Subjective Burden of Husbands and Wives as Caregivers: A Longitudinal Study

Zarit, Steven H.; Todd, Pamela A.; Zarit, Judy M.

doi:10.1093/geront/26.3.260

Cited by 1,513 publications

(1,052 citation statements)

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“…7,8 Most of the time the caregiver is a woman, usually the wife or daughter, aged between 29 and 68 years, from different social groups, who has been providing care for periods ranging from months to decades and, generally, lives with the patient. 9,10 In this study, differently from studies evaluating the care of elderly people, 9,11 it was found that, besides the spouses (26.6%), there is also the presence of sisters (23.4%) and mothers (18.3%) acting as caregivers, probably because the person with paraplegia is usually young (mean ¼ 32.9 years).…”

Section: Discussioncontrasting

confidence: 51%

Health-related quality of life of primary caregivers of persons with paraplegia

2007

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Study Design: A cross-sectional descriptive study was performed with structured questionnaires and interviews conducted with 60 primary caregivers of persons with paraplegia (T1 to S2) owing to traumatic spinal cord injury (SCI). Objectives: The purpose of this study was the assessment of the health-related quality of life (HRQoL) of primary caregivers of persons with paraplegia owing to traumatic SCI. Setting: Sa˜o Paulo, SP, Brazil. Methods: The HRQoL was assessed by the Short Form-36 (SF-36) health survey questionnaire and caregiver burden was evaluated by the Caregiver Burden Scale (CBS). Results: Among 60 caregivers evaluated, 49 (81.7%) were female, with mean age of 35.8 (SD ¼ 12.91) years, 16 (26.6%) being wives and 14 (23.4%) sisters of persons with paraplegia. It was found that the caregivers spend an average of 11.3 h/day caring for individuals with paraplegia. Twenty-three caregivers (38.3%) had a chronic disease and 32 (53.3%) were sole caregivers taking upon themselves the full responsibility of caring for the persons with paraplegia. The subjects reported lower scores on bodily pain and vitality than the other dimensions of the SF-36. The mean global CBS score was 1.71 (SD ¼ 0.50) and mean scores for each dimension ranged from 1.39 (SD ¼ 0.64) for emotional involvement to 2.44 (SD ¼ 0.79) for environment dimension. Conclusion: The primary caregivers of spinal cord-injured persons reported low scores on all of the SF-36 and CBS dimensions, bodily pain and vitality being the SF-36 dimensions that received the lowest scores. Sponsorship: Funding was provided by the Brazilian research agency CAPES.

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Section: Discussioncontrasting

confidence: 51%

Health-related quality of life of primary caregivers of persons with paraplegia

2007

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“…Existing research suggests that a positive relationship exists between the duration of dementia and the caregiver's ability to tolerate problems [12,13,16]. These results support the adaptation hypothesis, which suggests that the functioning of the caregiver either stabilizes or improves over time.…”

Section: Characteristics O F the Demented Personsupporting

confidence: 58%

“…In most studies behavioural problems of demented persons (as reported by the caregiver) have been found to be related to higher caregiver burden or stress [2,3,13,15,18]. However, in other studies, behavioural problems were found to be positively associated with caregiver morale [16], or to have no relationship with caregiver outcomes [1].…”

Section: Characteristics O F the Demented Personmentioning

confidence: 99%

“…Studies of the effects of severity of dementia on the outcomes of the caregiving process for the caregiver have given inconsistent results. Some studies have reported that outcomes for caregivers were more negative when the cognitive status of the demented person was lower [12,13], although Miller et aL [14] found the opposite; in other studies no direct association was found [1,3,5,15]. Deimling and Bass [15] reported an indirect relationship mediated by disruptive behaviour of the demented person.…”

Section: Characteristics O F the Demented Personmentioning

confidence: 99%

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Predictors of sense of competence in caregivers of demented persons

Vernooij‐Dassen¹,

Persoon²,

Felling

1996

Social Science & Medicine

117

111

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“…A questionnaire designed to assess the burden experienced by carers. It comprises 22 items and scores range from 0 to 88 (Zarit et al, 1986;Martín et al, 1996).…”

Section: Instruments For Examining Socio-demographic and Clinical Varmentioning

confidence: 99%

Factors related to perceived quality of life in patients with Alzheimer's disease: the patient's perception compared with that of caregivers

Conde-Sala

Garré-Olmo

Turró‐Garriga

et al. 2008

Int J Geriat Psychiatry

138

169

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Aims: To compare care recipient and caregiver perceptions of quality of life in patients (QoLp) with Alzheimer's disease (AD). To identify associated factors, and the concordancesdiscrepancies. Method:Cross-sectional analytic study of 236 patients and their carers using the Quality of Life in Alzheimer's Disease (QoL-AD) scale, socio-demographic data and clinical examination. Results:Patients scored the QoL-AD more favourably than did caregivers (34.4 vs. 31.3, p<0.001). Cognitive deterioration did not affect the perception of QoL-AD (rho= -0.05, p=0.394). The neuropsychiatric symptoms was associated with a negative perception of the QOL-AD in both patients (rho= -0.22, p<0.01) and caregivers (rho= -0.47, p <0.001). Greater functional autonomy was associated with a better perception of the QOL-AD in patients (rho= 0.17, p<0.01) and even more so in caregivers (rho= 0.56, p<0.001). In carers, burden (rho= -0.56, p<0.001) and mental health (rho= 0.31, p<0.001) were inversely associated with the QoL-AD. QoL-AD scores of both patients and caregivers were higher for men, married subjects, those who lived with their spouse and those living in their own home. When the carer was a spouse both patients and caregivers scored the QoL-AD higher than when the carer was a son or daughter (35.5 vs. 33.4 and 33.7; 32.9 vs. 30.5 and 27.7, p<0,001). Conclusions

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Subjective Burden of Husbands and Wives as Caregivers: A Longitudinal Study

Cited by 1,513 publications

References 0 publications

Health-related quality of life of primary caregivers of persons with paraplegia

Health-related quality of life of primary caregivers of persons with paraplegia

Predictors of sense of competence in caregivers of demented persons

Factors related to perceived quality of life in patients with Alzheimer's disease: the patient's perception compared with that of caregivers

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