Subjective well‐being and satisfaction with life in adults with spastic cerebral palsy: a pilot study of a randomized sample

Hergenröder, Heike; Blank, Rainer

doi:10.1111/j.1469-8749.2008.03169.x

Cited by 25 publications

(24 citation statements)

References 19 publications

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“…Furthermore, they enhance our understanding of the different ways people respond to their environments and broaden current definitions of participation and inclusion. For example, changes in physiological responding may be a means of determining preferences for meaningful and enjoyable activities among children with profound disabilities and ensuring varied social interactions, engagement and positive stimulation—factors that contribute significantly to positive emotions and quality of life [54]. …”

Section: Discussionmentioning

confidence: 99%

Physiological and Emotional Responses of Disabled Children to Therapeutic Clowns: A Pilot Study

Kingsnorth

Blain

McKeever

2011

Evidence-Based Complementary and Alternative Medicine

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This pilot study examined the effects of Therapeutic Clowning on inpatients in a pediatric rehabilitation hospital. Ten disabled children with varied physical and verbal expressive abilities participated in all or portions of the data collection protocol. Employing a mixed-method, single-subject ABAB study design, measures of physiological arousal, emotion and behavior were obtained from eight children under two conditions—television exposure and therapeutic clown interventions. Four peripheral autonomic nervous system (ANS) signals were recorded as measures of physiological arousal; these signals were analyzed with respect to measures of emotion (verbal self reports of mood) and behavior (facial expressions and vocalizations). Semistructured interviews were completed with verbally expressive children (n = 7) and nurses of participating children (n = 13). Significant differences among children were found in response to the clown intervention relative to television exposure. Physiologically, changes in ANS signals occurred either more frequently or in different patterns. Emotionally, children's (self) and nurses' (observed) reports of mood were elevated positively. Behaviorally, children exhibited more positive and fewer negative facial expressions and vocalizations of emotion during the clown intervention. Content and themes extracted from the interviews corroborated these findings. The results suggest that this popular psychosocial intervention has a direct and positive impact on hospitalized children. This pilot study contributes to the current understanding of the importance of alternative approaches in promoting well-being within healthcare settings.

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Section: Discussionmentioning

confidence: 99%

Physiological and Emotional Responses of Disabled Children to Therapeutic Clowns: A Pilot Study

Kingsnorth

Blain

McKeever

2011

Evidence-Based Complementary and Alternative Medicine

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“…Limitations of this study include that only a proportion of the target population could be included. However, the inclusion rate was equal to or higher than for other studies involving similar recruitment (23,28). Although the sample size was relatively small and certain estimates thereby uncertain, the participants appear to be representative in terms of sex, GMFCS levels, subtypes and important co-morbidities (i.e.…”

Section: Study Limitationsmentioning

confidence: 92%

Exploring social participation in young adults with cerebral palsy

Jacobson

Löwing²,

Hjalmarsson³

et al. 2019

J Rehabil Med

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A representative group of young adults with cerebral palsy were studied in order to learn more about social issues, such as living arrangements, employment and relationship status. It was found that, while some young adults were well-established in occupations and relationships, many remained highly dependent on their parental families and their social situation was reduced compared with their peers. Furthermore, lowfunctioning communication level and intellectual disability were the 2 most important risk factors for having a sub-optimal social situation. This suggests that priority should be given to interventions aimed at alleviating the impact of these particular risk factors. Objectives: To describe social outcomes for young adults with cerebral palsy, and to explore associations of social outcomes with their classification levels within the Gross Motor Function, Manual Ability and Communication Function Classification Systems, and with the presence of intellectual disability. Design: A cross-sectional study with a populationbased inclusion approach at a neuropaediatric referral centre in Sweden. Subjects: Sixty-one young adults with cerebral palsy, age 20-22 years. Methods: Physical examination and questionnaires on social outcomes including living arrangements, relationships, occupation, personal finances, extent of family support with personal care. Results: Twenty percent of the young adults with cerebral palsy had moved out of the parental home. Forty-three percent were dependent on family support for basic activities of daily living. Seventy-nine percent of those without intellectual disability were employed or studying. The Communication Function Classification Systems, and presence of intellectual disability, demonstrated associations with most social outcomes, followed in significance by Manual Ability Classification System. Conclusion: In this study young adults with cerebral palsy to a high extent lived in the parental home, and more often without employment, compared with their peers. Many were dependent on parental support, financially, and with activities of daily living. Intellectual disability and communication function were important determinants of social participation. Interventions aimed at alleviating the impact of these particular disabilities should be prioritized.

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“…Another research that took place a few years earlier concluded to similar results (Arnaud et al, 2008). In addition to this, Hergenroeder and Blank (2009), who studied the well-being of people with cerebral palsy, also believed that in general terms, those people are satisfied with their life. This belief is totally identical to the answer given in the first research question.…”

Section: Discussionmentioning

confidence: 70%

“…Furthermore, a research that took place in Germany and Sweden, showed that the levels of their well-being are not low, but there are differentiations depending on their social integration (Hergenroeder & Blank, 2009). …”

Section: Kontou Et Al Psychologymentioning

confidence: 99%

Sense of Coherence in People with Cerebral Palsy in Greece

Kontou¹,

Charitaki²,

Soulis³

2018

PSYCH

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Purpose: The basic aim of this research was to evaluate the Sense of Coherence (SOC) in people with Cerebral Palsy in Greece. Also, the correlation of SOC with their Quality of Life was investigated. Method: For the purposes of the research, a mixed methodological approach was chosen. The Sense of Coherence (SOC) was administered to 37 people with Cerebral Palsy. Semi-structured interviews at Special Educators were also conducted and observation of the participants was carried out in order to collect sufficient data both for their Sense of Coherence and Quality of Life. Results: The results depict high scores of sense of coherence in people with cerebral palsy, which is in significant correlation to their quality of life. It appeared that there was no statistically significant difference between them (Ζ = −0.736, p-value = 0.462) and the significance level was determined at a = 5%. Also, there was no statistically significant differentiation in SOC-score between people with different types of cerebral palsy (F = 0.258, p-value = 0.933), with the significance level at 5%.Conclusion: As a conclusion, people with Cerebral Palsy are satisfied with their everyday life. They can control their feelings and they can cope with unknown situations. They experience pleasant feelings and do not easily experience the emotion of disappointment.

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Subjective well‐being and satisfaction with life in adults with spastic cerebral palsy: a pilot study of a randomized sample

Cited by 25 publications

References 19 publications

Physiological and Emotional Responses of Disabled Children to Therapeutic Clowns: A Pilot Study

Physiological and Emotional Responses of Disabled Children to Therapeutic Clowns: A Pilot Study

Exploring social participation in young adults with cerebral palsy

Sense of Coherence in People with Cerebral Palsy in Greece

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