Supportive nursing care for family caregivers – A retrospective nursing file study

Driel, Anne Geert van; Becqué, Yvonne N.; Rietjens, Judith; Heide, Agnes van der; Witkamp, Frederika E.

doi:10.1016/j.apnr.2021.151434

Cited by 2 publications

(1 citation statement)

References 18 publications

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“…Family caregivers do not have their own assessment and care plan separate from the patient’s care plan, and family caregivers’ assessment was often undocumented. Therefore, family caregivers remain ‘invisible’ in administrative systems and do not get the full attention they deserve [ 17 , 35 , 36 ].…”

Section: Discussionmentioning

confidence: 99%

How nurses support family caregivers in the complex context of end-of-life home care: a qualitative study

et al. 2021

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Background Family caregivers are crucial in providing end-of-life care at home. Without their care, it would be difficult for many patients to die at home. In addition to providing care, family caregivers also need support for themselves. Nurses could play an important role in supporting family caregivers, but little is known about if and how they do so. The aim of this study is to explore how nurses currently approach and support family caregivers in end-of-life home care and which factors influence their support of family caregivers. Methods Data were collected using semi-structured interviews with 14 nurses from nine home care organisations in the Netherlands, in 2018. Interviews were audio-taped, transcribed verbatim and analysed using a thematic analysis approach. Results We identified two underlying nursing perspectives on supporting family caregivers: an instrumental perspective (seeing family caregivers mostly as collaborative partners in care) and a relational perspective (seeing family caregivers as both providing and needing support). All the interviewed nurses stated that they pay attention to family caregivers’ needs. The activities mentioned most often were: identification of support needs, practical education, support in decision-making about the patient’s treatment, emotional support, and organising respite care, such as night care, to relieve the family caregiver. The provision of support is usually based on intuition and experience, rather than on a systematic approach. Besides, nurses reported different factors at the individual, organisational and societal levels that influenced their support of family caregivers, such as their knowledge and experience, the way in which care is organised, and laws and regulations. Conclusions Nurses tend to address family caregivers’ needs, but such care was affected by various factors at different levels. There is a risk that nursing support does not meet family caregivers’ needs. A more reflective approach is needed and evidence-based needs assessment tools may help nurses to systematically assess family caregivers’ needs and to provide appropriate support.

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Section: Discussionmentioning

confidence: 99%

How nurses support family caregivers in the complex context of end-of-life home care: a qualitative study

et al. 2021

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Avaliação da Implementação do Modelo de Acompanhamento aos Familiares Cuidadores

França,

Festa,

Santos

et al. 2023

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Enquadramento: o apoio prestado pelos enfermeiros aos familiares cuidadores na transição para o papel, acarreta desafios na preparação para a mestria no cuidar e no processo documental. Os sistemas de informação devem ser uma ferramenta imprescindível na tomada de decisão destes profissionais, permitindo a continuidade e qualidade dos cuidados prestados e a obtenção de ganhos em saúde. Objetivo: avaliar as mudanças na documentação dos enfermeiros relativa aos familiares cuidadores, após intervenção. Metodologia: estudo quase-experimental antes e após intervenção, com recurso à consulta da documentação realizada pelos enfermeiros nas suas atividades com os familiares cuidadores. Resultados: os focos do Papel de Prestador de cuidados revelam aumento significativo na fase final, bem como os enunciados de diagnóstico que envolvem o Papel de Prestador de Cuidados. As intervenções mais documentadas mantem-se as do tipo Avaliar e Ensinar, mas este aumento não é significativo. As intervenções do tipo Incentivar revelam-se marginalmente significativas e as do tipo Treinar e Instruir apresentam uma diminuição estatisticamente significativa. Conclusão: o estudo revelou melhorias nas áreas do Papel de Prestador de cuidados, no entanto ainda revela áreas de subnotificação do cuidador, com necessidade de um investimento superior.

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Supportive nursing care for family caregivers – A retrospective nursing file study

Cited by 2 publications

References 18 publications

How nurses support family caregivers in the complex context of end-of-life home care: a qualitative study

How nurses support family caregivers in the complex context of end-of-life home care: a qualitative study

Avaliação da Implementação do Modelo de Acompanhamento aos Familiares Cuidadores

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