Stress in caregivers of aphasic stroke patients: a randomized controlled trial

Draper, Brian; Bowring, Greg; Thompson, C Elise; Heyst, Jocelyn Van; Conroy, Philip; Thompson, Julie

doi:10.1177/0269215506071251

Cited by 78 publications

(80 citation statements)

References 21 publications

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“…Other research has highlighted the importance of routine and real-time telephone interventions in which healthcare providers supply information about stroke [18]. Similarly, stroke caregiver support, education, and training programs are effective in reducing stoke caregiver stress levels [19]. And largescale reviews and meta-analyses have generally suggested that caregiver education, counseling, and support interventions by telephone and in person are effective in reducing caregiver stress; improving family functioning, caregiver mental health, psychosocial functioning, and knowledge; and reducing the anxiety and depression of people with stroke [11,[20][21][22].…”

Section: Introductionmentioning

confidence: 99%

A culturally sensitive Transition Assistance Program for stroke caregivers: Examining caregiver mental health and stroke rehabilitation

Perrin¹,

Johnston²,

Vogel³

et al. 2010

JRRD

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Abstract-This study developed and implemented the Transition Assistance Program (TAP) for stroke caregivers. The program is composed of (1) skill development, (2) education, and (3) supportive problem solving. Sixty-one dyads (n = 122) participated: thirty-nine from Puerto Rico and twenty-two from Texas. Participants were randomly assigned to the TAP treatment or a control group. As caregiver satisfaction with the TAP increased, strain and depression decreased, and caregivers reported a very high rate of program satisfaction (9.5 out of 10). The TAP effectively reduced caregiver strain at the 3-month follow-up. When controlling for baseline differences, we found that the treatment group had lower depression (p = 0.07) than the control group at follow-up and that the TAP may have had a preventative effect on depression for caregivers who had not been depressed at discharge, although this visual trend did not reach statistical significance. Among veterans with low functioning at baseline, veterans whose caregivers had received the TAP improved in functioning more than did veterans whose caregivers had been in the control group, although this visual trend was not significant. Functioning in veterans with stroke was also significantly linked to caregiver satisfaction with the TAP. The findings from the current study warrant further evaluation of the TAP intervention.

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Section: Introductionmentioning

confidence: 99%

A culturally sensitive Transition Assistance Program for stroke caregivers: Examining caregiver mental health and stroke rehabilitation

Perrin¹,

Johnston²,

Vogel³

et al. 2010

JRRD

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“…Future studies should be responsive and tailored to both the needs of the care of the survivor and the unique needs of the family caregiver. 25,27,38,40,41,[44][45][46][47][48][49][50][51][52][53][54][55][56][58][59][60][61] 17 (53.1) 4 (23.5) 16 (94) Stroke survivor-caregiver dyad 26,[28][29][30][31][32][33][35][36][37]39,42,43,57,62,63 15 ( Psycho-educational 26,29,33,37,39,42,58 7 (21.9) 6 (85.7) 6 (85.7)Skill building and psycho-educational 25,27,28...…”

mentioning

confidence: 99%

Evidence for Stroke Family Caregiver and Dyad Interventions

Bakas¹,

Clark²,

Kelly-Hayes³

et al. 2014

Stroke

210

188

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S troke is one of the leading causes of severe, long-term disability, 1 with a majority of stroke survivors requiring the assistance of a family caregiver.2 A family caregiver is defined in this context as a relative, partner, personal friend, or neighbor who provides assistance to an adult with a chronic or disabling condition such as stroke.3 Although family members may not consider themselves caregivers, this term is commonly used in the literature to represent family or informal (unpaid) caregivers.Family caregiver stress is commonly associated with longterm institutionalization of stroke survivors, resulting in significant costs to the healthcare system. [4][5][6][7][8] Family caregiver stress can also result in other negative outcomes for both survivors and their caregivers. 7 For example, caregiver stress has been shown to interfere with rehabilitation of the survivor 7 and can result in social isolation, declining health, and increased risk of mortality for the caregivers. 9,10 Depression is especially prevalent in stroke family caregivers, 7,11,12 with some studies reporting higher depression rates in the caregivers than in the survivors for whom they provide care. 11,13 Miller and colleagues 14 made recommendations for family caregiver education and support across inpatient, outpatient, and chronic care settings based on clinical practice guidelines and existing research. These recommendations involved (1) caregivers serving as integral members of interdisciplinary teams, (2) assessment of caregiver needs and concerns, (3) follow-up contacts and referrals, (4) counseling focused on problem solving and social support, (5) provision of strokerelated information, and (6) attention to the emotional and Abstract-Stroke is a leading cause of severe, long-term disability. Most stroke survivors are cared for in the home by a family caregiver. Caregiver stress is a leading cause of stroke survivor institutionalization, which results in significant costs to the healthcare system. Stroke family caregiver and dyad intervention studies have reported a variety of outcomes. A critical analysis of 17 caregiver intervention studies and 15 caregiver/stroke survivor dyad intervention studies was conducted to provide evidence-based recommendations for the implementation and future design of stroke family caregiver and dyad interventions. The American Heart Association makes every effort to avoid any actual or potential conflicts of interest that may arise as a result of an outside relationship or a personal, professional, or business interest of a member of the writing panel. Specifically, all members of the writing group are required to complete and submit a Disclosure Questionnaire showing all such relationships that might be perceived as real or potential conflicts of interest.This statement was approved by the American Heart Association Science Advisory and Coordinating Committee on March 26, 2014. A copy of the document is available at http://my.americanheart.org/statements by selecting either the "By Topic" link or ...

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“…This figure underlines the extent of the burden of care that partners carry [26] [27]. Particularly partners who face the loss of communication abilities in their family member due to aphasia may struggle [28].…”

Section: Rationale For the Implementation Of A Cpt Programmementioning

confidence: 97%

ImPACT: a multifaceted implementation for conversation partner training in aphasia in Dutch rehabilitation settings

Wielaert

Sandt-Koenderman

Dammers

et al. 2016

Disability and Rehabilitation

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ImPACT: a multifaceted implementation for conversation partner training in aphasia inDutch rehabilitation settings. AbstractPurpose: Exploration of the clinical uptake of a novel conversation partner training (CPT) programme in aphasia in ten Dutch rehabilitation facilities and identification of its perceived facilitators and barriers in service providers, and the evaluation of the implementation methods used. Method:Ten rehabilitation centres took part in a multifaceted implementation of conversation partner training over thirteen months. Each centre selected two speech and language therapists to act as knowledge brokers whose role it was to raise awareness of CPT in the team and to facilitate getting partners of people with aphasia into the programme. The implementation was evaluated using analysis of recruitment data and questionnaires, supplemented by consensus data and scrutiny of implementation plans.Results: Successful implementation was described as 1) four dyads included during the intervention period, 2) two more dyads included after the intervention period, before the end of the study and 3) inclusion of Partners of Aphasic Clients Conversation Training (PACT) in a description of the logistics of local stroke care (stroke care pathway). Seven centres were successful in reaching the target inclusion of 6 dyads in total. Only one centre had care pathways in place. From a recruitment pool of 504 dyads, 41 dyads were recruited and 34 partners completed the implementation of PACT study (ImPACT). Observed facilitators included the motivation to engage partners in the rehabilitation process and the perceived added value of PACT. The perceived barriers focused on time limitations within current systems to discuss the consequences of PACT with relevant professionals and to establish allocated time for PACT within existing care routines. Conclusions:The motivation of professionals to involve partners in the rehabilitation process assisted with the introduction of PACT in practice. The main barrier was time, linked to the requirement to think through integration of this innovation within existing care. Longer term evaluation would ascertain how centres sustain uptake without support.

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Stress in caregivers of aphasic stroke patients: a randomized controlled trial

Abstract: Stroke caregiver support, education and training programmes have short-term effects on caregiver stress levels but are likely to require ongoing involvement to maintain their effect.

Cited by 78 publications

References 21 publications

A culturally sensitive Transition Assistance Program for stroke caregivers: Examining caregiver mental health and stroke rehabilitation

A culturally sensitive Transition Assistance Program for stroke caregivers: Examining caregiver mental health and stroke rehabilitation

Evidence for Stroke Family Caregiver and Dyad Interventions

ImPACT: a multifaceted implementation for conversation partner training in aphasia in Dutch rehabilitation settings

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