Suboptimal health literacy in patients with lung cancer or head and neck cancer

Koay, Kelvin; Schofield, Penelope; Gough, Karla; Buchbinder, Rachelle; Rischin, Danny; Ball, David; Corry, June; Osborne, Richard H.; Jefford, Michael

doi:10.1007/s00520-013-1780-0

Cited by 37 publications

(52 citation statements)

References 39 publications

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“…Seven studies from the MEDLINE search were retained for quality assessment. 25,26,[28][29][30][31][32] We then handsearched the reference lists from the included studies and a recent review of health literacy measures.…”

Section: Resultsmentioning

confidence: 99%

“…[25][26][27][28]31,32 The latter were excluded from further analysis. A poor quality rating usually resulted from lack of multivariate analyses adjusting for potential confounders of the relationships between self-reported and performance-based health literacy or numeracy and health outcomes.…”

Section: Resultsmentioning

confidence: 99%

“…38 Several studies that were excluded from our review because they did not adjust for the likely differences in baseline characteristics among those with self-reported and performance-based low literacy/ numeracy (and were thus of Bpoor^quality for the purposes of this review) also suggest mixed results. [25][26][27][28]31,32,39 An important question is why performance-based and selfreported measures may be differentially related to health outcomes. There are a few possible explanations.…”

Section: Discussionmentioning

confidence: 99%

See 2 more Smart Citations

Different Measures, Different Outcomes? A Systematic Review of Performance-Based versus Self-Reported Measures of Health Literacy and Numeracy

Kiechle¹,

Bailey

Hedlund³

et al. 2015

J GEN INTERN MED

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BACKGROUND: Health literacy (HL) and numeracy are measured by one of two methods: performance on objective tests or self-report of one's skills. Whether results from these methods differ in their relationship to health outcomes or use of health services is unknown. METHODS: We performed a systematic review to identify and evaluate articles that measured both performancebased and self-reported HL or numeracy and examined their relationship to health outcomes or health service use. To identify studies, we started with an AHRQfunded systematic review of HL and health outcomes. We then looked for newer studies by searching MEDLINE from 1 February 2010 to 9 December 2014. We included English language studies meeting pre-specified criteria. Two reviewers independently assessed abstracts and studies for inclusion and graded study quality. One reviewer abstracted information from included studies while a second checked content for accuracy. RESULTS: We identified four Bfair^quality studies that met inclusion criteria for our review. Two studies measuring HL found no differences between performance-based and self-reported HL for association with self-reported outcomes (including diabetes, stroke, hypertension) or a physician-completed rheumatoid arthritis disease activity score. However, HL measures were differentially related to a patientcompleted health assessment questionnaire and to a patient's ability to interpret their prescription medication name and dose from a medication bottle. Only one study measured numeracy and found no difference between performance-based and self-reported measures of numeracy and colorectal cancer (CRC) screening utilization. However, in a moderator analysis from the same study, performance-based and self-reported numeracy were differentially related to CRC screening utilization when stratified by certain patient-provider communication behaviors (e.g., the chance to always ask questions and get the support that is needed). DISCUSSION: Most studies found no difference in the relationship between results of performance-based and self-reported measures and outcomes. However, we identified few studies using multiple instruments and/or objective outcomes.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Different Measures, Different Outcomes? A Systematic Review of Performance-Based versus Self-Reported Measures of Health Literacy and Numeracy

Kiechle¹,

Bailey

Hedlund³

et al. 2015

J GEN INTERN MED

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“…Cancer survivors in particular require adequate health literacy skills so they may make informed decisions about the complicated avenues of cancer care including prevention strategies, screening options, multimodal treatment regiments, and participation in clinical trials. Cancer survivors with low health literacy have been shown to demonstrate difficulties with simple health tasks, such as interpreting commonly used written health information [1]. These individuals are more likely to have misconceptions about their disease, engage in less effective communication with their health-care providers, and demonstrate poor adherence to treatment plans [2].…”

Section: Introductionmentioning

confidence: 99%

Predictors of High eHealth Literacy in Primary Lung Cancer Survivors

et al. 2014

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Lung cancer survivors are likely to have low health literacy which is an independent risk factor for poorer health outcomes. The eHealth literacy in lung cancer survivors has not been reported. The purposes of this study were to determine self-perceived eHealth literacy levels in lung cancer survivors and to explore predictors of higher eHealth literacy. A cross-sectional study was conducted at the Princess Margaret Cancer Centre in Toronto, Canada. Survivors completed a survey that collected demographic, self-perceived eHealth literacy (using the eHealth Literacy Scale), and quality of life information. Tumor and treatment details were extracted from medical records. Demographic data was summarized using descriptive statistics and compared against those with high and low eHealth literacy using Fisher's exact test. Eighty-three survivors were enrolled over 7 months. Median age was 71 years (range 44-89); 41 survivors (49%) were male. Forty-six (55%) survivors had some college education or higher. Most had access to eResources (78%) via computer, Internet, or smartphone. Fifty-seven (69%) scored 5 or greater (7=excellent) on the overall health scale. Twenty-eight (33.7%) perceived themselves to have high eHealth literacy. There was no statistically significant correlation between eHealth literacy groups and age (p=1.00), gender (p=0.82), living situation (p=1.00), overall health (p=1.00), overall quality of life (QoL) (p=1.00), or histology (p=0.74). High eHealth literacy correlated with the level of education received (p=0.003) and access to eResources (p=0.004). The self-perceived eHealth literacy of lung cancer survivors is generally low.

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“…17 Poor health literacy has also been associated with increased distress in people diagnosed with cancer. 18,19 There is also evidence of an association between increased patient spirituality and psychological well-being, 20,21 as well as perceived better family functioning and lower psychological distress in family members of childhood cancer survivors. [22][23][24] It should be noted that not all young people diagnosed with cancer demonstrate clinically significant distress and that those who do may first show symptoms at 6 or 12 months after diagnosis.…”

Section: Psychological Distressmentioning

confidence: 99%

Validation of the distress thermometer for use among adolescents and young adults with cancer in Australia: a multicenter study protocol

Patterson¹,

McDonald²,

Anazodo³

et al. 2015

COAYA

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Suboptimal health literacy in patients with lung cancer or head and neck cancer

Abstract: Using two different measures, a substantial proportion of patients have poor health literacy abilities and may experience difficulties in accessing health services.

Cited by 37 publications

References 39 publications

Different Measures, Different Outcomes? A Systematic Review of Performance-Based versus Self-Reported Measures of Health Literacy and Numeracy

Different Measures, Different Outcomes? A Systematic Review of Performance-Based versus Self-Reported Measures of Health Literacy and Numeracy

Predictors of High eHealth Literacy in Primary Lung Cancer Survivors

Validation of the distress thermometer for use among adolescents and young adults with cancer in Australia: a multicenter study protocol

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