Strengths, challenges, and relational processes in families of children with congenital upper limb differences.

Abstract

, T. L. (2007). Strengths, challenges, and relationship processes among families of children with upper limb differences: A qualitative study. Families, Systems, and Health, 20(3), 276-292.

Working and caring for a child with chronic illness: A review of current literature

“…Arguments have been made that a child's behaviour occurs in an interpersonal context, where a bidirectional impact takes place, with the family affecting the child's illness, but as also the illness influencing the family (Smith & Kaye, 2012). For caregivers, these influences come in the form of the many challenges that they face and the resulting impact on their own health and well-being (Moore, David, Murray, Child, & Arkwright, 2006), family relations/activities, time management, daily routines, social networks, financial costs (Gustafsson, Olofsson, Andersson, Lindberg, & Schollin, 2002;Lange et al, 2004), careers, and usual parenting (Murray, Kelley-Soderholm, & Murray, 2007). Particularly, caring for a child with a chronic health problem can negatively impact employment (DeRigne, 2012).…”

“…More research is now examining the QoL of those who care for children with a chronic illness, given the need for them to incorporate additional tasks and demands into their daily lives. When such stressors (e.g., additional demands related to the illness) cannot be managed, the negative effects of stress accumulate (Murray et al, 2007) and can lead to psychological, social, and physical impacts on parents (Fisman, Wolf, Ellison, & Freeman, 2000;Zahr, Khoury, & Saoud, 1994).…”

Qualidade de vida e sintomatologia psicopatológica em pais de crianças com diagnóstico de deficiência/anomalia congénita: A importância das características de resiliência

“…Os sujeitos resilientes podem experienciar sintomatologia psicopatológica, mas o foco encontra-se nas suas competências para responder de forma efetiva aos desafios do quotidiano (Schaap et al, 2009). Por outro lado, apesar da não existência de significação estatística, observa-se neste estudo uma maior expressividade nas mulheres da dimensão de recursos sociais, aspeto que tem sido sugerido noutros estudos (Friborg et al, 2003) e que tem sido apontado como um importante recurso para estas famílias (Murray et al, 2007), o que poderá contribuir para a explicação do resultado encontrado. A expressão significativa ao nível da dimensão coesão familiar tem sido igualmente salientada por vários autores como um fator de resiliência no ajustamento parental (Saloviita, Italinna, & Leinonen, 2003).…”

Families' Views of Pediatric Palliative Aquatics: A Qualitative Study

“…The principal investigator and her research assistants extracted themes arising from the focus groups using thematic analysis. The analysis was grounded in family systems theory, which proposes that the experiences of one person affect the experiences of his or her family members and the family adaptation and adjustment response model, which holds that families grow stronger or weaker in response to health condition stressors (Murray, Kelley-Soderholm, & Murray, 2007). After data were collected, follow-up letters were posted or emailed to families thanking them for their involvement.…”