Subjective experience of illness and recovery in 13 adolescents and young adults treated for childhood haematological malignancies

Fertility discussions and concerns in childhood cancer survivors, a systematic review for updated practice

“…Less than 20% (94/549) of the patients surveyed did not know their reproductive health status 13 , 14 , 15 , 16 , 17 , 18 , 19 , 20 , 21 (Table S2 ), the others reported limited or uncertain knowledge, while some patients and parents expected normal fertility. However, 42% (1813/4419) of the patients surveyed remembered having been informed about the risk of potential infertility, 13 , 16 , 18 , 20 , 21 , 22 , 23 , 24 , 25 , 26 , 27 , 28 , 29 , 30 , 31 , 32 , 33 and 49% (1079/2218) remembered having discussed FP options. 17 , 18 , 19 , 20 , 34 , 35 , 36 , 37 , 38 , 39 Twenty‐three percent of the patients (491/2139) were referred to a fertility specialist, 3 , 19 , 20 , 30 , 31 , 36 , 40 , 41 , 42 and ultimately 21% of the surveyed patients underwent FP (645/3051).…”

“… 14 , 37 The desire to have a child was expressed by 20% of prepubescent 32 , 35 , 36 , 38 , 67 and 90% of pubescent patients. 15 , 22 , 41 , 42 , 68 For some patients, parenthood can be felt as part of their identity as a man or a woman 13 , 15 , 19 , 35 and at the same time, the risk of sterility can affect the establishment of social relationships 1 , 17 , 33 , 67 and romantic relationships, 1 , 13 , 14 , 16 , 33 , 37 , 39 , 41 , 45 , 46 , 66 and may disrupt the current partnership. 13 , 36 , 37 , 45 …”

“…Concerns about the future child's health were noted mainly in patients who had cancer after puberty and who were more afraid of transmitting the disease (215/1582, 14%). 13 , 35 , 39 , 66 Psychological health was rarely discussed, although a few studies showed that for some patients fertility impairment induced anxiety and depressive symptoms, 1 , 13 , 35 , 47 created narcissistic wounds (altered self‐esteem, self‐confidence, and identity), 1 , 13 , 33 , 45 and may alter body image. 1 , 17 , 33 , 66 , 67 …”

“… 13 , 35 , 39 , 66 Psychological health was rarely discussed, although a few studies showed that for some patients fertility impairment induced anxiety and depressive symptoms, 1 , 13 , 35 , 47 created narcissistic wounds (altered self‐esteem, self‐confidence, and identity), 1 , 13 , 33 , 45 and may alter body image. 1 , 17 , 33 , 66 , 67 …”

“…Reasons the others reported limited or uncertain knowledge, while some patients and parents expected normal fertility. However, 42% (1813/4419) of the patients surveyed remembered having been informed about the risk of potential infertility, 13,16,18,[20][21][22][23][24][25][26][27][28][29][30][31][32][33] and 49% (1079/2218) remembered having discussed FP options. [17][18][19][20][34][35][36][37][38][39] Twentythree percent of the patients (491/2139) were referred to a fertility specialist, 3,19,20,30,31,36,[40][41][42] and ultimately 21% of the surveyed patients underwent FP (645/3051) .…”