Support Needs and Preferences of Young Adolescents With Asthma and Allergies: “Just No One Really Seems to Understand”

Stewart, Miriam; Letourneau, Nicole; Masuda, Jeffrey R.; Anderson, Sharon; Cicutto, Lisa; McGhan, Shawna; Watt, Susan

doi:10.1016/j.pedn.2011.06.011

Cited by 33 publications

(60 citation statements)

References 34 publications

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“…Many teens reported no embarrassment and cast their friends in ''helper'' roles. This was both similar [10,11] and dissimilar [8,23,29,30] to prior findings. Social influences were more concerning outside of school, when teens prioritized fun activities over proper asthma medication use.…”

Section: Discussionsupporting

confidence: 76%

Asthma medication adherence among urban teens: a qualitative analysis of barriers, facilitators and experiences with school-based care

Blaakman¹,

Cohen²,

Fagnano³

et al. 2014

Journal of Asthma

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Section: Discussionsupporting

confidence: 76%

Asthma medication adherence among urban teens: a qualitative analysis of barriers, facilitators and experiences with school-based care

Blaakman¹,

Cohen²,

Fagnano³

et al. 2014

Journal of Asthma

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“…Youth rated how to keep asthma under control, how to manage triggers, and managing asthma while exercising as highest among all of the topics. These preferences support research examining young adolescent preferences for an online support intervention finding most youth (82.4%) wanted information about coping with asthma (32). …”

Section: Discussionsupporting

confidence: 68%

“…The largest discordance, parent interest in helping their child talk to their friends about asthma and youth not expressing interest in the topic, may be related to parents’ expressed desire to prevent their child from feeling isolated or alone in dealing with asthma and to have peer support, while youth desire to fit in and not be different from peers (32). The finding that youth were less likely than caregivers to express interest for education regarding knowing the difference between rescue and controller medicines creates a dilemma for clinicians and developers of asthma educational materials.…”

Section: Discussionmentioning

confidence: 99%

“…We are not aware of previous studies that have examined sociodemographic differences in asthma education preferences, but we were surprised that there were no age-related differences. We expected, for example, to find younger children to be more interested in talking to friends about asthma than adolescents because research shows teens with asthma report one of their biggest challenges is to be perceived as normal by their peers (32). …”

Section: Discussionmentioning

confidence: 99%

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Exploring youth and caregiver preferences for asthma education video content

Geryk¹,

Arrindell²,

Sage³

et al. 2015

Journal of Asthma

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Objective This study examines: 1) whether youth and their caregivers have different preferences for asthma education video topics and 2) if education topic preferences vary by youth and caregiver sociodemographic characteristics. Methods Youth (n=83) ages 7–17 years with persistent asthma and their caregivers were recruited at two pediatric practices in North Carolina. Sociodemographic information and youth and caregiver preferences for 9 asthma video education topics were collected during in-person interviews. Bonferroni-corrected chi-square or McNemar tests (α=0.0056) were used to compare youth and caregivers differences in topic preferences and topic preferences by youth and caregiver sociodemographic characteristics, including gender, race, ethnicity, and age. Results Youth were primarily male (52%) and from low-income families (74%; caregiver annual income less than $30,000) and many were Hispanic (45%). Youth and parents expressed the most interest in the following two topics: “how to deal with triggers” (90% and 95%, respectively) and “how to keep asthma under control” (87% and 96%, respectively). Caregivers and children were discordant for two topics: “the difference between a rescue and controller medicine” and “how to [help your child] talk to your [his/her] friends about asthma.” No differences were found between youth and caregiver sociodemographic characteristics and video topic preferences. Conclusions Youth with persistent asthma and their caregivers differed in their asthma education topic preferences, but preferences did not vary by caregiver or youth sociodemographic characteristics. Studies examining the effectiveness of interventions tailored to differences in educational preferences of youth with asthma and their caregivers are needed.

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“…Children with asthma may feel conspicuous or isolated in school and in other community settings when they need to administer inhalers to control asthma symptoms [4]. If children are not around peers with asthma they may experience feelings of isolation related to feeling different from other children in their classroom or neighborhood [5].…”

mentioning

confidence: 99%