Supporting people with AIDS and their carers in rural South Africa: Possibilities and challenges

Campbell, Catherine; Nair, Yugi; Maimane, Sbongile; Sibiya, Zweni

doi:10.1016/j.healthplace.2007.10.002

Cited by 64 publications

(52 citation statements)

References 32 publications

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“…The Entabeni Project (Campbell, Gibbs, Maimane, & Nair, 2008;Campbell, Gibbs, Maimane, Nair, & Sibiya, 2009;Campbell, Nair, Maimane, & Nicholson, 2007;Campbell, Nair, Maimane, & Sibiya, 2008; was established by an alliance of grassroots health volunteers in a South African rural community, and HIVAN, a university-based NGO two hours drive away. Entabeni has minimal access to roads, electricity and clean water, some distance from towns or formal health facilities, with 35% of pregnant women HIV positive.…”

Section: The Entabeni Projectmentioning

confidence: 99%

How Can Community Health Programmes Build Enabling Environments for Transformative Communication? Experiences from India and South Africa

2011

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Whilst much research has examined how to empower poor community members to identify the social roots of health problems and articulate demands for health-enabling living conditions, less is known about how to create receptive social environments where the powerful are likely to heed the voices of the poor. This paper seeks to characterise the social environments in which community-led health programmes are most likely to facilitate effective and sustainable health improvements, using three dimensions to characterise social contexts: women to deliver home-based nursing to people with AIDS. Whilst it performed a vital shortterm welfare function, it did not achieve its goals of leadership by local participants and longterm sustainability. By contrast, the Sonagachi Project in India, which started as an HIVprevention programme targeting female sex workers, has achieved both these outcomes. We examine the way in which pre-existing social contexts in West Bengal and rural KwaZuluNatal impacted on the possibility of effective mobilisation of excluded women in each case.We also highlight the strategies through which Sonagachi, but not Entabeni, was able to alter aspects of the material, symbolic and relational contexts of participants' communities in ways that opened up significant opportunities for project participants to articulate and assert their needs, and motivated powerful actors and groups to heed these demands.

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Section: The Entabeni Projectmentioning

confidence: 99%

How Can Community Health Programmes Build Enabling Environments for Transformative Communication? Experiences from India and South Africa

2011

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“…The predominance of women is consistent with a general unwillingness by Entabeni men to engage in AIDS-related issues (Campbell et al, 2008a;Campbell, Nair, Maimane & Gibbs, 2008d). To achieve a diverse range of views of the project, discussants were purposively selected across two groups.…”

Section: Research Informants and Samplingmentioning

confidence: 99%

“…Project evolved out of a 2-year research process into community responses to HIV/AIDS in Entabeni 2 (Campbell, Nair, Maimane & Sibiya, 2008a), followed by a consultation process where researchers and the community jointly formulated the project plan (Campbell, Nair, Maimane & Sibiya, 2008b). The resulting 3-year project worked to strengthen grassroots responses to HIV/AIDS in three ways.…”

Section: Introductionmentioning

confidence: 99%

Hearing community voices: grassroots perceptions of an intervention to support health volunteers in South Africa

Campbell

Gibbs

Maimane

et al. 2008

SAHARA-J: Journal of Social Aspects of HIV/AIDS

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With the scarcity of African health professionals, volunteers are earmarked for an increased role in HIV/AIDS management, with a growing number of projects relying on grassroots community members to provide home nursing care to those with AIDS -as part of the wider task-shifting agenda. Yet little is known about how best to facilitate such involvement. This paper reports on community perceptions of a 3-year project which sought to train and support volunteer health workers in a rural community in South Africa. Given the growing emphasis on involving community voices in project research, we conducted 17 discussions with 34 community members, including those involved and uninvolved in project activities -at the end of this 3-year period. These discussions aimed to elicit local people's perceptions of the project, its strengths and its weaknesses. Community members perceived the project to have made various forms of positive progress in empowering volunteers to run a more effective home nursing service. However, discussions suggested that it was unlikely that these efforts would be sustainable in the long term, due to lack of support for volunteers both within and outside of the community. We conclude that those seeking to increase the role and capacity of community volunteers in AIDS care need to make substantial efforts to ensure that appropriate support structures are in place. Chief among these are: sustainable stipends for volunteers; commitment from community leaders and volunteer team leaders to democratic ideals of project management; and substantial support from external agencies in the health, welfare and NGO sectors. Keywords: Evaluation, home-based care, volunteers, task shifting, participation, stipends, leadership. RésuméEtant donnée la rareté des professionnels africains de la santé, les volontaires sont destinés à des rôles de plus en plus importants dans la gestion du VIH/SIDA, avec un nombre croissant de projets reposant sur les membres des communautés de base pour qu'ils fournissent des soins à domicile à ceux vivant avec le SIDA -dans le cadre d'un agenda plus large de transfert des taches. Pourtant, on sait très peu comment faciliter au mieux cette implication. Cet article rend compte des perceptions de la communauté d'un projet de 3 ans qui visait à former et à appuyer les travailleurs volontaires de la santé dans une communauté rurale en Afrique du Sud. Etant donnée l'attention croissante accordée à l'implication de la parole des communautés dans l' étude du projet, nous avons organisé 17 discussions avec 34 membres de la communauté, y compris ceux qui sont impliqués dans des activités du projet et ceux qui ne le sont pas -à la fin de la période de 3 ans. Ces discussions visaient à obtenir les perceptions des personnes locales sur le projet, ses forces et ses faiblesses. Les membres de la communauté ont perçu le projet comme un projet ayant permis diverses formes de progrès positifs dans l'habilitation des volontaires à gérer un service de soin à domicile plus efficace. Cependant, les...

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“…Similar findings were noted by Van Graan et al (2007) where (91.6%) of subjects were knowledgeable about HBC and 88.7% showed favorable attitude towards HBC services. The home caregivers group is the most vital resource in relation to HIV/AIDS management in villages as it is the promising group to lead community-led effort to facilitate more effective local response to HIV/AIDS (Campbell et al, 2007). The results of this study showed that discrimination is considered as favoritism and tribalism not as rejection due to HIV status.…”

Section: Discussionmentioning

confidence: 82%

“…Namibian's high risk for HIV/AIDS groups includes mobile populations (migrant workers and truck drivers), young women and girls along transportation routes, sexually active youth, uniformed service members and commercial sex workers (Namibian MOHSS, 2006;Campbell et al, 2007).…”

Section: Introductionmentioning

confidence: 99%

People living with HIV/AIDS and the utilization of home-based care services

Oguntibeju¹,

Ndalambo²,

Mokgatle-Nthabu³

2011

Afr. J. Microbiol. Res.

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Supporting people with AIDS and their carers in rural South Africa: Possibilities and challenges

Cited by 64 publications

References 32 publications

How Can Community Health Programmes Build Enabling Environments for Transformative Communication? Experiences from India and South Africa

How Can Community Health Programmes Build Enabling Environments for Transformative Communication? Experiences from India and South Africa

Hearing community voices: grassroots perceptions of an intervention to support health volunteers in South Africa

People living with HIV/AIDS and the utilization of home-based care services

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