Supported Decision-Making

Shogren, Karrie A.; Dean, Evan; Linnenkamp, Brad; Raley, Sheida K.; Martinis, Jonathan; Blanck, Peter

doi:10.1007/978-3-030-74675-9_2

Cited by 2 publications

(1 citation statement)

References 24 publications

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“…A one-page outline of the study attached to a detailed information sheet and consent form were provided either in a standard or easy read format. Written informed consent was sought from the participant or the support person who usually supported decision making of the participant, if the participant was unable to provide written consent themselves [24].…”

Section: Qualitative Strandmentioning

confidence: 99%

Disabled People or Their Support Persons’ Perceptions of a Community Based Multi-Sensory Environment (MSE): A Mixed-Method Study

Wilkinson,

Calder,

Elliott

et al. 2023

IJERPH

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Multi-sensory environments (MSEs) are specialised spaces purposely designed to stimulate the senses, whilst providing a calming and relaxing environment for leisure and enjoyment, predominantly intended for disabled people. Most MSEs are in institutions, hospitals, or educational settings, with a few in community-based settings. We explored disabled users’ experiences of a community based MSE in a large metropolitan area in New Zealand, with a view to expanding access to MSE-type environments within the area. We used a convergent mixed method design with a web-based electronic survey (e-survey; n = 105), as well as semi-structured interviews (n = 14) with disabled MSE users (adults and children), who were supported, where necessary, by their support person/s. We collected the MSE users’ demographics, frequency of use with respect to age, disability, and ethnicity, and experiences of the room, equipment, and accessibility. The participants and their support persons’ perspectives about their experiences of using the MSE were represented by four themes: (i) Self-determination; (ii) Enhancing wellbeing opportunities; (iii) the MSE itself; (iv) Accessibility. While the MSE was considered positively, the MSE experience could be enhanced by addressing access challenges and broadening the scope of equipment to improve the usability and make it a more inclusive environment for all.

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Section: Qualitative Strandmentioning

confidence: 99%

Disabled People or Their Support Persons’ Perceptions of a Community Based Multi-Sensory Environment (MSE): A Mixed-Method Study

Wilkinson,

Calder,

Elliott

et al. 2023

IJERPH

View full text Add to dashboard Cite

show abstract

Self-Advocate and Family Member Experiences With Supported Decision Making

Dean,

Hagiwara,

Brunson

et al. 2024

Intellectual and Developmental Disabilities

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Supported decision making (SDM) is a needed focus of policy and practice to enhance opportunities for people with disabilities to exercise self-determination as they are supported to make decisions about their life. This study used content analysis to analyze five focus groups comprised of 27 adults with intellectual and developmental disabilities (IDD) and 16 family members to understand how people with IDD use supports for decision making and how families support decision making. People with IDD and family members described a range of strategies and supports they used for decision making, including engaging trusted supporters, accessing technology, and using early experiences to build decision-making skills. Findings from this research can inform development of practices and policy to enhance use of SDM in research, policy, and practice.

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Supported Decision-Making

Cited by 2 publications

References 24 publications

Disabled People or Their Support Persons’ Perceptions of a Community Based Multi-Sensory Environment (MSE): A Mixed-Method Study

Disabled People or Their Support Persons’ Perceptions of a Community Based Multi-Sensory Environment (MSE): A Mixed-Method Study

Self-Advocate and Family Member Experiences With Supported Decision Making

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