Abstract:The aim of this paper is to develop an understanding of supporting people who identify as LGBT and who have a learning disability through alignment of lived experiences and an exploration of the existing literature. Evidence indicate barriers to people with learning disabilities obtaining and maintaining loving relationship, this is particularly the case for those identify with an LGBT community.A twitter chat, and subsequent exploration of the literature indicate themes in UK policy and legal frameworks, infl… Show more
“…Achieving self-actualisation and fulfilment can be realised through the loving companionship that a relationship provides. Feelings of belonging which intimacy can offer is an essential part of human growth (Robinson et al 2020). While it is acknowledged that discrimination and social exclusion are key factors in the lives of the general LGBT+ community, providing health and social care to non-heterosexual adults with intellectual disabilities, brings with it an added need to balance rights, responsibility, and risk.…”
Section: Discussionmentioning
confidence: 99%
“…Policy-makers, commissioners, and service providers must acknowledge the importance of these communities when designing local strategies. In addition, as part of innovatory local policies, provider agencies need to encourage their staff towards positive risk-taking (Robinson et al 2020). Introducing mentoring programmes which draw on members of the gay community without intellectual disabilities, who are willing to support service users to access 'gay spaces,' is one way of achieving this.…”
Section: Discussionmentioning
confidence: 99%
“…Shared narratives can have a twofold benefit in that the individual is an expert in their own experience, their story can inform staff training, as well as fellow group members. Exchanging experiences about sex in a group is a more relaxed way of exploring sexual orientation and gender identity (Robinson et al 2020). Groups provide a forum through which sexuality can be discussed as part of ordinary life, and where information and guidance on sexual practice is made available.…”
Section: Promoting Self-worth Through Positive Representationmentioning
confidence: 99%
“…Additionally, 80 per cent of trans people who tried to engage with gender identity clinics were left feeling upset. There is a perception among the general LGBT+ populace that health inequalities are the consequence of prejudice on the part of health professionals-notably relating to gender identity-and are liable for causing higher rates of mental distress (Robinson et al 2020). These barriers mean non-heterosexual people with intellectual disabilities need additional support.…”
Section: Promoting Self-worth Through Positive Representationmentioning
confidence: 99%
“…Until relevantly recently, anti-libidinal medication was used by staff to control sexual expressions in people with intellectual disabilities, rather than teaching boundaries. Support staff failed to respect the self-determination of the individual denying them the right to engage in meaningful relationships (Leven 2021;Robinson et al 2020). In the present day, some agencies persist in stigmatising homosexuality and same-sex intimacy, regarding the subject as interdicted (Bates 2018;Maguire et al 2019).…”
Section: From Asylums To Safeguarding: the Changing Face Of Controlmentioning
“…Achieving self-actualisation and fulfilment can be realised through the loving companionship that a relationship provides. Feelings of belonging which intimacy can offer is an essential part of human growth (Robinson et al 2020). While it is acknowledged that discrimination and social exclusion are key factors in the lives of the general LGBT+ community, providing health and social care to non-heterosexual adults with intellectual disabilities, brings with it an added need to balance rights, responsibility, and risk.…”
Section: Discussionmentioning
confidence: 99%
“…Policy-makers, commissioners, and service providers must acknowledge the importance of these communities when designing local strategies. In addition, as part of innovatory local policies, provider agencies need to encourage their staff towards positive risk-taking (Robinson et al 2020). Introducing mentoring programmes which draw on members of the gay community without intellectual disabilities, who are willing to support service users to access 'gay spaces,' is one way of achieving this.…”
Section: Discussionmentioning
confidence: 99%
“…Shared narratives can have a twofold benefit in that the individual is an expert in their own experience, their story can inform staff training, as well as fellow group members. Exchanging experiences about sex in a group is a more relaxed way of exploring sexual orientation and gender identity (Robinson et al 2020). Groups provide a forum through which sexuality can be discussed as part of ordinary life, and where information and guidance on sexual practice is made available.…”
Section: Promoting Self-worth Through Positive Representationmentioning
confidence: 99%
“…Additionally, 80 per cent of trans people who tried to engage with gender identity clinics were left feeling upset. There is a perception among the general LGBT+ populace that health inequalities are the consequence of prejudice on the part of health professionals-notably relating to gender identity-and are liable for causing higher rates of mental distress (Robinson et al 2020). These barriers mean non-heterosexual people with intellectual disabilities need additional support.…”
Section: Promoting Self-worth Through Positive Representationmentioning
confidence: 99%
“…Until relevantly recently, anti-libidinal medication was used by staff to control sexual expressions in people with intellectual disabilities, rather than teaching boundaries. Support staff failed to respect the self-determination of the individual denying them the right to engage in meaningful relationships (Leven 2021;Robinson et al 2020). In the present day, some agencies persist in stigmatising homosexuality and same-sex intimacy, regarding the subject as interdicted (Bates 2018;Maguire et al 2019).…”
Section: From Asylums To Safeguarding: the Changing Face Of Controlmentioning
Introduction
People with intellectual and developmental disabilities under the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) have the right to access sexual health services including information, education, and support. Little is known about the capacity of sexual health professionals to provide these services.
Methods
Using an observational research design, this study utilised a descriptive survey tool (PASH–Ext) that also encompassed a standardised measure, with a cross-sectional purposive sample of 52 Australian sexual health professionals. Data was collected in 2020.
Results
Just over half of the participants reported having received training in their preservice education to work with people with intellectual and developmental disabilities, of these 60% held the view that people with intellectual and developmental disabilities would not feel embarrassed receiving sexual health information and support.
Conclusion
The study found that training is both important to the professionals’ preparedness to work with people with intellectual and developmental disabilities, and that these professionals advocate for the continuation of this training in pre-service courses and additional training in post service education for sexual health workers.
Policy Implications
To progressively realise Article 25 of the UNCRPD signatory, countries need to ensure sexual health services are accessible to people with intellectual and developmental disabilities. This study recommends that sexual health policy addresses equity of access for people with intellectual and developmental disability by ensuring all staff are prepared and supported to provide these services.
AimThis paper explains how we created the Global Intellectual Disability Nurse Research Collaboratory (GIDNRC), a transformative network. The GIDNRC aims to make improvements in the understanding, research, policy, clinical care, and support provided to people with an intellectual disability.BackgroundIn 2022, the World Health Organization (WHO) called upon healthcare leaders internationally to take actions to promote more equal healthcare for disabled persons. This paper promotes the GIDNRC as a way for professionals to work together to make more equal healthcare throughout the world for people with intellectual disabilities.Sources of evidenceWe created this paper by reviewing peer‐reviewed literature and research, international policies, and nursing networking initiatives.DiscussionThis paper explores current policy, research, and practice issues that formed the basis of beginning the GIDNRC, including how the COVID‐19 pandemic changed care.ConclusionNurses are over 50% of the world's health workforce. Therefore, they have the potential to make a large impact in making care for people with intellectual disability much more equal than currently exists throughout the world. However, barriers exist. Forming the GIDNRC, as well as using the World Wide Web, offers an opportunity to address barriers to this goal.Implications for nursing practiceNurses can address the needs of people with intellectual disability in their daily nursing practice. The GIDNRC aims to strengthen these clinical skills, understand how care may vary throughout the world, and share knowledge, good practices, and new ways to approach care for people with an intellectual disability worldwide.Implications for nursing policyInternational nursing policy should actively focus on the needs of people with intellectual disabilities and the role nurses play in addressing these health needs. The GIDNRC may provide an important way to achieve developments in this policy.
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