Substantial utilization of Facebook, Twitter, YouTube, and Instagram in the prostate cancer community

Struck, Julian P.; Siegel, Fabian; Kramer, Martin; Tsaur, Igor; Heidenreich, Axel; Haferkamp, Axel; Merseburger, Axel S.; Salem, Johannes; Borgmann, Hendrik

doi:10.1007/s00345-018-2254-2

Cited by 51 publications

(43 citation statements)

References 26 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…First, most studies did not provide detailed descriptions of their methods [39,40]. In particular, description of data extraction methods was frequently missing [7,11,13,23,25,27-31,33,34,37]. Furthermore, there are few existing resources that offer guidance for researchers seeking to use Facebook for health-related topics.…”

Section: Gaps In Current Qualitative Approachesmentioning

confidence: 99%

Using Facebook for Qualitative Research: A Brief Primer

Franz¹,

Marsh²,

Chen³

et al. 2019

J Med Internet Res

View full text Add to dashboard Cite

As Facebook continues to grow its number of active users, the potential to harness data generated by Facebook users also grows. As much of Facebook users’ activity consists of creating (and commenting on) written posts, the potential use of text data for research is enormous. However, conducting a content analysis of text from Facebook users requires adaptation of research methods used for more traditional sources of qualitative data. Furthermore, best practice guidelines to assist researchers interested in conducting qualitative studies using data derived from Facebook are lacking. The purpose of this primer was to identify opportunities, as well as potential pitfalls, of conducting qualitative research with Facebook users and their activity on Facebook and provide potential options to address each of these issues. We begin with an overview of information obtained from a literature review of 23 studies published between 2011 and 2018 and our own research experience to summarize current approaches to conducting qualitative health research using data obtained from Facebook users. We then identify potential strategies to address limitations related to current approaches and propose 5 key considerations for the collection, organization, and analysis of text data from Facebook. Finally, we consider ethical issues around the use and protection of Facebook data obtained from research participants. In this primer, we have identified several key considerations that should aid health researchers in the planning and execution of qualitative studies involving content analysis of text data from Facebook users.

show abstract

Section: Gaps In Current Qualitative Approachesmentioning

confidence: 99%

Using Facebook for Qualitative Research: A Brief Primer

Franz¹,

Marsh²,

Chen³

et al. 2019

J Med Internet Res

View full text Add to dashboard Cite

show abstract

“…In general, cancer content on Twitter primarily focuses on delivering cancer information (eg, educational material) and emotional support. 5,[14][15][16] Studies have examined disease-specific content of Twitter conversations, including lung cancer, breast cancer, and prostate cancer. 5 Twitter content related to disease-specific cancers often have distinguishing characteristics.…”

Section: Introductionmentioning

confidence: 99%

Examining Public Communication About Kidney Cancer on Twitter

Sedrak

Salgia

Bergerot

et al. 2019

JCO Clinical Cancer Informatics

View full text Add to dashboard Cite

PURPOSE Several studies have described the content of Twitter conversations about lung, breast, and prostate cancer, but little is known about how the public uses Twitter to discuss kidney cancer. We sought to characterize the content of conversations on Twitter about kidney cancer and the participants engaged in these dialogues. METHODS This qualitative study analyzed the content of 2,097 tweets that contained the key words kidney cancer from August 1 to 22, 2017. Tweets were categorized by content domain of conversations related to kidney cancer on Twitter and user types of participants in these dialogues. RESULTS Among the 2,097 kidney cancer–related tweets analyzed, 858 (41.4%) were authored by individuals, 865 (41.2%) by organizations, and 364 (17.4%) by media sites. The most common content discussed was support (29.3%) and treatment (26.5%). Among the 2,097 tweets, 825 were unique tweets, and 1,272 were retweets. The most common unique tweets were about clinical trials (23.9%), most often authored by media sites. The most common retweets were about treatment (38.5%), most often authored by organizations. CONCLUSION Twitter dialogues about kidney cancer are most commonly related to support and treatment. Our findings provide insights that may inform the design of new interventions that use social media as a tool to improve communication of kidney cancer information. Additional efforts are needed to improve our understanding of the value and direct utility of social media in improving kidney cancer care.

show abstract

“…21 Quantitatively speaking, 32,537 prostate cancer community users generated 110,971 tweets on #ProstateCancer hashtag during a one-year period. 22 It was noted during the first month of #UroSoMe that there was low participation from patients, patient groups and healthcare organizations. The authors believe that #UroSoMe working group members should start advocating patients and organizations to get on social media and enhance discussions using the #UroSoMe hashtag.…”

Section: E27mentioning

confidence: 99%

Connecting the Urological Community: The #UroSoMe Experience

Gudaru

Blanco

Castellani

et al. 2019

Journal of Endoluminal Endourology

View full text Add to dashboard Cite

Background and Objectives There is an increasing use of social media amongst the urological community. However, it is difficult to identify urological data on various social media platforms in an efficient manner. We proposed a hashtag, #UroSoMe, to be used when posting urology-related content in the social media platforms. The objectives of this article are to describe how #UroSoMe was developed, and to report the data of the first month of #UroSoMe. Material and Methods The hashtag, #UroSoMe, was introduced to the urological community. The #UroSoMe working group was formed, and the members actively invited and encouraged people to use the hashtag #UroSoMe when posting urology-related contents. After the #UroSoMe (@so_uro) platform on twitter had grown to more than 300 users, the first live event of online case discussion, i.e. #LiveCaseDiscussions, was conducted. A prospective observational study of the hashtag #UroSoMe Twitter activity during the first month of its usage from 14 December 2018 to 13 January 2019 was evaluated. Outcome measures included number of users, number of tweets, user location, top tweeters, top hashtags used and interactions. Analysis was performed using NodeXL (Social Media Research Foundation; California, USA; https://www.smrfoundation.org/nodexl/), Symplur (https:// www.symplur.com) and Twitonomy (https://www.twitonomy.com). Results The first month of #UroSoMe activity documented 1373 tweets/retweets by 1008 tweeters with 17698 mentions and 1003 replies. The #LiveCaseDiscussions was able to achieve a potential reach of 2,033,352 Twitter users. The top tweets mainly included cases presented by #UroSoMe working group members during #LiveCaseDiscussions. The twitonomy map showed participation from 214 geographical locations. The major groups of participants using the hashtag #UroSoMe were ‘Researcher/Academic’ and ‘Doctor’. The twitter account of #UroSoMe (@so_uro) has now grown to more than 1000 followers. Conclusions Social media is an excellent platform for interaction amongst the urological community. The results demonstrated that #UroSoMe was able to achieve wide spread engagement from all over the world.

show abstract

Substantial utilization of Facebook, Twitter, YouTube, and Instagram in the prostate cancer community

Cited by 51 publications

References 26 publications

Using Facebook for Qualitative Research: A Brief Primer

Using Facebook for Qualitative Research: A Brief Primer

Examining Public Communication About Kidney Cancer on Twitter

Connecting the Urological Community: The #UroSoMe Experience

Contact Info

Product

Resources

About