Successful forearm prosthesis fitting in a patient with epidermolysis bullosa dystrophica

Verduyn, Carl; Morren, Marie‐Anne; Stas, Marguerite; Sinnaeve, Friedl; Segers, Katarina; Kiekens, Carlotte

doi:10.1177/0309364617718410

Cited by 1 publication

(2 citation statements)

References 11 publications

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“…Physiotherapists evaluate and examine current movement patterns and body positioning within the environmental set up to assess and recommend the least restrictive and most supportive durable medical equipment, splints and/or orthotics to enhance interaction within the home and community. For individuals with DEB, physiotherapists collaborate with orthotists, prosthetists, podiatrists and vendors who specializes in durable medical equipment to improve their functional interaction within their environment [ 22 ]. Prosthesis for upper extremities can support continued activities of daily living to enhance QoL, such as driving to work [ 22 ].…”

Section: Recommendationsmentioning

confidence: 99%

“…For individuals with DEB, physiotherapists collaborate with orthotists, prosthetists, podiatrists and vendors who specializes in durable medical equipment to improve their functional interaction within their environment [ 22 ]. Prosthesis for upper extremities can support continued activities of daily living to enhance QoL, such as driving to work [ 22 ]. For lower extremity prosthesis, the physiotherapist can focus on upright weight bearing therapeutic activities to improve ambulation within the home and community with or without the use of assistive devices [ 23 ].…”

Section: Recommendationsmentioning

confidence: 99%

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Physiotherapy for epidermolysis bullosa: clinical practice guidelines

Weisman

Chan

Lapointe

et al. 2021

Orphanet J Rare Dis

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Epidermolysis bullosa (EB) is characterized by skin fragility with blister formation occurring spontaneously or following minor trauma such as gentle pressure or friction. Current physiotherapy practice is based on anecdotal care, clinical expertise and creative problem solving with caregivers and individuals with EB. Evidence based intervention is needed to establish a foundation of knowledge and to guide international practitioners to create and improve standards of care to effectively work with individuals living with EB. This clinical practice guideline (CPG) was created for the purpose of providing evidence based interventions and best clinical practices for the physiotherapy management of individuals with EB. A survey was conducted within the EB community and six outcomes were identified as a priority to address in physiotherapy management, including (1) attaining developmental motor milestones, (2) identifying safe and functional mobility in the natural environment, (3) encouraging ambulation endurance, (4) supporting safe ability to bear weight, (5) improving access to physiotherapy services, and (6) optimizing interaction with the community. A systematic literature review was conducted and articles were critically analyzed by an international panel consisting of thirteen members: healthcare professionals (including physiotherapist, doctors, and occupational therapist), caregivers, and individuals with EB. Recommendations were formulated from evidence and panel consensus. An external panel of twelve were invited to improve the quality and gather feedback on draft manuscript and recommendations. This CPG describes the development of recommendations for physiotherapy management including several best practice interventions. This guideline lays the foundational work for physiotherapist throughout the world to provide high quality services while improving and maintaining functional mobility and independence within the EB community. The CPG outlines limitations in the evidence available and possible future research needed to improve physiotherapy practice.

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Section: Recommendationsmentioning

confidence: 99%