Study of Palliative Care Needs among Stroke Patients Referred to Physiotherapy Centers

Fathollahi, Tayebeh; Baljani, Esfandyar; Moradali, Monireh Rezaee

doi:10.52547/pcnm.10.2.26

Cited by 2 publications

(4 citation statements)

References 22 publications

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“…In addition, to the continual discomfort and numbness. This was mentioned by the participant woman (7), "My leg and hand were affected, and I was nearly paralyzed. I can't walk or move without help.…”

Section: Experiencing Physical Impairmentmentioning

confidence: 99%

“…The participants described how the pain had greatly affected their QoL, such as mood, bodily functions, sleep disorders, and physical activity. In support of that, the participant woman added (7): "Until today, I've been in excruciating discomfort. And this is what irritates me.…”

Section: Experiencing Intolerable Painmentioning

confidence: 99%

“…Another participant woman (7) expressed her concern about what will happen in the future in the following words: "My experience has been described as a weary, hazy trip in which we have no idea how long it will endure or what the future holds for us. Uncertainty is constant in my life".…”

Section: Experiencing Intolerable Painmentioning

confidence: 99%

“…Furthermore, patients with stroke face social and cultural di culties, due to dependence on others due to movement disorders, decreased senses, and reduced activity levels, which affect their daily lives, especially living activities such as showering, getting dressed, and going to the toilet. One of the biggest challenges for patients suffering from stroke is the feeling of pain and the inability to control and relieve it, which in turn leads to sleep disturbances and feelings of depression and anxiety [7]. Many healthcare providers are unaware of the necessity of palliative care services in caring for patients holistically from the aspect of social, emotional, and spiritual requirements, which is a signi cant clinical constraint [8].…”

Section: Introductionmentioning

confidence: 99%

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Palliative Care Needs Among Jordanian Women Living with Stroke: A Descriptive Phenomenological Study

Alhalabi

Khalaf

Zeilani

et al. 2023

Preprint

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Background: Stroke is a common neurological disease. Women with stroke suffer many physical, psychosocial, and spiritual needs. Consequently, women living with stroke may have many marginalized palliative care needs as perceived by health care providers. However, the experience of women living with stroke and palliative care needs is understudied in Jordan. Aim: This study aimed to explore the palliative care needs among women living with stroke in Jordan. Methods: A qualitative descriptive phenomenological approach was employed with a purposive sample recruited from twelve women living with stroke Data were collected using face-to-face semi-structured interviews. The Colaizzi (1978) method was used for data analysis. Results: The study revealed three main emerging themes that reflected the palliative care needs of women living with stroke, which are: living with bothersome symptoms, receiving bad news, and spiritual practices, beliefs, and needs. Discussion: This study sheds light on the aspects of Jordanian women with a comprehensive view of all aspects of life after suffering a stroke. The findings suggest that the burden of stroke has far-reaching consequences for women's lives. They have many unmet palliative needs that must be considered in the treatment plan. Conclusion: This study provides insight into the palliative care needs of women. Women's health care needs included physical, psychosocial, and spiritual aspects. In line with these needs, integrating the palliative care approach with the rehabilitation program should be considered to improve the quality of life and alleviate the pain and further complications after stroke.

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Section: Experiencing Physical Impairmentmentioning

confidence: 99%

Section: Experiencing Intolerable Painmentioning

confidence: 99%

Section: Experiencing Intolerable Painmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Palliative Care Needs Among Jordanian Women Living with Stroke: A Descriptive Phenomenological Study

Alhalabi

Khalaf

Zeilani

et al. 2023

Preprint

View full text Add to dashboard Cite

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Palliative care needs of Jordanian women’s experience of living with stroke: a descriptive phenomenological study

et al. 2023

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Background Stroke is a prevalent neurological disease that can have a profound impact on women’s physical, psychosocial, and spiritual well-being. In many cases, women living with stroke may have marginalized palliative care needs that are often not adequately addressed by healthcare providers. Unfortunately, the experience of women with stroke and their specific palliative care needs have been largely overlooked in research conducted in Jordan. Aim The purpose of this study is to examine the specific palliative care needs of women who have experienced a stroke and are currently living in Jordan. By conducting this research, we aim to identify the various physical, emotional, social, and spiritual needs of women with stroke and gain a better understanding of how these needs can be addressed through palliative care interventions. Methods This research utilized a phenomenological descriptive study approach to explore the experiences of twelve women recruited from the outpatient clinic of rehabilitation centers. The data was collected through semi-structured interviews. The analysis was conducted using the method of Colaizzi (1978), which involves identifying significant statements, extracting meanings, and formulating an exhaustive description of the phenomenon under study. Results The study findings uncovered three primary themes that reflect the palliative care needs of women who are currently living with stroke in Jordan, including (1) Spiritual practices, beliefs, and needs; (2) Coping with distressing symptoms; and (3) Managing the delivery of unfavorable news. Discussion This study provides valuable insights into the experiences of Jordanian women living with stroke, highlighting the far-reaching consequences of this condition on various aspects of their lives. The findings reveal that stroke has a significant impact on women’s physical, emotional, social, and spiritual well-being, with many facing unmet palliative care needs. By illuminating these challenges, our study underscores the importance of taking a holistic approach to stroke care that addresses the multifaceted needs of women living with stroke. Healthcare providers must consider these findings and integrate palliative care interventions into treatment plans to improve the quality of life of women living with stroke in Jordan. Conclusion This study provides valuable insights into the palliative care needs of women who have experienced a stroke. Our findings highlight the importance of addressing women’s physical, psychosocial, and spiritual needs as part of a comprehensive approach to stroke care. We recommend integrating palliative care interventions into rehabilitation programs to improve the quality of life of women living with stroke in Jordan. By doing so, we can address the pain and complications that can arise from stroke, while also providing holistic support to address the emotional and spiritual impact of the illness. This approach has the potential to improve outcomes for women living with stroke and enhance their overall well-being.

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Study of Palliative Care Needs among Stroke Patients Referred to Physiotherapy Centers

Cited by 2 publications

References 22 publications

Palliative Care Needs Among Jordanian Women Living with Stroke: A Descriptive Phenomenological Study

Palliative Care Needs Among Jordanian Women Living with Stroke: A Descriptive Phenomenological Study

Palliative care needs of Jordanian women’s experience of living with stroke: a descriptive phenomenological study

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