Supporting Families in Reviewing and Communicating about Radiology Imaging Studies

Hong, Matthew K.H.; Feustel, Clayton; Agnihotri, Meeshu; Silverman, Max; Simoneaux, Stephen F.; Wilcox, Lauren

doi:10.1145/3025453.3025754

Cited by 34 publications

(39 citation statements)

References 30 publications

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“…While imaging results and their interpretation was the least mentioned theme in the general themes categories of phase 1, it was the second most common theme in the explicit fear-related themes in phase 4. Patients' worries, complaints and concerns regarding radiological reports have been previously described (Bossen, Hageman, King, & Ring, 2013;Hong et al, 2017;Stewart & Loftus, 2018). Medical jargon, specifically if contained in imaging results, is often threatening to patients, and may be misinterpreted and negatively affect their emotions.…”

Section: Discussionmentioning

confidence: 99%

Individuals with back and neck pain on medical forums: What do they mention? What do they fear?

Mintz

Weisman

Springer

et al. 2020

European Journal of Pain

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Background: The use of online medical forums is on the rise globally. Data scraping is a method of extracting website content using an automated computer program. We scraped users' questions regarding back and neck pain (BNP) from popular Israeli online medical forums. We aimed to identify the sort of questions being asked about BNP, and to analyse explicit themes that characterize their questions. Methods: Six leading Israeli BNP forums were identified. In phase 1, Python scripts scraped 12,418 questions into a data set. In phase 2-five themes were identified: Surgery (n = 2,957); health care professions (n = 2,361); Sports (n = 2,304); drugs (n = 1,419) and interpretation of imaging (n = 845). Phase 3-included the categorization of explicit fear-related words by the authors. Phase 4-analysis of explicit fear-related themes yielded 402 questions. Results: Gender was identified for 394 users, and age was identified for 181 users. A total of 248 users (61.6%) were women and 146 men (36.3%). Mean age 36.3 ± 16.15 for women and 35.5 ± 16.1 for men. The most commonly expressed fears were related to: invasive procedures, 30.9% (131 questions); fear of serious condition or misdiagnosis, 17.0% (72 questions); General concerns, 13.7% (58 questions); fear of worsening or relapse, 12.3% (52 questions); adverse effects of oral drugs or radiation, 10.8% (46 questions) and concerns related to lifestyle, 9.7% (41 questions). Conclusions: Web scraping is a feasible strategy with which to explore medical forums and the above-mentioned themes, all of which are of potential clinical significance. Significance: Using automated algorithms, a total of 12,369 questions from online back and neck medical forums were scraped and analysed. Secondary analysis categorized fear-related themes that were mentioned by users. Identifying and addressing patients' fear has potential to improve communication and therapeutic outcome. For example, questions regarding surgery were typically asked after the option was mentioned by a physician. This insight should encourage physicians to devote extra time explaining the possible implications of surgery, should they consider it as an option.

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Section: Discussionmentioning

confidence: 99%

Individuals with back and neck pain on medical forums: What do they mention? What do they fear?

Mintz

Weisman

Springer

et al. 2020

European Journal of Pain

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“…To improve care delivery and outcomes, researchers have started to investigate the needs of supporting caregivers of patients with chronic illness with technology-mediated interventions (11). Studies have examined how caregivers effectively manage health information with a variety of tools, such as handling applications for reviewing test results (19), tracking patient health information (20)(21)(22)(23), or managing pain using smartphone-based diaries on behalf of the patients (24).…”

Section: Technology-mediated Interventions For Caregivers (Bmt Roadmap)mentioning

confidence: 99%

Harnessing mobile health technology to support long-term chronic illness management: Exploring family caregiver support needs in the outpatient setting

Shin

Chaar

Kedroske

et al. 2020

Preprint

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BACKGROUND Family caregiving is an important public health issue, particularly with the aging population. In recent years, mobile health (mHealth) technology has emerged as a potential low-cost, scalable platform to address caregiver support needs, and thereby alleviate caregiver burden. This study sought to examine the support needs of family caregivers in their lived experiences of outpatient care in an effort to inform the development of a future mHealth intervention. METHODS The current study is a part of a larger study in a population of family caregivers to patients undergoing blood and marrow transplant (BMT), consisting of three phases: i) tablet-based caregiver-facing intervention design (Phase I); ii) usability testing in an inpatient healthcare setting (Phase II); and iii) randomized trial to expand the user group to an outpatient setting (Phase III). In an earlier pilot study (Phases I and II), a tablet-based caregiver-facing application was developed and tested for supporting inpatient care. As part of Phase III, we conducted 20 semi-structured interviews in two outpatient BMT clinics at a large academic medical center in the Midwestern United States. A thematic analysis was performed to define emerging themes. RESULTS Our data analysis identified five primary themes that BMT caregivers faced: I. lifestyle restrictions due to the patient’s immunocompromised state; II. unfamiliar medical tasks required on behalf of patients; III. unmet needs based on existing resources; IV. adopting strategies due to the new roles; and V. reformation of social relationships with family and friends. Based on these findings, we observed three design considerations to guide the development of a future mHealth intervention: i) connecting caregivers with other caregivers through Chat Forums; ii) enabling video conferencing with healthcare providers; and iii) using readily accessible activities (e.g., journaling) to help express emotions. CONCLUSION The findings herein captured the family caregiver’s lived experiences during outpatient care. There was broad agreement that caregiving was challenging and stressful. Thus, effective and scalable interventions to support caregivers are needed. This study provided data to guide the content and design of a future mHealth intervention in the outpatient setting.

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“…Recent studies in HCI and healthcare domain highlight the scope and the benefits of available technology-mediated interventions designed for children and their families specifically in health [13]. These interventions range from family-centered health management [11] to health information delivery [7]. Studies have revealed that shared responsibility and support among family members have positive impacts on illness management [10].…”

Section: Background and Related Studymentioning

confidence: 99%

Towards Better Transitions for Children with Diabetes

Shin

Holtz

2019

Proceedings of the 18th ACM International Conference on Interaction Design and Children

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Children with Type 1 Diabetes (T1D) are required to manage their illness to alleviate further long-term complications. Although children are expected to engage in appropriate self-management activities once they become older, many of the children remain passive actors in managing their condition. Due to the lack of knowledge and skills, as well as changes in parent-child relationships, children demonstrate low self-care adherence. Consequently, parents also face difficulties in defining their role in long-term care. This study, part of a larger study, comprised of three phases: mobile app development, prototype feasibility testing, and usability testing with child-parent dyads users. As part of the third phase, this study used qualitative interviews with 24 child-parent dyads to understand the existing facilitators and barriers in using the app. Our findings suggest that users found that the app reminded them to track their blood glucose (BG) values and facilitated child-parent communication in a user-friendly manner. By capturing the emerging themes in adopting the app from the children's perspective, we will iteratively refine the app to better suit the users' requirements.

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Supporting Families in Reviewing and Communicating about Radiology Imaging Studies

Cited by 34 publications

References 30 publications

Individuals with back and neck pain on medical forums: What do they mention? What do they fear?

Individuals with back and neck pain on medical forums: What do they mention? What do they fear?

Harnessing mobile health technology to support long-term chronic illness management: Exploring family caregiver support needs in the outpatient setting

Towards Better Transitions for Children with Diabetes

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