Support and negativity in interpersonal relationships impact caregivers’ quality of life in pediatric food allergy

Williams, Natalie A.; Hankey, Maren

doi:10.1007/s11136-014-0862-x

Cited by 21 publications

(21 citation statements)

References 46 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…One family explained that they were yelled at for not using an EAI and this made them feel guilty and ashamed. It has been shown that negative interactions, such as insensitivity or conflict, have a greater impact on caregivers of children with a food allergy compared to positive social supports [ 22 ]. Health care providers must remember that every interaction with a patient and their family is an educational opportunity that should be utilized to teach, review and support.…”

Section: Discussionmentioning

confidence: 99%

A qualitative study exploring parents’ experiences with epinephrine use for their child’s anaphylactic reaction

Chooniedass

Temple

Martin

et al. 2018

Clin Transl Allergy

View full text Add to dashboard Cite

BackgroundChildren with life threatening food allergies live with the constant threat of a fatal reaction, and caregivers must always be prepared to treat with an epinephrine auto-injector (EAI). This interpretive phenomenological study explored parents’ perceptions and lived experiences with prescribed EAI use for their child.MethodsThe purposive sample included ten parents of five children under 12 years of age, diagnosed with a food allergy and prescribed with an EAI who recently experienced anaphylaxis. Data sources included digitally-recorded semi-structured interviews and a reflexive journal.ResultsEight main themes emerged: perception of anaphylaxis, life challenges, isolation, anxiety, hesitation, guilt, influence of health care professionals, and lessons learned. Parents uniformly described multiple life challenges and feelings of isolation, anxiety and hesitation during a reaction that lead to subsequent guilt.ConclusionsHandling reactions correctly provided parents with confidence to treat subsequent reactions. Witnessing the effects of an EAI and receiving positive feedback from health care providers further strengthened their confidence to quickly and competently intervene in future reactions.

show abstract

Section: Discussionmentioning

confidence: 99%

A qualitative study exploring parents’ experiences with epinephrine use for their child’s anaphylactic reaction

Chooniedass

Temple

Martin

et al. 2018

Clin Transl Allergy

View full text Add to dashboard Cite

show abstract

“…Several demographic factors have been highlighted for both children and caregivers. Among the main child sociodemographic variables associated with a higher QOL of the family caregiver are older age [22], male gender [23], an established medical diagnosis with a good prognosis [24], positive evolution and greater control of the disease [25,26], type of noninvasive treatment [27], and adaptive psychosocial functioning [28,29]. In addition, empirical evidence has shown that the main sociodemographic variables of caregivers that affect their QOL include male gender [30], older age [31], higher levels of schooling and income [32,33], being married [34], decreased caregiving time [35,36], reduced family caregiver burden [13], a shorter caregiving duration [37], less financial impact [38], a professional occupation [39], and greater religiosity or spirituality [40].…”

Section: Introductionmentioning

confidence: 99%

“…Notably, these predictive factors were proposed based on studies performed in populations of family caregivers who cared for children with chronic diseases, that is, studies carried out in pediatric settings. Finally, a significant association was expected between a lower parental QOL and the type of diagnosis (e.g., a disease with a poor prognosis requiring invasive treatments) [24][25][26], a shorter time since diagnosis [52], and a longer duration of hospitalization [53].…”

Section: Introductionmentioning

confidence: 99%

Predictors of Quality of Life among Parents of Children with Chronic Diseases: A Cross-Sectional Study

et al. 2020

View full text Add to dashboard Cite

Quality of life (QOL) is a key aspect of the health care process for children with chronic diseases and their families. Although clinical evidence regarding the impact of chronic disease on children exists, few studies have evaluated the effects of the interaction between sociodemographic and psychosocial factors on the family caregiver’s QOL, indicating a significant gap in the research literature. The present study aimed to identify the predictors of the QOL of parents of children with chronic diseases. Three parental sociodemographic predictors (age, schooling, and family income) and four psychosocial predictors (family functioning, social support, depression, and resilience) were examined. In this cross-sectional study, 416 parents of children with chronic diseases who were hospitalized at a National Institute of Health in Mexico City were interviewed. The participants completed a sociodemographic variables questionnaire (Q-SV) designed for research on family caregivers of children with chronic disease. The predicted variable was assessed through the World Health Organization Quality of Life Questionnaire. The four psychosocial predictors were assessed through the Family Functioning Scale, Social Support Networks Scale, Beck Depression Inventory, and Measurement Scale of Resilience. The regression model explained 42% of the variance in parents’ QOL. The predictors with positive weights included age, schooling, monthly family income, family functioning, social support networks, and parental resilience. The predictors with negative weights included depression. These findings suggest that strong social relationships, a positive family environment, family cohesion, personal resilience, low levels of depression, and a family income twice the minimum wage are variables associated with better parental QOL.

show abstract

“…All items can be answered based on a five-point scale ranging from strongly disagree to strongly agree [36]. Item scores are summed to a total continuous score for social support and social conflict that can range between 9 and 45 and between 3 and 15, respectively.…”

Section: Methodsmentioning

confidence: 99%

Feasibility and effectiveness of a telephone-based social support intervention for informal caregivers of people with dementia: Study protocol of the TALKING TIME project

Berwig

Dichter

Albers

et al. 2017

BMC Health Serv Res

View full text Add to dashboard Cite

BackgroundCaring for people with dementia at home requires a significant amount of time, organization, and commitment. Therefore, informal caregivers, mainly relatives, of people with dementia often feel a high burden. Although on-site support groups are known to have positive effects on the subjective well-being (SWB) and perceived social support of informal caregivers, there are cases in which relatives have either no time or no opportunity to leave the person alone or in which there are no support groups nearby. The TALKING TIME project aims to close this supply gap by providing structured telephone-based support groups in Germany for the first time. International studies have shown benefits for informal caregivers.MethodsThe TALKING TIME study is a randomized controlled trial. The effects of the 3-month TALKING TIME intervention will be compared with those of a control group without intervention at two time points (baseline = T0, after 3 months = T1). The control group will receive the TALKING TIME intervention after T1. With a planned sample size of 88 participants, the study is powered to detect an estimated effect size of 0.70 for psychological quality of life, considering an α of 0.05 (two-sided), a power of 80%. Caregivers are informal caregivers who are eligible if they are 18 years of age or older and have cared for a person with diagnosed dementia for at least four hours, four days per week, in the past six months. The exclusion criteria are psychiatric disorders of the informal caregiver. The primary outcome is the mental component summary of the SF-12 rated by informal caregivers. The secondary outcomes for informal caregivers are the physical component summary of the SF-12, the Perceived Social Support Caregiver Scale (SSCS) score, and the Caregiver Reaction Scale (CRS) score. The secondary outcome for care recipients is the Neuropsychiatric Inventory (NPI-Q). For the process evaluation, different quantitative and qualitative data sources will be collected to address reach, fidelity, dosage and context.DiscussionThe results will provide further information on the effectiveness and optimization of telephone-based support groups for informal caregivers of people with dementia, which can help guide the further development of effective telephone-based social support group interventions.Trial registrationClinical Trials: NCT02806583, June 9, 2016

show abstract

Support and negativity in interpersonal relationships impact caregivers’ quality of life in pediatric food allergy

Abstract: Interpersonal relationship processes appear influential in the adaptation of caregivers in the context of pediatric food allergy. Psychosocial interventions targeting support and negativity in caregivers' social relationships may help improve their HRQL.

Cited by 21 publications

References 46 publications

A qualitative study exploring parents’ experiences with epinephrine use for their child’s anaphylactic reaction

A qualitative study exploring parents’ experiences with epinephrine use for their child’s anaphylactic reaction

Predictors of Quality of Life among Parents of Children with Chronic Diseases: A Cross-Sectional Study

Feasibility and effectiveness of a telephone-based social support intervention for informal caregivers of people with dementia: Study protocol of the TALKING TIME project

Contact Info

Product

Resources

About