Supportive Roles of the Health Care Team Throughout the Illness Trajectory of Bladder Cancer Patients Undergoing Radical Cystectomy: A Qualitative Study Exploring the Patients’ Perspectives

Designing a Pragmatic Intervention to Help Improve the Bladder Cancer Patient Experience

“…We identified a need for more structured information regarding the effects of BC treatments on HRQoL, as well as better patient-clinician relationships and psychological support. Interestingly, a recent study by Rammant et al 21 based on 16 interviews with BC patients who underwent cystectomy also concluded that healthcare professionals play a critical role in providing information and psychological support during the BC patient pathway, including the postoperative phase where specific problems require additional information and practical guidance. 21 Qualitative analyses of our phase 2 focus groups also noted that information on the type of services and support is needed to improve the BC patient experience.…”

“…Interestingly, a recent study by Rammant et al 21 based on 16 interviews with BC patients who underwent cystectomy also concluded that healthcare professionals play a critical role in providing information and psychological support during the BC patient pathway, including the postoperative phase where specific problems require additional information and practical guidance. 21 Qualitative analyses of our phase 2 focus groups also noted that information on the type of services and support is needed to improve the BC patient experience. Due to the current lack of wellbeing interventions specifically designed for BC patients, this phase was crucial in understanding the optimal structure, content, and delivery method of our intervention.…”

Information needs in patients with bladder cancer undergoing radical cystectomy – A qualitative review with thematic synthesis

“…The two most important reasons for patients to be able to absorb the information before or during treatments were that there was enough time set aside and that they felt confidence in the person who gave the information. Stress was a contributing factor to information not being able to be taken in Klein et al, 2021;Rammant et al, 2021), and the patient felt that there was no room to ask questions. This was a contributing factor to the patient's lack of participation (Garg et al, 2018;.…”

“…For this to happen, the staff needed to understand what information was relevant to provide at the right time for the individual. When this did not occur, the patient's information needs were not met (Garg et al, 2018;Mohamed et al, 2014;Rammant et al, 2021;Smith et al, 2019). Alternative sources of information were used to create security and confidence and helped to fill the information gap and the unmet information needs (Klein et al, 2021;McMullen et al, 2019).…”

“…The importance of health care staff knowing that information needed to come from different sources was crucial to meet the patients' information needs. It provided a holistic perspective that led to patients feeling safe (McMullen et al, 2019;Rammant et al, 2021).…”