients allows for a high level of comprehensiveness but sometimes these codes lack reliability and do not always enable to differentiate new cases from old ones.…”

Section: Incidence Of Scimentioning

confidence: 96%

“…Estimations of SCI incidence vary widely, from 8 to 58 SCI persons per million inhabitants per annum (Table 1). Three types of parameters can account for such wide differences: 12 1978-1981 Taiwan 14.6 R, postinjury acute care Gehrig and Michaelis (1986) 13 1960-1967 Switzerland 13.4 R, postinjury acute care, multicentre Biering-Sorensen et al (1990) 24 1975-1984 Denmark 9.2 R, PMR, multicentre Garcia et al (1991) 25 1984-1985 Spain 8 R, PMR, multicentre Acton et al (1993) 14 1980-1989 USA (Arkansas) 28.5 R, postinjury acute care, multicentre Price et al (1994) 15 1988-1990 USA (Oklahoma) 40 R, postinjury acute care and PMR, multicentre Thurman et al (1994) 16 1989-1991 USA (Utah) 43 R, postinjury acute care and PMR, multicentre Knutsdottir (1993) 17 1973-1982 Iceland 24 P, postinjury acute care and PMR [1983][1984][1985][1986][1987][1988][1989] 18 P, postinjury acute care and PMR Lan et al (1993) 18 1986-1990 Taiwan (rural areas) 56 R, postinjury acute care, multicentre Shingu et al (1994) 4 1990 Japan 39.4 R, postinjury acute care and PMR, multicentre 50. 5 Inclusion of forms of ASIA E Soopramanien (1994) 5 1992-1993 Romania 18.5 R, postinjury acute care, 1 unit 28.…”

Section: Introductionmentioning

confidence: 99%

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Rehabilitation of spinal cord injury in France: a nationwide multicentre study of incidence and regional disparities

Albert

Ravaud

2005

Spinal Cord

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Study design: Multicentre retrospective 1-year survey during 2000. Objectives: To describe the network of physical medicine and rehabilitation units in France that care for people with traumatic spinal cord injuries (SCI), and secondly, to evaluate the incidence of SCI persons who have postinjury rehabilitation care. Setting: Every rehabilitation unit involved in rehabilitation of SCI patients in metropolitan France. Methods: During the first phase of the survey, a questionnaire was used to list the rehabilitation units that treat SCI people among a total of 380 centres. An additional survey was then carried out on a sample of 30 units that did not answer this questionnaire. In the second phase, the units involved were asked about the number of SCI patients received for a first rehabilitation stay during the year 2000 and their demographic and clinical characteristics. The incidence was calculated on the basis of the population census in metropolitan France aged 15 years, above. Results: Of the 275 respondent units, 148 declared that they treat SCI people on a regular or occasional basis. The survey on the sample of 30 randomly selected nonrespondents enabled us to estimate that 10% of the 105 nonrespondent units were concerned. Among the 148 units contributing to the study, 131 identified all the SCI patients received during the year 2000. After a series of adjustments, an extrapolation for all of metropolitan France leads to an annual incidence of 19.4 SCI persons per million inhabitants, or 934 new cases per year. Conclusion: This is the first nationwide survey aiming to estimate the incidence of SCI patients in France. The finding is based on the incidence of SCI persons treated in rehabilitation units. It therefore concerns the incidence of patients who will remain severely disabled. Sponsorship: Association Francophone Internationale des Groupes d'Animation de la Paraple´gie (AFIGAP) and the Institut de Recherche sur la Moelle Epinie`re (IRME) and the Association des Paralyse´s de France (APF).Spinal Cord (2005) 43, 357-365.

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Section: Incidence Of Scimentioning

confidence: 96%

Section: Introductionmentioning

confidence: 99%

Rehabilitation of spinal cord injury in France: a nationwide multicentre study of incidence and regional disparities

Albert

Ravaud

2005

Spinal Cord

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“…17 This definition has been used extensively in trauma registries and surveillance systems to identify SCI. [18][19][20] Data sources Data for this study were gathered from the Alberta Ministry of Health and Wellness, which maintains computerized records of all hospital and medical services in Alberta. 16 The reliability and utility of administrative health care data have been established.…”

Section: Study Locationmentioning

confidence: 99%

Utilization of health services following spinal cord injury: a 6-year follow-up study

et al. 2004

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Study design: Cohort study with 6-years follow-up. Objective: To describe the utilization of health services by persons with spinal cord injury (SCI) and compare it with that of the general population. Setting: Alberta, Canada. Methods: All persons who sustained an SCI in Alberta between April 1992 and March 1994 were followed from date of injury to 6 years postinjury. Cases were matched (1:5) with controls randomly selected from the general population and matched for age, gender, and region of residence. Administrative data from centralized health care databases were compiled to provide a complete picture of health care use, including hospitalizations, physician contacts, long-term care admissions, home care services, and the occurrence of secondary complications. Results: In all, 233 individuals with SCI and 1165 matched controls were followed for 6 years. Compared with the control group, persons with SCI were rehospitalized 2.6 times more often, spent 3.3 more days in hospital, were 2.7 times more likely to have a physician contact, and required 30 times more hours of home care services. Of those with SCI, 47.6% were treated for a urinary tract infection, 33.8% for pneumonia, 27.5% for depression, and 19.7% for decubitus ulcer. Conclusion: SCI places a heavy burden on the health care system. Persons with SCI have greater rates of contact with the health system compared with the general population. Secondary complications continue to affect persons with SCI long after the acute trauma.

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“…3 PedSCI is reported to be rare. [4][5][6][7][8][9][10][11][12][13][14] A low incidence and prevalence may result in scattered experiences in treatment and a low priority given to development of research and care programs. 15 Thus, there is a need for increased exchange of information, experiences and best practice between countries.…”

Section: Introductionmentioning

confidence: 99%

Pediatric spinal cord injury in a subset of European countries

2005

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Study design: Postal survey. Setting: A total of 19 countries in Europe. Objectives: Firstly, to collect information about incidence and systems of care for pediatric spinal cord injury (pedSCI); including prevention, initial care and follow-up in a subset of European countries. Secondly, to initiate a network of involved professionals for exchange of information and development of research and care programs. Methods: A short semi-structured questionnaire was sent to respondents working with spinal cord injury (SCI) in 19 countries in Europe. Results: Only in Portugal and Sweden, is the incidence of pedSCI (fatal injuries included) established, that is 27 children/million children/year and 4.6 children/million children/year, respectively. For the other countries, the estimated incidence of pedSCI (nonfatal injuries) varied from 0.9 to 21.2 children/million children/year in the age group of 0-14 years. Although the incidence varies considerably, pedSCI is rare throughout Europe. The management differs between the countries depending on the age of the child and the local organization of health care. Conclusions: The survey confirms that pedSCI is rare. In order to establish high-quality standardized care, further integration of knowledge in this area is needed throughout Europe. The contacts initiated by this survey may be used to create an international network serving as a reference for health professionals, researchers and families, thereby possibly alleviating some of the unwanted variations of care identified in this study.

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Surveillance of spinal cord injuries in Utah, USA

Cited by 76 publications

References 4 publications

Rehabilitation of spinal cord injury in France: a nationwide multicentre study of incidence and regional disparities

Rehabilitation of spinal cord injury in France: a nationwide multicentre study of incidence and regional disparities

Utilization of health services following spinal cord injury: a 6-year follow-up study

Pediatric spinal cord injury in a subset of European countries

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