Surrogate Decision Making for Patients With Severe Traumatic Brain Injury

Long, Bronwyn; Clark, Lauren; Cook, Paul F.

doi:10.1097/jtn.0b013e31823a453a

Cited by 15 publications

(20 citation statements)

References 26 publications

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“…During the course of a patient's stay in the ICU, family members must often assume responsibility over health‐related decision making, including choices about diagnostics, treatment and therapeutic care. Family member involvement in decision making was the subject of 7 quantitative and 10 qualitative studies . Amongst the qualitative studies, five use in‐depth interviews to explore how surrogate‐decision‐makers participate in decision making around life support .…”

Section: Resultsmentioning

confidence: 99%

Patient and family involvement in adult critical and intensive care settings: a scoping review

Olding

McMillan

Reeves

et al. 2015

Health Expectations

190

197

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BackgroundDespite international bodies calling for increased patient and family involvement, these concepts remain poorly defined within literature on critical and intensive care settings.ObjectiveThis scoping review investigates the extent and range of literature on patient and family involvement in critical and intensive care settings. Methodological and empirical gaps are identified, and a future agenda for research into optimizing patient and family involvement is outlined.MethodsSearches of MEDLINE, CINAHL, Social Work Abstracts and PsycINFO were conducted. English‐language articles published between 2003 and 2014 were retrieved. Articles were included if the studies were undertaken in an intensive care or critical care setting, addressed the topic of patient and family involvement, included a sample of adult critical care patients, their families and/or critical care providers. Two reviewers extracted and charted data and analysed findings using qualitative content analysis.FindingsA total of 892 articles were screened, 124 were eligible for analysis, including 61 quantitative, 61 qualitative and 2 mixed‐methods studies. There was a significant gap in research on patient involvement in the intensive care unit. The analysis identified five different components of family and patient involvement: (i) presence, (ii) having needs met/being supported, (iii) communication, (iv) decision making and (v) contributing to care.ConclusionThree research gaps were identified that require addressing: (i) the scope, extent and nature of patient involvement in intensive care settings; (ii) the broader socio‐cultural processes that shape patient and family involvement; and (iii) the bidirectional implications between patient/family involvement and interprofessional teamwork.

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Section: Resultsmentioning

confidence: 99%

Patient and family involvement in adult critical and intensive care settings: a scoping review

Olding

McMillan

Reeves

et al. 2015

Health Expectations

190

197

View full text Add to dashboard Cite

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“…Various studies have focused on surrogate decision‐making families involved in withdrawing or withholding life‐sustaining treatment . Meeker and Jezewski performed a metasynthesis of studies on family experiences in withdrawal of life‐sustaining treatment.…”

Section: Introductionmentioning

confidence: 99%

Thinking about the patient's wishes: practical wisdom of discharge planning nurses in assisting surrogate decision‐making

Kobayashi

Asano

2017

Scandinavian Caring Sciences

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“…22,35,37,40,44,47 SDMs often feel confident and comfortable making decisions on behalf of their ill family members when they know the person’s wishes. 42 Several SDMs said, “Making the decision to stop treatment was easy, I firmly knew her wishes!” and “My mom’s living will made it clear what she wanted.” 22(p268) However, in a recent study including ethnically diverse SDMs, many adult children reported lack of knowledge regarding their parents’ EOL wishes/preferences due to lack of discussions.…”

Section: Resultsmentioning

confidence: 99%

“…26,27,33,35,39,44,45 SDMs often report that their strength or hope comes from faith or religion 20,32,37,40 and final outcomes are in God’s hands. 32 Moreover, some SDMs choose what they prefer: “And even though my mother was in that kind of shape, I didn’t really want to give her up—selfishly, I did not.” 36(p334) SDMs’ financial situation, own health status, and other responsibilities including taking care of their own family may also influence their decision making.…”

Section: Resultsmentioning

confidence: 99%

Ethical frameworks for surrogates’ end-of-life planning experiences

2016

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Despite the growing body of knowledge about surrogate decision making, we know very little about the use of ethical frameworks including ethical theories, principles, and concepts to understand surrogates’ day-to-day experiences in end-of-life care planning for incapacitated adults. This systematic review of 30 qualitative research papers was conducted to identify the types of ethical frameworks used to address surrogates’ experiences in end-of-life care planning for incapacitated adults as well as the most common themes or patterns found in surrogate decision making research.. Seven papers explicitly identified ethical theories, principles, or concepts for their studies, such as autonomy, substituted judgment, and best interests. Themes identified about surrogate decision making included: responsibilities and goals, factors affecting surrogates’ decision making, and outcomes for surrogates. In fact, an overarching theme of “wanting to do the right thing” for incapacitated adults and/or themselves was prominent. Understanding the complexity of surrogates’ experiences of end-of-life care planning is beyond the scope of conventional ethical frameworks. Ethical frameworks that address individuality and contextual variations related to decision making may more appropriately guide surrogate decision making research that explores surrogates’ end-of-life care planning experiences.

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Surrogate Decision Making for Patients With Severe Traumatic Brain Injury

Cited by 15 publications

References 26 publications

Patient and family involvement in adult critical and intensive care settings: a scoping review

Patient and family involvement in adult critical and intensive care settings: a scoping review

Thinking about the patient's wishes: practical wisdom of discharge planning nurses in assisting surrogate decision‐making

Ethical frameworks for surrogates’ end-of-life planning experiences

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