Abstract:The health research system faces critique for insufficiently matching patients’ needs. To combat this, patient involvement in health research decision-making has been advocated for. Such involvement requires a new way of thinking (culture), organising (structure) and working (practice) for all systems actors. Such a change is hard to achieve: despite patients being involved in various research phases, it is not standard practice and many difficulties remain. This thesis explores the state of the transition tow… Show more
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