Support for Young Adult Cancer Patients: Perspectives of Patients and their Mothers

Stanley, Nathanael B.; Quinn, Gwendolyn P.; Reed, Damon R.; Galligan, Andrew; Reblin, Maija

doi:10.1007/s13187-018-1413-x

Cited by 4 publications

(1 citation statement)

References 18 publications

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“…They felt they were becoming adults and gaining their freedom, only to lose it and become dependent on their parents once again. HCPs and staff described a similar event when discussing the barrier of parents as protectors, noting that parents were often protective and AYA felt stuck between wanting someone to care for them and losing independence [23]. Providers noted the importance of the PN being empathetic, non-judgmental, a good listener, and an advocate when needed.…”

Section: Discussionmentioning

confidence: 99%

Provider perceptions’ of a patient navigator for adolescents and young adults with cancer

LaRosa

Stern

Lynn

et al. 2019

Support Care Cancer

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Purpose Healthcare providers (HCPs) and other staff at a comprehensive Cancer Center were interviewed on how to best implement a patient navigator position when working with adolescents and young adults (AYA) with cancer. Research objectives included assessing staff perceptions of (a) barriers to optimal care for AYA, (b) roles and responsibilities for a patient navigator, and (c) training needed for future patient navigators. Methods Semi-structured interviews were conducted with 17 staff members providing care to AYA. Verbatim transcripts were hand-coded using inductive content analysis. Results Roles and responsibilities of a patient navigator were described as needing to coordinate services, be knowledgeable of resources inside and outside the Cancer Center, provide emotional support, advocate for AYA, assist with financial and insurance issues, and serving as the first point of contact. Conclusions Staff serving AYA reported the desired roles and training they wished a patient navigator to possess. This study contributes to the literature by conducting stakeholder assessment of the goals and roles of an AYA patient navigator (PN). PN positions should be adapted to the workflow and ethos of the institution.

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Section: Discussionmentioning

confidence: 99%