Supporting young people in their transition to adults’ services: summary of NICE guidance

Singh, Swaran P.; Anderson, Beth; Liabo, Kristin; Ganeshamoorthy, Thines

doi:10.1136/bmj.i2225

Cited by 60 publications

(52 citation statements)

References 2 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Several transition programmes and guidelines have been developed over the past decade to support the process , Hilderson et al 2016 Institute for Health and Care Excellence (NICE) 2016, Singh et al 2016, Foster et al 2017. These transition programmes result in better quality of life, increased knowledge and satisfaction for adolescents, and better prevocational readiness (Robertson et However, implementation of transitional care is not widespread in routine clinical practice for young people with chronic diseases, including juvenile-onset rheumatic and musculoskeletal diseases (jRMDs) (Clemente et al 2016, Hilderson et al 2016, Foster et al 2017.…”

Section: Open Accessmentioning

confidence: 99%

“…These transition programmes result in better quality of life, increased knowledge and satisfaction for adolescents, and better prevocational readiness (Robertson et However, implementation of transitional care is not widespread in routine clinical practice for young people with chronic diseases, including juvenile-onset rheumatic and musculoskeletal diseases (jRMDs) (Clemente et al 2016, Hilderson et al 2016, Foster et al 2017. Despite the availability of transition programmes for these young people, half of them do not make a successful transfer and they are often inadequately supported during the transition process (Hazel et al 2010, Chanchlani et al 2015, Singh et al 2016, Foster et al 2017.…”

Section: Open Accessmentioning

confidence: 99%

“…A transition coordinator is essential, as is good collaboration between children's evidence & practice / research and adult's services (Singh et al 2016, Foster et al 2017.…”

Section: Open Accessmentioning

confidence: 99%

“…This will teach young people skills necessary for a successful transition and help them to cope with their disease later in life (Robertson et al 2006, Wells et al 2012. A transition plan is also recommended by NICE (2016) (Singh et al 2016). Many studies support the transition process starting early, ideally at the beginning of adolescence (11-12 years) and at the latest by the age of 14 (White 2002, McDonagh 2008, Hilderson et al 2013, Nagra et al 2015, Foster et al 2017.…”

Section: Write For Usmentioning

confidence: 99%

“…Studies have shown the importance of transition coordinators in guiding young people and ensuring all their transition needs are met (Betz et al 2007, Crowley et al 2011, NICE 2016, Singh et al 2016. This role is best fulfilled by nurse specialists as they are trained to address young people's physical, psychosocial and educational needs , Nagra et al 2015 and they can improve transition outcomes (Betz and Redcay 2005).…”

Section: Write For Usmentioning

confidence: 99%

See 4 more Smart Citations

Development of a clinical transition pathway for adolescents in the Netherlands

Walter

Hazes

Dolhain

et al. 2017

Nursing Children and Young People

View full text Add to dashboard Cite

Aims To explore how young people with juvenile-onset rheumatic and musculoskeletal diseases (jRMDs) and their parent(s) experience care during preparation for the upcoming transfer to adult services, and to develop a clinical transition pathway.Method A survey was conducted with 32 young people aged between 14 and 20 years with jRMDs, and their parents (n=33), treated at the department of paediatric rheumatology in a tertiary care children's hospital in the Netherlands.Results More than 30% of young people would have liked to discuss topics such as educational and vocational choices in a clinic, but did not get the opportunity. Preparation for transition was poor as was training in self-management skills. One third of parents had feelings of anxiety about the upcoming transfer. Results from the survey and evidence-based principles of transitional care were used to develop the clinical transition pathway. The pathway focuses on starting transition early, developing self-management skills, joint consultations and supporting parents in giving young people control of their clinical care.Conclusion Care does not currently meet the needs of young people in the process of transition to adult rheumatology services. The clinical transition pathway developed as a result of the study is a tool that may improve this process.

show abstract

Section: Open Accessmentioning

confidence: 99%

Section: Open Accessmentioning

confidence: 99%

“…A transition coordinator is essential, as is good collaboration between children's evidence & practice / research and adult's services (Singh et al 2016, Foster et al 2017.…”

Section: Open Accessmentioning

confidence: 99%

Section: Write For Usmentioning

confidence: 99%

Section: Write For Usmentioning

confidence: 99%

See 3 more Smart Citations

Development of a clinical transition pathway for adolescents in the Netherlands

Walter

Hazes

Dolhain

et al. 2017

Nursing Children and Young People

View full text Add to dashboard Cite

show abstract

Transition Services for Children and Young Adults with Movement Disorders: A Survey by the MDS Task Force on Pediatrics

Batla

Lin

Sahu

et al. 2022

Movement Disord Clin Pract

View full text Add to dashboard Cite

Background There is currently very limited data related to transition services for movement disorders. Objectives Movement Disorders Society (MDS) Task Force on Pediatrics conducted a survey of current provision of transition for young adults with movement disorders. Methods The survey questionnaire was based on review of available evidence, with questions designed to capture service location, transition clinic structure, and core issues discussed. The questionnaire was digitalized as an online survey and sent to all members of the MDS. Results Responses were received from a total of 252 MDS members representing 67 countries. Of the responders, 59% confirmed that they provided transition clinics for adolescents with movement disorders. Overall, there was some consensus regarding transition services in terms of patient age at transition, movement disorder etiologies, staffing the service, and medical/social issues discussed. Conclusion This survey provides first‐hand data of existing movement disorder transition services and provides useful insights on transition clinics.

show abstract

Medical Systems, Patient-Provider Relationships, and Transition of Care

Wicklow

Sellers

2020

Behavioral Diabetes

View full text Add to dashboard Cite

Supporting young people in their transition to adults’ services: summary of NICE guidance

Cited by 60 publications

References 2 publications

Development of a clinical transition pathway for adolescents in the Netherlands

Development of a clinical transition pathway for adolescents in the Netherlands

Transition Services for Children and Young Adults with Movement Disorders: A Survey by the MDS Task Force on Pediatrics

Medical Systems, Patient-Provider Relationships, and Transition of Care

Contact Info

Product

Resources

About