Stroke family caregivers’ support needs change across the care continuum: a qualitative study using the timing it right framework

Cameron, Jill I.; Naglie, Gary; Silver, Frank L.; Gignac, Monique A. M.

doi:10.3109/09638288.2012.691937

Cited by 153 publications

(194 citation statements)

References 31 publications

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“…Activities related to feeding, personal hygiene, mobility and dressing, previously performed with ease in daily life, have become tasks that require specific care and support (1) . The domain of knowledge and learning how-to for family caregivers is one of the needs mentioned in most studies (7,9,(11)(12)(14)(15) , as this allows for better understanding of this new role of Being the caregiver. Although the progressive nature of this process is visible in some studies, namely its variation in complexity and amplitude with regard to special needs (1,7,9,12,(14)(15) , the family caregiver adapts to the situation after a period and feels like they can overcome these needs (1) .…”

Section: Resultsmentioning

confidence: 99%

“…The domain of knowledge and learning how-to for family caregivers is one of the needs mentioned in most studies (7,9,(11)(12)(14)(15) , as this allows for better understanding of this new role of Being the caregiver. Although the progressive nature of this process is visible in some studies, namely its variation in complexity and amplitude with regard to special needs (1,7,9,12,(14)(15) , the family caregiver adapts to the situation after a period and feels like they can overcome these needs (1) . A longitudinal study of 60 family caregivers for patients of a stroke (cerebrovascular accident -CVA) observed a change in the needs of caregivers over time: before hospital discharge, two weeks after hospitalization and 3 months after hospitalization, revealing a decrease of these needs over time (14) .…”

Section: Resultsmentioning

confidence: 99%

“…The transition period is viewed as a period of great importance in learning skills for the amount of care required for the patient (11) . To (provide) care in an independent manner, caregivers need to acquire new knowledge and skills in the self-care dimension to meet all the activities of daily life, particularly regarding mobilization, transfer, medical care at home, exercises for rehabilitation, how to provide care at home, managing the unexpected, among others (12) . Confronting this new role takes place as soon as the dependent person and the caregiver return home, faced with new difficulties.…”

Section: Resultsmentioning

confidence: 99%

“…Social needs, a support network for caregivers and economic and structural support are all described in the analyzed studies, with the importance of formal support being highlighted (1,3,(7)(8)(9)(10)(11)(12)(13)(14)(15) . Caregivers reported different experiences associated with formal support; some felt supported and involved in nursing and therapeutic procedures, while others experienced little help, as well as a lack of understanding and empathy (11) .…”

Section: The Importance Of Support -Emotional and Interpersonal Needsmentioning

confidence: 99%

“…Emotional and interpersonal needs, namely being able to rely on someone to vent and to get recognition for their care efforts from friends and family are described throughout the analyzed studies, showing the importance of support for caregivers (1)(2)(3)7,(11)(12)(13)(14)(15) . Research results indicate that caregivers experience many challenges, including unmet needs in areas of relational support, such as maintaining long-term relationships and emotional support (7) .…”

Section: The Importance Of Support -Emotional and Interpersonal Needsmentioning

confidence: 99%

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Family caregivers: what do they need? An integrative review

Fernandes

Ângelo

2016

Rev. esc. enferm. USP

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Objective: Aimed to identify the main needs expressed by family caregivers in caring for a dependent person. Method: An integrative review of the literature in the period between 2010 and 2015 using specific search engine tools in the EBSCO and SCOPUS databases. Results: 11 articles were selected, and the analysis of the scientific evidence obtained allowed for organizing the results into five thematic areas: transition into care, being responsible for everything, the importance of support, access to formal support, communication and information processes. Conclusion: The results showed that caregivers have many needs in different areas, which should be addressed in nursing interventions.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: The Importance Of Support -Emotional and Interpersonal Needsmentioning

confidence: 99%

Section: The Importance Of Support -Emotional and Interpersonal Needsmentioning

confidence: 99%

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Family caregivers: what do they need? An integrative review

Fernandes

Ângelo

2016

Rev. esc. enferm. USP

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Comparison of Clinical Care and In-Hospital Outcomes of Asian American and White Patients With Acute Ischemic Stroke

Song

Fonarow

et al. 2019

JAMA Neurol

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IMPORTANCE Although overall stroke incidence and mortality in the United States is improving, little is known about the characteristics and clinical outcomes of acute ischemic stroke in Asian American individuals.OBJECTIVE To compare the characteristics, care, and outcomes of Asian American and white patients with acute ischemic stroke. DESIGN, SETTING, PARTICIPANTS Retrospective analysis of Asian American and white patients admitted with a primary diagnosis of acute ischemic stroke to hospitals participating in the Get With The Guidelines-Stroke (GWTG-Stroke) program between April 1, 2004, and July 31, 2016. The GWTG-Stroke database is a prospectively collected stroke quality improvement registry sponsored by the American Heart Association/American Stroke Association. MAIN OUTCOMES AND MEASURESMultivariable logistic regression models assessed the association of Asian American race/ethnicity, clinical outcomes, and quality measures. RESULTSThe study population of 1 772 299 patients (mean [SD] age, 72.4 [14.2] years; 51.3% female) consisted of 64 337 Asian American patients (3.6%) and 1 707 962 white patients (96.4%) admitted to 2171 GWTG-Stroke hospitals with acute ischemic stroke. After adjustment for patient and hospital variables, Asian American patients were seen with greater stroke severity compared with white patients (National Institutes of Health Stroke Scale [NIHSS] score Ն16) (odds ratio [OR], 1.35; 95% CI, 1.30-1.40; P < .001), manifested higher in-hospital mortality (OR, 1.14; 95% CI, 1.09-1.19; P < .001), had longer length of stay (OR, 1.17; 95% CI, 1.14-1.20; P < .001), and were less likely to ambulate independently at discharge (OR, 0.84; 95% CI, 0.79-0.90; P < .001). Although Asian American patients had fewer intravenous tissue plasminogen activator (IV tPA) administrations than white patients (OR, 0.95; 95% CI, 0.91-0.98; P = .003), they had more symptomatic hemorrhage after tPA (OR, 1.36; 95% CI, 1.20-1.55; P < .001) and overall post-tPA complications (OR, 1.31; 95% CI, 1.18-1.46; P < .001). Asian American patients had better quality measure adherence overall than white patients, including rehabilitation (OR, 1.27; 95% CI, 1.18-1.36; P < .001), door to tPA within 60 minutes (OR, 1.14; 95% CI, 1.06-1.22; P < .001), and intensive statin therapy (OR, 1.14; 95% CI, 1.10-1.18; P < .001). After adjustment for stroke severity, Asian American patients had lower in-hospital mortality than white patients (OR, 0.95; 95% CI, 0.91-0.99; P = .008). CONCLUSIONS AND RELEVANCEAsian American patients manifested more severe ischemic strokes, were less likely to receive IV tPA, and had worse functional outcomes than white patients. These findings warrant additional research toward improving clinical outcomes for Asian American patients with acute ischemic stroke.

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Information provision for stroke survivors and their carers

Crocker

Brown

Lam

et al. 2021

Cochrane Database of Systematic Reviews

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Background The health risks associated with moderate alcohol consumption continue to be debated. Small amounts of alcohol might lower the risk of some health outcomes but increase the risk of others, suggesting that the overall risk depends, in part, on background disease rates, which vary by region, age, sex, and year.Methods For this analysis, we constructed burden-weighted dose-response relative risk curves across 22 health outcomes to estimate the theoretical minimum risk exposure level (TMREL) and non-drinker equivalence (NDE), the consumption level at which the health risk is equivalent to that of a non-drinker, using disease rates from the Global Burden of Diseases, Injuries, and Risk Factors Study (GBD) 2020 for 21 regions, including 204 countries and territories, by 5-year age group, sex, and year for individuals aged 15-95 years and older from 1990 to 2020. Based on the NDE, we quantified the population consuming harmful amounts of alcohol. Findings The burden-weighted relative risk curves for alcohol use varied by region and age. Among individuals aged 15-39 years in 2020, the TMREL varied between 0 (95% uncertainty interval 0-0) and 0•603 (0•400-1•00) standard drinks per day, and the NDE varied between 0•002 (0-0) and 1•75 (0•698-4•30) standard drinks per day. Among individuals aged 40 years and older, the burden-weighted relative risk curve was J-shaped for all regions, with a 2020 TMREL that ranged from 0•114 (0-0•403) to 1•87 (0•500-3•30) standard drinks per day and an NDE that ranged between 0•193 (0-0•900) and 6•94 (3•40-8•30) standard drinks per day. Among individuals consuming harmful amounts of alcohol in 2020, 59•1% (54•3-65•4) were aged 15-39 years and 76•9% (73•0-81•3) were male. Interpretation There is strong evidence to support recommendations on alcohol consumption varying by age and location. Stronger interventions, particularly those tailored towards younger individuals, are needed to reduce the substantial global health loss attributable to alcohol. Funding Bill & Melinda Gates Foundation.

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Stroke family caregivers’ support needs change across the care continuum: a qualitative study using the timing it right framework

Cited by 153 publications

References 31 publications

Family caregivers: what do they need? An integrative review

Family caregivers: what do they need? An integrative review

Comparison of Clinical Care and In-Hospital Outcomes of Asian American and White Patients With Acute Ischemic Stroke

Information provision for stroke survivors and their carers

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